The struggling life of an autistic adult on the spectrum

It has been a while since I have been on this site and I thought it was the right time to come on and discuss with other autistic adults and about things. I am 25 years old and live in the Wirral. Recently (last month) my Nanna passed away not from the virus but from other health issues. I miss her so much and her funeral was difficult. I am okay now, but just realising all that is happening with virus etc makes you wonder how short life really is.

I have mentioned on someone’s post that people I use to know in school/college that I remember have moved on with relationships, marriage, kids, houses, jobs etc I understand that I need to get out there to be able to pursue them myself but I am having trouble. I have had now support since my diagnoses in 2017, I live with my parents since I know I won’t be able to cope living on my own. I have no job (been on the six for 4 years+), and I am just getting somewhere with help to start my dream job working with animals. But I feel with this pandemic that I’m not getting anywhere in life.

What I am asking is does anyone have any tips/advice to help me get my life on track? I just want to live a life like everyone else and not be alone, unemployed and unachieved for the rest of my life. I hope I don’t sound too moany or weepy I just need support. Even if it’s just someone to talk to x

  • I think if you're diagnosed (it used to be I've heard it changed fairly recently) as on the 'asperges' bit that's what would be classed today as level 1. 

    Level 1 would be 'mild' though some people with asperges feel the word 'mild' is misleading. 

    Level 2 is 'moderate' so a bit more severe. 

    level 3 is severe. 

    At least that is my basic understanding of it. 

  • I never knew there was levels I never got told if I was a level or not x

  • ASD stands for "Autism Spectrum Disorder". There are three levels to it.

  • No worries

    Good luck with your driving lessons

  • I understand, i don’t expect to be hands on but if i got the chance that would be a treat. My local zoo does do volunteering but unfortunately its in Chester and i live in the Wirral so i would need public transport etc that’s why i am trying to learn to drive and hopefully pass and then i will be able to travel further for better opportunities.

    But thank you for the suggestion :} x

  • I have accepted that i am terrible at maths, i know you said not everyone can be good at maths but with me i can’t do measurements etc unless someone is with me. I have always struggled with maths since i was a little girl.

    I am sure that there is a animal-related job out there for me somewhere, i just got to look and hope for the best x

  • Thank you for giving me some ideas, i will have a look and see what comes up. I am hoping to meet someone tomorrow who has her own business and she has offered me to come with her on her rounds giving me experience and knowledge for animal care. She has even said she will help me with online courses that could help me get the qualifications i need to pursue a career with animals x

  • Zoo wise, I'm not sure if the do this at your local one, but here the zoo takes volunteers. You get assigned a keeper and help them for your shift. From making up the diets to feeding the animals, then mucking out enclosures which can be very physical work.

    Really good experience. I got to a stage that I wanted to be a keeper and asked how I'd go about it. They said a few keepers there used to be volunteers! 

    So you could try that route, volunteer first. You could do 1 shift a week or work as much as you liked where I was. Really rewarding too. Obviously if they did take you on they train you properly but whilst volunteering you learn so much too.

    I worked really hard and was lucky to be popular that way so I got to help on the trickier animals such as the lions enclosures.

    A good zoo isnt hands on so dont expect to be playing with animals. Their wild animals after all.

    Good luck

  • There are a variety of websites where you can register as a pet sitter on a more self-employed basis. It depends on the service users if they think you are suitable or not, qualifications and experience put you ahead of the game, it really depends on supply and demand. Particularly post covid I suspect there will be a lot of people travelling and looking for pet sitters at the same time, so now should be a great time to start.

    I haven't reviewed any of these channels so can't suggest a specific video, but would start by having a look at some of these.

    https://www.youtube.com/results?search_query=being+a+pet+sitter

    Incase they don't mention it, I would also consider liability insurance. This is relatively cheap and easy though.

  • I have thought about that, but wasn’t sure if I needed qualifications to do that type of job x

  • Thank you! I will check this out! Slight smile x

  • If you're looking for a low-pressure start, have you considered pet-sitting services?

