Defying autistic stereotype still autistic?

Few things that delayed my self-diagnousis as someone on the spectrum because they defy the stereotype. First, I hate routine because I have such inconsistency and mood changes. One day I'd like to talk and chat and the other I'd like to stay in my room alone. I can't imagine a life where everyday is the same. I have different moods and i can't just stick to working hours 9to17. Somedays I like to have very slow morning or work on Sunday and sleep on Monday.. can't eat the same food everyday but I do have bunch of recipes that I tend to repeat, maybe just because it's easier and than cooking something new, but sometimes I do.

Second is that I like new experiences. Traveling, new food, new places in the city and so on when I have the mood for it. Even if the experience might intimidat NTs. 

Third is that I can be friendly if I'm well recharged and rested. I can be social if I'm very well rested and recharged (alone for few days). Smile, chit chat (never a small talk tho). I can tolerate lights and sounds after good sleep..

Can anyone relate to any of this?. Is this normal among autistic people?. Most of what I read online talks about repetitive behaviours, sticking to routine and being closed to new experiences..

  • yes life is often like whack-a-mole!

  • Sounds like AuDHD. Autism with ADHD.
    Because that sounds exactly like me: time blind, chatty at full battery, no routine only chaos, novelty seeking.

  • From what ive heard ADHD has been changed to ADD, because not everybody with ADHD has the hyperactivity symptom. Especially in females, they were getting under-diagnosed because they didnt display hyperactivity as much as men did.

  • HA. me too. I have sooo many alarms set to sound on my phone.

  • Thank you for replying this. Well, maybe the threshold is actually lower but how would I know?. Most of the stereotypes or the description of autism published online describe autism from the point of view of NT observer which I can't relate to at all. Routine to me means doing exactly the same things at the same time which is very exhausting to keep it this way everyday. After a bad sleep at night it's so hard to keep the routine that I can usually do after a regular night. Somedays I need to recharge, some other days I need to be around people because I get lonely. From my point of view there's no routine at all but maybe for an NT this is hell of a routine.. few resources describe what we go through from our internal perspective that's why this forum is so valuable to me among others reasons of course.

  • This thread is interesting to me, as I also like new experiences, providing I can recharge. I have been described as living in organised chaos. I like ordering things, but my time-keeping is appalling. Sticking to routine is really difficult and stressful. I have wondered if I am dyspraxic (devevelopmental coordination disorder) as I am rather clumsy. DCD is often comorbid with autism and is a far better fit than ADHD for me.

    I think the key thing you state, is being rested, recharged allows you to enjoy novelty. I expect your threshold is probably lower than many NTs.

  • I wonder if that will change, with flying being seen as more and more of a lisbility with the climate crisis

  • That was what I thought at first, I'm rather more inactive than hyperactive! But there is inattentive type, the stare out the window in a daydream kid. ADHD also has hyperfocus! Worth looking into because of how it interacts with autism and is a very common comorbidity.

  • I think "incomplete" is right but I don't think we would ever get a complete picture because there's so much variation. This is why a forum such as this one is invaluable as we get to see different experiences. I was trying to show in my lengthy response that autistic traits can be interpreted and shown differently for different people and that there are some "atypical" experiences. I understand it to be external manifestations of internal processes.

  • I actually don't know about that. I didn't read much on ADHD symptoms but I can be still in my bed for whole day if I'm recharging, I don't consider myself extra active but more calm one. I can focus on things and get to hyper concentration state, which doesn't happen too often tho. On a normal day (not burned out and not hyper focused) I like to focus on a task until it's done but if it takes many hours then I need a break each 50 minutes or so... Well, my understanding to ADHD can be inaccurate but these are few things that make me think that I don't have it

  • Staying in university accommodation could mortifying indeed

  • Thank you for your reply. It makes me see the stereotype in a different way, maybe understand "the need for routine" differently. At the end we rely on their system and understanding to diagnose ourselves, explained to us by their words.

  • I like going out, but get anxious; then tired.

    I'm excellent at planning public transport journeys. But find that there is little accommodation for those who travel between Ireland and Britain by ferry and coach rather than by air.

  • Yes!, I can relate to this. As a freelancer I  would hate to be stuck in the same job in the same place year and year out. 

  • constantly navigating things in need of repair

    I have never seen this articulated as a particular problem for us, but it so is! I get so stressed if my trike breaks down, even just a puncture which are not rare. And my cat has been ill all year which is very stressful not just for the obvious reasons. I find even general maintenance difficult, I like it when a job gets done once and stays done! It bothers me a lot when it has to be done again and again maybe just because things get dirty over time. Will have to think more on this.

  • Some of the "stereotypes" have been formed by severe misunderstanding.

    Autistics thrive in a stable, grounded, environment where we're not being flung into chaos, forced to smash-cut transitions, surprised or constantly navigating things in need of repair. But because NT society is loosely grounded on surface values rather than fundamental ones, it is their (NT) experience of reality which has shaped perception of stereotypes. This shaping has to do with how an individual within the the Freudian/Lacanian Social model is formed, and how that impacts them.

    Because the "NeuroTypical" model involves a feeling of sameness one can't easily escape without years of psychoanalysis (shaped by a sort of social 'encoding' like a computer code), there is a default joy of natural oddities, things out of organised order, little surprises and such. Thus, misidentifying of the Nature of Autistic Being where one cannot even fathom the possibility of desiring a predictable environment, because for the NT, it's already far too predictable. So, what becomes assumed is the need for implemented routines rather than grounded values and principles, a fundamental order rather than chaos. But this is a 'band-aid' rather than a viable solution and thus, the NT continues to be confused.  

    The state of being you're describing - well rested, interested in new things, occasionally social to a point, would be a state of thriving. Much can be navigated and life can be lived when at this state of being. Having agency and a sense of control over ones life, having time to heal and regroup - these are often the thing robbed or rejected from autistics and they literally make a world of difference. When the anti-psychiatry movement started, this is part of what Laing and Guattari spoke of trying to afford those who were in a perpetual cycle of breaking down. The movement was hacked, but it had quite good beginnings. 

  • I missed a first year university exam, I thought it was in the afternoon, but it was in the morning. It was on my 19th birthday, to top it all. I had to see the dean of science and then sit it again in September. I had a long train journey and had to stay overnight in university accommodation, so it was expensive as well as mortifying.

  • These things might be a sign you have ADHD too.

  • Oh, I used to forget about exams in my first year of college. I had to do subjects again because of that. My biological clock is impressively good. I wake up one or two minutes before the alarm goes off in a normal day but few hours earlier if I have a morning appointment!. Maybe I do get very anxious about timings too. 

  • Thank you for sharing. It does sound very relatable. I think that the internet is full of huge amount of similar and inaccurate or incomplete information about autism.