Melanie Sykes have just been diagnosed with autism

https://www.bbc.co.uk/news/uk-59352983

Melanie Sykes has just been diagnosed as being autistic 

She like many here remained undiagnosed until later in life. 

very positive article

Parents
  • Are you basing this on her job? 

    Based on stereotypes of autism, I shouldn't be able to do my job either, as my job requires a lot of empathy and people skills. Something Melanie said on Loose Women really resonated with me actually, when she said people are her interest. I've said this many times that people are a fixation for me, especially meeting people (I get bored once I know them well).

    If you question her diagnosis then you are questioning a lot of us. My difficulties are often very internalised, nobody ever sees my struggles until I'm approaching meltdown or shutdown. Even that is usually private at home. 

    Referring to people as high or low functioning is pretty outdated too these days. Even "high functioning" autistic people have support needs. Just because you cannot relate them to your non-verbal child doesn't mean that they don't exist. 

  • This reply was deleted.
  • May I ask out of interest why it would cross your mind (ie "how can you tell")? Just curious.

    I also think that diagnostic criteria are evolving butI know there has to be some sort of "cut off". I scored just above the cut off on my assessment. With some people, it may seem that they have more obvious difficulties but many years ago they might not have even got a diagnosis. So I think things are evolving all the time.

    I do think as more people explore information which is available and so start talking about their own experiences,  this goes to redefining what autism means. For example,  when I started reading about autism and aspergers for myself I discounted it in the first instance because I couldn't relate to it. It was about stereotypical male behaviour and from official sources like the nhs. But then as I started reading more (a mixture of first hand experiences and also that of qualified people) it began to make more sense. As I talk about my own experiences this may feed into how other people relate to it too. 

    Edit - I think I'm trying to say there may be common shared experiences of people with autism which are not in "official" material but it's only since we have more access to sharing information that these are brought to the open more.

    On the other hand, I do wonder sometimes if what people describe can be attributed to autism or if it's something else like personality. And then these things get thrown into the unofficial mix of autism. I would say there's plenty I cannot relate to but a lot i can. 

    I have thought about this before going off on so many branches in my head. I don't know if I have explained correctly what I mean and its certainly not a personal attack on anyone autistic or not. 



  • As in contrast to non-autistic (or Allistic) people being described as Neurologically Typical (or NT); the description of being Neurologically Divergent (or ND) is commonly and regularly used by autistic people here and elsewhere to refer to themselves and others on the autism diagnostic spectrum, keeping in mind that it is not used by or in reference to autistic people alone:


    The neurodiversity paradigm was taken up first by individuals on the autism spectrum.
    .
    Subsequently, it was applied to other neurodevelopmental conditions such as attention deficit hyperactivity disorder (ADHD), developmental speech disorders, dyslexia, dysgraphia, dyspraxia, dysnomia, intellectual disability and Tourette syndrome, as well as schizophrenia, bipolar disorder and some mental health conditions such as schizoaffective disorder, antisocial personality disorder and obsessive compulsive disorder.
    .
    Neurodiversity advocates denounce the framing of neurodevelopmental disorders as requiring medical intervention to "cure" or "fix" them, and instead promote support systems such as inclusion-focused services, accommodations, communication and assistive technologies, occupational training, and independent living support.
    .
    The intention is for individuals to receive support that honours authentic forms of human diversity, self-expression, and being, rather than treatment which coerces or forces them to adopt normative ideas of normality, or to conform to a clinical ideal.

    As is also exemplified via the following You-Tube video:


    Girl with Down Syndrome Joins Harlem Globetrotters ~ The Week in Neurodiversity (3/10/18)

    Basically then, from a medical or clinical perspective ~ Leif Ekblad (as the author of the Autism, Personality, and Human Diversity: Defining Neurodiversity in an Iterative Process Using Aspie Quiz paper) was in 2013 addressing the need for neurologically typical, atypical and divergent behavioural traits to be further researched and categorised for more accurate diagnostic criteria ~ in respect of autism as being a spectrum condition that involves people having maximum, moderate and or minimum personal and or social support needs.