  • What I am asking is does anyone have any tips/advice to help me get my life on track? I just want to live a life like everyone else and not be alone, unemployed and unachieved for the rest of my life. I hope I don’t sound too moany or weepy I just need support. Even if it’s just someone to talk to x

    Maybe a mentoring support could help? Person centred and goal oriented mentoring is considered to be the best practice for autism. As you mention  some life goals it might just be the right thing for you now. NDSA currently run the 1 to 1 mentoring programme designed by Damian Milton helping to set and progress towards your life goals. It includes employment but not excursively, so check this out.

    https://ndsa.uk/tool-up/

  • My life fell down like dominoes following graduation. I had two full time jobs, one in 2004 and the other at 2006-07. I couldn't cope with either job. Mentally, spiritually and emotionally; I hadn't grown up at the time.

    Then, once I began taking responsibility for my actions, life improved. The key is acceptance of your abilities and limitations. Not everyone can be good at Maths - I struggled with English at School - but I don't try and compete outside my forte.

    I'm sure there are plenty of animal-related roles for you. In fact, there are those crying out for assistance with their dog or cat. Or possibly learn how to work in a Farm - you will be able to learn husbandry.

    As long as you are above ground, you have a chance.

  • Thank you for your reply. As you mentioned I don’t like being pressured or rushing things. But I just feel like I am missing out on opportunities, since I don’t go out.

    I will however use your idea about writing things down that I would like to do. I am currently revising for my theory as I feel that to do something I love I may need to be able to drive. I am also going to get some support on starting my career with animals from a local women with her own business, so fingers crossed. 

    If you don’t mind me asking, what have you achieved I’m these last few years?

    I guess with this whole virus thing that I am thinking about my life more.

    And thank you, Tangled is one of my favourite Disney films! x

  • Hi Amy,

    My advice is to not rush things and take your life one day at a time. All the things you want can happen for you but you have to go slow and at a pace you're comfortable with. People with Autism don't cope so well under pressure so go slow.

    Maybe write down some of the things you want to do and assess which one would be the simplest to do. Start of small, one goal at a time. If you try to do everything at once you'll crash and burn. If you still struggle then break the goal down into something smaller, so if it's going to the supermarket, break it down and instead of going to the supermarket go to a smaller shop which will be less busy. It really does work and you'll feel proud of yourself for doing it :) 

    Just remember to be gentle with yourself. Take your time, you're only two years older than me and life isn't so short really. I've achieved a lot in the last few years and I surprised myself at how much I did in that time. There's plenty of time, so take it one day at a time. You're not wasting your life, there's plenty of time.

    P.S. I love your picture, Tangled is such a good film.

  • I’m not sure what it means when you say Level 2 ASD as I was just told I have Aspergers/autism.

    Don’t get me wrong, but I love living with my parents they help me so much and I feel comfortable in my safe room. Somewhere that feel familiar.

    Thank god your ok, I really hope this virus goes soon. I am always at home and only go out when I need too, and if I do go out I always have a mask on etc. I just would like to be able to see if I can try and get out more.

    I have had a few relationships in the past and I was always the one ending them because I freak out when 1 week becomes 2 weeks etc. Also I felt the guys I went with didn’t really fit with me after a while. I can admit that I am also scared of getting into a relationship, I would like to have whatever everyone else has but I just can’t get past that feeling.

    I am just scared that I am wasting my life and not achieving anything. The only things I have achieved are my GCSE’s, my Hairdressing level 1 qualification and level 2 & 3 Childcare qualifications x

  • I’m not really sure to be honest. I just would like to help animals in anyway I can, I don’t think I could cope in a Vet (I am dyslexic as well and terrible at maths), I wouldn’t mind working in a zoo but I would need to go to Uni for that (had a terrible experience in an open day for a uni) but I also wouldn’t mind an animal rescue centre or pet shop. I don’t drive yet (revising for theory) but at the moment I am just at square one x

  • Hello Amy, my name is Scott and I was diagnosed with Level 2 ASD last year. Feel free to ask any questions and read my profile.

    I have to say that your life is similar to mine. I also currently live with my parents.

    Just a few weeks ago, I was in intensive care in a local hospital with COVID, luckily I am now on the mend.

    I too often think about starting relationships that could lead to other things. However, due to my condition, I am afraid of getting into that, due to past experiences of others taking cruel advantage of me.

    It took five years from completing my degree, to obtaining a decent job with my local council that is related to my qualification.

    Don't worry, everything will work out eventually.

  • I'm heading off now but I've worked in a few different animal care roles, so I could maybe help a little as their quite varied. I've worked as a vet nurse, in a zoo, in an animal rescue, pet shop - some paid some voluntary. Talk soon