Pain

Hello Superstar.

I do hope it was good news from your general physician following your tests. It's been such a long time since you were last here, so many people have come and gone in that time. I hope you will be able to return in the future.

Thinking of you tonight. Take care of yourself.

Best wishes,
Queen.

Hi, pain is a complex thing and can often be exacerbated by anxiety, and can be distorted by poor sleep and mood. I would focus on trying to minimise any anxiety you have, perhaps through some therapy, and also take steps to improve your sleep hygiene. I get pains which often are triggered by emotions but translated into pain sensations. Sometimes it is just being aware these might be from your neuron paths just being wired close together that can reduce anxiety from them. I've tried meds for anxiety with bad paradoxal effects from SSRIs... I would be interested in trying NMDA receptor antagonists to help with neuronal calming and see if my anxiety stems from just a natural imbalance of that system as I'm not convinced my issues are serotonin related. Be sure to get the pains checked out by your doctor regardless. All the best 

I'm sorry you're in pain  I hope everything worked out ok in the end.

Doctors can be great but there so lacking in know how when it comes to autism

 They need to be trained in it I think, they always blank it with me. My current doctor is great but whenever I mention it

She just pushes it aside and talks about other health problems I may or do have.

I try to rest when possible but I'm always so awake and on the go it's like my brain can't and won't shutdown

I tried getting new job recently but wasn't successful, I'm lucky to have something now but I just can't afford to take time off things to expensive

And now looks like my health is in trouble so got to deal with that too :(

Sooo much going on feel like I'm trapped in a nightmare

Sounds like you need a doctor who knows a bit more about autism... both the psychological side; the tendency to worry and stress; and the physical side.  If burn out is causing it, the only fix is rest and you might need time off.

I just heard from the doctors

Something come back in the blood and she wants to see me. I said about coming in this afternoon or tomorrow and she say no this morning please

Feeling bit anxious now and worried

A food diary is very useful, it can help to narrow down on problem foods. Some intolerance symptoms can be quite delayed, for me, which makes things more difficult. Pineapple was easy to spot, as about 20 to 40 minutes after eating it my heart starts racing, I turn bright red, start sweating, have stomach cramps and a panic attack!

I'm very sorry you experienced that

Can't have been nice or pleasant for you at the time

I know how bad digestive trouble can be. I get it a lot pretty much every day

Could be diet related what I'm eating

I am cutting certain foods out and now keeping a food journal, my doctor seem to think that a good idea for me to try

No difference yet but it's early days yet so hopefully it will improve over this week

Hi Dawn

In the past medical people have just dismissed me just because, really unfair but that seems to be the way

No sadly no meds yet, doctor seem reluctant to give me anything yet

Yeah you know it could be burnout I mean I am on edge and stressed out all the time day and night. Worrying and stressed about everything and get little sleep because of it. I did try telling doctor that but she just looked at me like I was crazy

Thank you Dawn. I hope I will get the answers soon. I can't keep being like this forever, feel tired and drained like I'm burning out

Pain had eased today but it has increased again tonight in agony at the moment

Hopefully it will get better and doctor will find cause soon

Thanks Dawn xx

Bless you. Sounds awful.

We do feel physical stuff differently, so it's important you aren't dismissed by medical people just 'cos your not fitting the box. 

Have they given you meds of any kind for anything that acts on your neurology. They can do wierd unexpected stuff to us and might want reviewing.

Also wierd aches and pains can occur with burnout. I've had those. Is that a possibility? Have you been doing too much, been too stressed of late?

Whatever it is I doubt it can last for ever. It's going to have a cause and when you find that you'll find an answer.

I get the body experience provokes suicidal ideation, even though you otherwise quite like life thing. Been there. But you are young yet, you just need to hang on in there and push for answers. It may feel like there's no end to this, but keep going. There will be an answer.

Gluten is surprisingly in a lot of things, like fried breaded chicken, sauce, and so I mainly just eat meat, fish, vegetables and rice. But I do eat gluten-free pizza and cookies and jams, fries, and chips, because I like junk food (all made sure to be gluten-free of course).

Well I was diagnosed with ibs, the specialist recommended that I stop eating gluten and dairy, but that seemed scary and almost impossible at the time because I did not know what I would eat, because bread was like half my meals! And I never used to read labels, so I had to develop the habit of reading them, but I'd forget the first few dozen times, which lead to a few dozen stomach aches, but now I learned to check the label.