    And as for:



    Sage journals are peer reviewed and published for those interested, qualified and working in not only the disciplines of the Social Sciences and Humanities ~ but also those of the Health, Life, Biomedical, Materials and Engineering sciences too, so a 'Gold' or 'World Standard' is provided in terms of their article's high credibility.
    .
    The following for example is another take on the same subject matter covered this year in a Psychiatric article of the Lancet Medical Journal:

    The neurodiversity concept: is it helpful for clinicians and scientists?
    .
    ADHD and autism spectrum disorder are conceptualised as discrete, categorical, neurodevelopmental disorders, which originate in early development and are assumed to be the result of underlying brain dysfunction.
    .
    From one perspective, these definitions provide important clarity for clinical practice and ensure we are guided by research progress over the past 40 years.
    .
    By contrast, others have argued that alternative ways of thinking are needed. Some challenges to current concepts are empirical.
    .
    For instance, research shows that neither ADHD or autism spectrum disorder are categorical in nature, but rather behave as population dimensions with no clear-cut boundary differentiating individuals with, from those without the conditions. Different neurodevelopmental disorders also show marked phenotypic and genetic overlap.
    .
    Furthermore, neurodevelopmental conditions are highly heterogeneous—individuals with similar clinical presentations can have very different neurocognitive profiles.
    .
    Finally, for ADHD and possibly autism spectrum disorder, emerging evidence of adult-onset forms could be viewed as a challenge to their standing as neurodevelopmental conditions. Alongside, but largely independent of evidence-based challenges, has come an ideologically inspired proposal to completely rethink the way we understand these conditions—replacing the notion of disorder underpinned by dysfunction with that of neurodiversity.
    .

    So basically Leif Ekblad's theory evidently did and still as such does hold water ~ enough of course to be discussed for further research purposes; what with the adult-onset forms of autism (mentioned in the last paragraph) resulting obviously when the functional ability to socially camouflage and personally mask starts progressively breaking down, or suddenly breaks down.
    .
    In then that you argue for the visible traits of the autism diagnostic spectrum and against the invisible ones ~ despite both trait clusterings being the warp and weft of what autism involves to lesser and greater degrees medically, clinically and socially ~ it would be rather helpful if you consider the characteristic differences between Kanner's and Asperger's Syndrome, as are described via the following link:

    Kanner's infantile autism and Asperger Syndrome
    .

    Also perhaps ~ consider reading at least the first and second chapters of one of the most authoritative diagnostically and developmentally descriptive AS books available ~ i.e., the 'Complete Guide to Asperger's Syndrome' by Professor Tony Attwood, as either costs just under £20 new; however much less second-hand ~ or else is freely readable or gettable as a PDF book via the following link:

    [All quotes in this reply have been removed due to a data deletion request - if you have any questions please contact communitymanager@nas.org.uk ]
  • Oh is THAT what a spiky profile is!!!


  • If by 'this' you mean what M described as being the 'spiky circle thing':



    Then read:


    Autism, Personality, and Human Diversity: Defining Neurodiversity in an Iterative Process Using Aspie Quiz

    https://journals.sagepub.com/doi/full/10.1177/2158244013497722


    And check out perhaps the following website explaining and for taking the Aspie Quiz:


    https://embrace-autism.com/aspie-quiz/


    And there is also a critical appraisal of the Aspie Quiz on the following website article:

    Asperger's Tests: Taking The Aspie Quiz
     


  • The spectrum isn't a straight line from mild to severe = not linear. Usually it is demonstrated with a diagram that I don't know the correct term for but a spiky circle thing. 


  • The same for me and suicide. It would ruin my daughter's life if I died. So I am always trying not to kill myself.

  • Brill, that's the one! I like how she says we have got to learn each others' language. Her hair looked like a freshly windswept cat! 



  • She does! That appearance on the talk show was good. it was an Irish chat show, it's on youtube somewhere. 

  • she has 2 programmes on Netflix 

  • There's a great comedian called Hannah Gadsby. She is diagnosed autistic. Maybe check her out. One of her interviews on a talk show I seem to remember she discusses how she is fine with being on stage because she is in control. This is also true to a certain extent of myself as a tutor. I know my role. Conversations are on my terms and usually functional. 

  • I feel compelled to reply and attempt to explain why your comments are causing so much upset - I read this thread last night and was also upset by it and the assumptions being made.  This is not an attack - this is me attempting to address points you have raised.

