Pain

I'm hoping I'm not alone in this

But does anyone else get loads of pain all day every day? For some reason I'm in pain all the time, and I don't mean just aches though sometimes they are just aches but also really bad stabbing pain, usually in stomach, side and private area or near it. Like wtf is up with that? Already seen loads of doctors and been to hospital so many times and nothing ever showed up which made me look and sound nuts. But it's genuine, loads of pain all the time. Also get feeling of sickness a lot as well.

Last month I've started getting it in my head as well, at the back of my head and sides as well. Been feeling dizzy as well. Don't know what it is or how to make it better, it starts, gets bad sometimes severe and then a few hours later it eases up. Really weird

I know people with autism can be oversensitive to pain and also can have digestive issues. So I put it down to that but last few months it has got a lot worse, could be my anxiety as I do suffer bad from that

But it's also making me feel suicidal, like thoughts and feelings because if this is for the long run and there is no help then I really find want to stick around for that.

Mostly I like life but I'm not hanging around if I'm going to be in pain until I'm like 80. I'm not even 26 yet and already I'm in more pain than most people are. It sucks

And then there's the feeling sick, the dizziness, the digestive stuff, like holy hell wtf is going on

You guys get this to or is it just me?

I'm finding it hard to live with now and don't know who go to with it as doctors and hospitals found nothing

Makes me feel crazy but I know I'm not. At a loss now

Parents
  • I'd suggest that you try cutting out one of the common inflammatory foods (like gluten, dairy, or sugar) for a week or so, and see how you feel. I know that gluten can cause people a lot of issues, so I'd suggest to try cutting that one out first. Also you could get an allergy test to see if you're allergic to anything.

Reply
  • I'd suggest that you try cutting out one of the common inflammatory foods (like gluten, dairy, or sugar) for a week or so, and see how you feel. I know that gluten can cause people a lot of issues, so I'd suggest to try cutting that one out first. Also you could get an allergy test to see if you're allergic to anything.

Children
  • My son (whose autistic too) had loads of issues with stomach pain and chest pain etc - it turned out that he has celiac disease. He’s cut out all gluten and it’s really helped him. I hope your doctor can help. I’m so sorry you’re having suicidal thoughts - I often get them if I I have a distressing problem that I feel I can’t solve. I can suddenly feel that I just can’t go on any more and it can be such an intense wave of despair. Like you I don’t make ‘plans’ - it’s just the thought my mind goes to when I can’t see a way out of a distressing situation. I hope you find some answers from your doctor. Good luck :) 

  • Oh thanks for the tip

    It could be gluten related, I eat a lot of bread because it's so plain and kind to my digestion but I guess now it could be doing more harm than good

    I'll discuss this with my doctor this afternoon and see what she says

    I can always cut it out and do a food diary as well see how I feel in a week's time.

    Thanks for your reply