Thank you x I hope the meds help you - they certainly help a lot of people. My eldest took an SSRI for a while - he found it tough with side effects in the first few days but he stuck with it and and he did find them helpful after a couple of weeks from starting them. I think this often happens. He also found getting off them a bit difficult too as you get withdrawal effects too. However overall he says he does not regret taking them and he thinks they did help him through a rough patch in his life. I think with me I just could not cope with the initial side effects when I started them so I had to stop. I think it’s best to make sure you have someone with you or someone you can contact for support if you do find the first few days difficult. 
I really hope they work for you. And thanks for being so supportive - I really appreciate that. I’m here for you too if you ever want to chat :) 

I have had a lot of problems with food intolerances. I ended up having a gastroscopy to check if I had an ulcer, I didn't. I had not been able to drink cask beer without stomach problems for some years, then it struck me that my problems may have been caused by yeast. I cut out leavened bread, which contains baker's yeast, and within a week my gastric problems disappeared. It is a problem that my food intolerances seem to change over time. At each new bout of gastric or gut symptoms I have to try to work out what might be causing the problem. To date I have intolerances to: pineapple, spinach, scombroid fish, and, unfortunately, potatoes.

That must have been horrible to go through for you... Pain isn't nice and taking breathing and other problems to must have been awful, not to mention anxiety provoking for you as well

Yesterday my doctor was saying could be something like ibs so she's wanting to rule out everything else first and then she says we'll explore other possible causes

I think that's great that you tested first and worked out what it could have been before you attempted meds. Good for you I think that's really good and clever.

I love bread, like you I feel it's a safe and plain food to eat. It could be causing my problems though, like it was for you so over the weekend I'm cutting it out and seeing if I'm any better by Monday. Even a slight improvement will be good, and then I can tell my doctor

Hoping it will ease up. I've only been up for about an hour now and I'm already in pain

Out of 10 I'd say it's a 7 at the moment

Hoping that will go down in a bit

Aw Kate *hugs*

You can Always talk to me if you ever need to vent or get things of your mind, anytime is no problem ^-^

I find talking here helps as well its a nice community

My doctor says about trying surtraline, thinks it will help with the anxiety and she thinks I might be a bit depressed so it should help that as well

I'm sorry you had a bad reaction. Can understand why your not sure about trying again, I'd be a bit worried to

Maybe you can talk to your doctor about this and see if they can start you on something gentle with low dose?

I'm happy to take meds but I don't want any side effects

Thank you :) 

to be honest I’m not really ok! 
it’s nice to come on here though and realise that other people are going through similar things. It really helps. 
what anxiety medication does your gp mean? I took SSRIs once but had a bad reaction so had to stop. I’d be interested to know what your doctor is referring to. I’m quite anxious about medication though due to my previous experience. 

I used to think bread was a plain and safe food to eat, but it was actually causing a lot of issues that I was never aware of. 

I had a stomach pain that increasingly became worse and worse, I had issues breathing, my heart rate was high, anxiety was high, I had depression and low motivation, difficulty falling asleep, but because I looked young, the doctors never took me seriously, and thought I was just worrying too much. 

I luckily tried to cut out gluten, and after a week my body was completely functional (for the first time in my life), healthy, full of energy, and without issue. Then I accidentally ate gluten again and I felt terrible for days. I then tested eating gluten a few more times, because I wanted to make sure it was gluten (I wished it wasn't, because so many cheap and delicious foods are made from gluten!) but I had to accept that it was gluten, and cutting it out was the best thing I could do for my body. 

But if the issue is not gluten, then you can easily just start eating gluten again. I'd suggest you try to cut out inflammatory foods that might be affecting your gut, before you try something more invasive like anxiety medication, that might have withdrawal effects. 

Aww bless your son, is he doing better now? You sound like a lovely woman, I'm sure with your help he manages his autism ^-^ I wish I'd had my mum to help me with mine

I think lots of mine may be diet related.

Doctor took blood just in case to rule out anything bad

I'm sorry you have suicidal thoughts as well as times Kate

Mine is the exact same though.. things get difficult, pressure builds and then suddenly thoughts get like that. I think it's just where get so overwhelmed and worked up by certain things

I hope you're ok?

My doctor was very kind and supportive. Wants me to take anxiety medication, which I'm thinking about ^-^

I saw my doctor, bloods were taken which resulted in me going down to the floor face first.... Lmao I get so worked up in doctors always happens to me

I probably could do with eating more fruit and veg but I've had times in the past where fruit and veg had gone off and it put me off so now I avoid it at all costs

Might be worth trying it again though as it might not be helping my current problems.

And you are so right the price is unbelievable. Like wtf! Go shopping and the healthy stuff is so overpriced, probably why most people just eat the bad stuff

Massage would be nice but I've no one to give me one and couldn't afford a professional, think my anxiety would explode if I did have one lol

My son (whose autistic too) had loads of issues with stomach pain and chest pain etc - it turned out that he has celiac disease. He’s cut out all gluten and it’s really helped him. I hope your doctor can help. I’m so sorry you’re having suicidal thoughts - I often get them if I I have a distressing problem that I feel I can’t solve. I can suddenly feel that I just can’t go on any more and it can be such an intense wave of despair. Like you I don’t make ‘plans’ - it’s just the thought my mind goes to when I can’t see a way out of a distressing situation. I hope you find some answers from your doctor. Good luck :)