    • 'many of the difficulties you are describing are challenges I can easily relate to, maybe even more so.' - yes, lots of people have problems with different things, what differs is that those are often caused by the autism in people who are autistic and are accompanied with a myriad of other 'symptoms' (I don't like that word in this context) that have been present since a child. By stating this - you are trivialising other people's experiences and it reads like you are saying 'yes you struggle with communication, so do lots of people - it doesn't mean we're all autistic' - no it doesn't, but it is a feature along with other symptoms.
    • 'understand how her diagnosis is logically possible’ - and neither should you. You do not know her personally - you know the person she presents on camera. You have no idea what goes on behind the scenes. Many people who are autistic can communicate effectively - this is only one of the 'symptoms' and some people have strengths in some areas, and weaknesses in others.  It does not make them 'more' or 'less' autistic. This is a misunderstanding on your part, and perhaps you need to start seeing this from a wider angle.  For example, once a year I have to present to a room of approx 300 people (yes I am diagnosed - no I did not seek it, I saw a new psychiatrist who immediately said it was blatantly obvious) - in this meeting you wouldn't think I was 'autistic' because I am putting on a show, I can interact, communicate, look at people etc.  But it is absolute hell, and when it's over I tend to be sat on the floor of a hotel room banging my head against the wall because I've kept everything so tightly controlled that I cannot cope anymore, I even tried to kill myself after one of these.  But those people in the meeting do not know that.  I'm not saying this is what happens to others, or Melanie Sykes - but what you see presented for a few minutes, is not necessarily the person.  
      Her diagnosis is possible because she has been assessed by qualified assessors who know what they are doing.
    • 'Melanie Sykes does not require anywhere near the level of support that my son does. She may well require support and I hope she get it, along with anyone with autism, but there needs to be perspective.' I do not believe anyone has every said that there should not be perspective. But why does this mean that she should not talk about it? Does this mean that those of us who struggle silently do not have a right to be heard because we do not need constant support?  I don't leave the house other than for occasional work meetings - I don't go shopping, I don't see anyone - maybe I need support? I have to have someone else with me if people come to the house etc.  Where do I fit in this perspective? Do I not deserve anything because I can speak?  It is all about perspective - but by (I'll use the word again) trivialising people's experiences and needs - you are appearing quite rude. I'm sure you do not mean to - but you are.
    • 'Does someone who has establised a career, a social life, family life really require as much finding as a child who cannot speak, does not respond to his name, self harms and may never live an independent life, may never get married , may never get a job or ever even have friends? Or should we just accept autism is just a quirk of nature, requiring no support or the same support based on subjective self diagnostic criteria?'
      Autism as a quirk of nature - you may want to rethinking this sentence, referring to something as a 'quirk' when it can cause debilitating problems seems entirely inappropriate.
      I can speak, respond to my name, but I self-harm, I need help to live independently, I'll never get married, but I have a job, and 1 friend.  So where do I fit in your 'require as much funding' - you are again suggesting that only people who have those autistic characteristics requires help.  Yes your sun should have help, but so should many, many others who may have problems as severe as him, or less severe, or more severe in other areas, and not in others.  Why are they not deserving of help?
      I think suggesting the diagnostic criteria as being 'subjective' is dangerous territory - people get a diagnosis through a process which is often challenging and lengthy - by professionals who are qualified to do this.  Full stop.  It is not for someone non-specialised in this area to suggest that the diagnosis processes are inappropriate, or subjective.
    • 'But its one thing to say ASD can be subtle/almost an invisible disability, and quite another to have the polar opposite characteristics of ASD, and still say this is autism.' Why? Why can two people who are autistic not be different.  If two people are slightly different, then a third person is slightly different again - and you keep going and you start to get people who are very different from those at the start.  That's like saying, well people who only have stage 1 cancer can't really say they have cancer as it's subtle/invisible disability. 
    • I have said I do not understand MS diagnosis.' - it is not for you to understand or not, because you do not know the person. If someone appeared on tv and said they were bipolar - would you say that you don't understand that when you've only seen them for a few minutes on screen?

    Sorry I've run out of steam. 


  • There is also:


    The Ritvo Autism Asperger Diagnostic Scale-Revised (RAADS-R): A Scale to Assist the Diagnosis of Autism Spectrum Disorder in Adults: An Internation Validation Study

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3134766/


    And:


    The Ritvo Autism Asperger Diagnostic Scale-Revised (RAADS-R)

  • Thanks again. Very much appreciated :-)


  • But it raises my original point; how robust is the diagnostic process?

    Diagnostic tools ~ a guide for all audiences

    https://www.autism.org.uk/advice-and-guidance/topics/diagnosis/diagnostic-tools/all-audiences


    Preliminary tests for assessment referrals

    https://www.autismresearchcentre.com/tests/


  • "For your information as well, an outcome of an autism assessment can be to have autistic traits but to not meet the full criteria sufficiently. My friend's son had this result from their assessment." 

    That's the sort of information I am hoping people will share. I find this helpful and again thank you for sharing useful information. 

    Why do I need to have experience of adult assesment process to ask a question of how in works? I also dont have COVID but I find it useful to know the assessment process of how it is diagnosed. For two reasons, one out of general interest because of how prevalent it is and two, how I would go about getting such an assessment if I was worried I had this condition. 

    There you go again 'extremely unpleasan to speak to". You seem to base this purely on the fact you are offended by me daring to share my genuine doubts over the diagnostic process. I could see your point if I had stated everyting as fact but I put it as a question, I welcomed dialogue and most importantly was open to learn from others. Troll by denfinition means to deliberately antogonise people. It is your opinion that is my intention. It is not, so calling me a troll is an insult because I am not trying to upset people. If I was, you would know all about it! I have deliberately tried to remain measured, appreciative to comments, even when others sresort to name calling etc. 

    In terms of my sons diagnosis, yeah ofcourse, I would not like it if someone casting doubt over his diagnosis. I have already experienced this. And I'll tell you something else for free, before I realised my son had issues, I thought his behaviour was something to do with us as parents. I felt a complete failure. In some ways it was a relief to realise he had a condition that needed extra support. It's been a steep learing process for all of us, and there will always be more to learn. It is for that exact reason I am asking questions about the diagnostic process for adults. MS was the trigger on here for me to respond. I dont get her diagnosis. Its not the same as my son, because he is very very obvious. So, its all about learning by asking probing questions. If you dont understand, do not you ask people? You could argue as someone else did that its not the right place. Ok, maybe. But why am I asking, and what am I looking for? I can honestly say, it is not to antagonise you or anyone else. I dont understand why someone like MS (with seemingly exceptional social/communication skills) is able to get a diagnosis. It raises all sorts of questions in my mind. Some people have been helpful on here by pointing towards resources on "masking". You have just confirmed that "autistic traits" is also an actual thing. And there are other useful replies that have helped me learn more. But at no point have I criticised anyone, called anyone mean names etc. There is no need for that. You do not know me. Anyway, I will leave it at that. Once again, sorry to upset you or anyone else. I wish you all the best , and I mean that genuinely, even if you dont believe me ;-)

Reply
  • "For your information as well, an outcome of an autism assessment can be to have autistic traits but to not meet the full criteria sufficiently. My friend's son had this result from their assessment." 

    That's the sort of information I am hoping people will share. I find this helpful and again thank you for sharing useful information. 

    Why do I need to have experience of adult assesment process to ask a question of how in works? I also dont have COVID but I find it useful to know the assessment process of how it is diagnosed. For two reasons, one out of general interest because of how prevalent it is and two, how I would go about getting such an assessment if I was worried I had this condition. 

    There you go again 'extremely unpleasan to speak to". You seem to base this purely on the fact you are offended by me daring to share my genuine doubts over the diagnostic process. I could see your point if I had stated everyting as fact but I put it as a question, I welcomed dialogue and most importantly was open to learn from others. Troll by denfinition means to deliberately antogonise people. It is your opinion that is my intention. It is not, so calling me a troll is an insult because I am not trying to upset people. If I was, you would know all about it! I have deliberately tried to remain measured, appreciative to comments, even when others sresort to name calling etc. 

    In terms of my sons diagnosis, yeah ofcourse, I would not like it if someone casting doubt over his diagnosis. I have already experienced this. And I'll tell you something else for free, before I realised my son had issues, I thought his behaviour was something to do with us as parents. I felt a complete failure. In some ways it was a relief to realise he had a condition that needed extra support. It's been a steep learing process for all of us, and there will always be more to learn. It is for that exact reason I am asking questions about the diagnostic process for adults. MS was the trigger on here for me to respond. I dont get her diagnosis. Its not the same as my son, because he is very very obvious. So, its all about learning by asking probing questions. If you dont understand, do not you ask people? You could argue as someone else did that its not the right place. Ok, maybe. But why am I asking, and what am I looking for? I can honestly say, it is not to antagonise you or anyone else. I dont understand why someone like MS (with seemingly exceptional social/communication skills) is able to get a diagnosis. It raises all sorts of questions in my mind. Some people have been helpful on here by pointing towards resources on "masking". You have just confirmed that "autistic traits" is also an actual thing. And there are other useful replies that have helped me learn more. But at no point have I criticised anyone, called anyone mean names etc. There is no need for that. You do not know me. Anyway, I will leave it at that. Once again, sorry to upset you or anyone else. I wish you all the best , and I mean that genuinely, even if you dont believe me ;-)

Children
  • I feel compelled to reply and attempt to explain why your comments are causing so much upset - I read this thread last night and was also upset by it and the assumptions being made.  This is not an attack - this is me attempting to address points you have raised.

    • 'many of the difficulties you are describing are challenges I can easily relate to, maybe even more so.' - yes, lots of people have problems with different things, what differs is that those are often caused by the autism in people who are autistic and are accompanied with a myriad of other 'symptoms' (I don't like that word in this context) that have been present since a child. By stating this - you are trivialising other people's experiences and it reads like you are saying 'yes you struggle with communication, so do lots of people - it doesn't mean we're all autistic' - no it doesn't, but it is a feature along with other symptoms.
    • 'understand how her diagnosis is logically possible’ - and neither should you. You do not know her personally - you know the person she presents on camera. You have no idea what goes on behind the scenes. Many people who are autistic can communicate effectively - this is only one of the 'symptoms' and some people have strengths in some areas, and weaknesses in others.  It does not make them 'more' or 'less' autistic. This is a misunderstanding on your part, and perhaps you need to start seeing this from a wider angle.  For example, once a year I have to present to a room of approx 300 people (yes I am diagnosed - no I did not seek it, I saw a new psychiatrist who immediately said it was blatantly obvious) - in this meeting you wouldn't think I was 'autistic' because I am putting on a show, I can interact, communicate, look at people etc.  But it is absolute hell, and when it's over I tend to be sat on the floor of a hotel room banging my head against the wall because I've kept everything so tightly controlled that I cannot cope anymore, I even tried to kill myself after one of these.  But those people in the meeting do not know that.  I'm not saying this is what happens to others, or Melanie Sykes - but what you see presented for a few minutes, is not necessarily the person.  
      Her diagnosis is possible because she has been assessed by qualified assessors who know what they are doing.
    • 'Melanie Sykes does not require anywhere near the level of support that my son does. She may well require support and I hope she get it, along with anyone with autism, but there needs to be perspective.' I do not believe anyone has every said that there should not be perspective. But why does this mean that she should not talk about it? Does this mean that those of us who struggle silently do not have a right to be heard because we do not need constant support?  I don't leave the house other than for occasional work meetings - I don't go shopping, I don't see anyone - maybe I need support? I have to have someone else with me if people come to the house etc.  Where do I fit in this perspective? Do I not deserve anything because I can speak?  It is all about perspective - but by (I'll use the word again) trivialising people's experiences and needs - you are appearing quite rude. I'm sure you do not mean to - but you are.
    • 'Does someone who has establised a career, a social life, family life really require as much finding as a child who cannot speak, does not respond to his name, self harms and may never live an independent life, may never get married , may never get a job or ever even have friends? Or should we just accept autism is just a quirk of nature, requiring no support or the same support based on subjective self diagnostic criteria?'
      Autism as a quirk of nature - you may want to rethinking this sentence, referring to something as a 'quirk' when it can cause debilitating problems seems entirely inappropriate.
      I can speak, respond to my name, but I self-harm, I need help to live independently, I'll never get married, but I have a job, and 1 friend.  So where do I fit in your 'require as much funding' - you are again suggesting that only people who have those autistic characteristics requires help.  Yes your sun should have help, but so should many, many others who may have problems as severe as him, or less severe, or more severe in other areas, and not in others.  Why are they not deserving of help?
      I think suggesting the diagnostic criteria as being 'subjective' is dangerous territory - people get a diagnosis through a process which is often challenging and lengthy - by professionals who are qualified to do this.  Full stop.  It is not for someone non-specialised in this area to suggest that the diagnosis processes are inappropriate, or subjective.
    • 'But its one thing to say ASD can be subtle/almost an invisible disability, and quite another to have the polar opposite characteristics of ASD, and still say this is autism.' Why? Why can two people who are autistic not be different.  If two people are slightly different, then a third person is slightly different again - and you keep going and you start to get people who are very different from those at the start.  That's like saying, well people who only have stage 1 cancer can't really say they have cancer as it's subtle/invisible disability. 
    • I have said I do not understand MS diagnosis.' - it is not for you to understand or not, because you do not know the person. If someone appeared on tv and said they were bipolar - would you say that you don't understand that when you've only seen them for a few minutes on screen?

    Sorry I've run out of steam.