So many questions!

So, I literally have so many questions following receipt of Autism (Very High / High) test results from leading UK Autisum Charity and then listening to 40+ podcasts and 2 AudioBook (inc Unmarking Autism) since last Thursday. I would like to reach out to a kind hearted soul who can help guide me as a highly masked 50+ who hasn't got a clue but wants to be the best role model/father/husband/friend he can be….

  • Yes, I think there is a bit of a blind spot on both sides. The problem with communication isn’t just the neurotypicals fault, they often don’t know that they are communicating with an autistic person so don’t know how to converse slightly differently’

    Yes I agree, we have such different experiences of the world we can find it difficult to relate and adapt to each other.

    I was initially hesitant/unsure about how to disclose my autistic identity because of the responses I could have received due to stigma . For example when I disclosed once before, I was told ‘you wouldn’t think it would you’. This response made me feel quite uncomfortable.

    Now I think I am much more openly autistic and happier and more confident because of it. It is so important that we have autistic people in our community who are safe and confident enough to be openly autistic to help bridge the Double Empathy Problem and help reframe the narrative and reduce stigma around our own experience and culture.

    It would be useful for everyone regardless of neurotype, if people communicated clearly and said what they meant to avoid confusion.

    We autistics are known for our direct and honest communication style , I think it’s great. If people don’t want your opinion, they shouldn’t ask for it. NT perception of honesty is actually sometimes a lie to make people happy.

    You might like or relate to this article:

    https://autisticscienceperson.com/2021/05/17/be-honest-autistic-vs-neurotypical-honesty/

    The comment last week was, “ you don’t seem to have any filters, you often say it as it is.” She tried to explain that people don’t always want total honesty. 

  • Hi and welcome

    Autistic with ADHD are hiding better avoiding detection for years, some traits cancel each other out, some contradict and conflict constantly, thus making others think about us that it isn't possible for us to be autistic.

    I've got autism diagnosis, and I'm self-identified ADHD

    Yesterday I found a video about people like us https://youtu.be/pMx1DnSn-eg

    The best source of intel and advice I have ever found www.youtube.com/.../playlists

  • Thank you all for your kind words of encouragement. It is quite a revelation being told that your highly likely to be Autist/ADHD and Dyslexic at 52. While answering so many questions about why I behave the way I do and have done all my life. The potential diagnosis has come as a shock and while it explains so much coming to terms with my own preconceived ideas about Autism is hard. Not to mention discovering that I have been unconsciously masking and hiding the Autistic me all my life is challenging to say the least. 

  • Yes, I think there is a bit of a blind spot on both sides. The problem with communication isn’t just the neurotypicals fault, they often don’t know that they are communicating with an autistic person so don’t know how to converse slightly differently, but that’s unfortunately if they know anything about autism. Most autistic people don’t want to disclose their autism because of the stigma involved so mask and try to act and to some extent mimic what’s in front of them. We get away with it sometimes, but as most of us know, it doesn’t always go quite right and we see that puzzled look on their faces and that awkward pause.

    I find that talking to my wife is easier now she knows  I’m autistic. The comment last week was, “ you don’t seem to have any filters, you often say it as it is.” She tried to explain that people don’t always want total honesty. 

  • Autistic people aren’t poor communicators, we communicate just fine with other autistic people. It’s just the rest of the world we struggle with.  

    Yes exactly, a great example of the Double Empathy Problem.

  • Hi and welcome, there’s loads of nice people to chat with  here. Autistic people aren’t poor communicators, we communicate just fine with other autistic people. It’s just the rest of the world we struggle with.  I’m 55 and autism only came onto my radar a year ago. It is a bit of a shock when all the pieces start coming together.  I hope you find your answers.

  • Hello, welcome to your autistic community. Ask away!

    I hope you will enjoy chatting with your neurokin on this forum, I certainly do. I have found this forum so beneficial, I hope you will soon feel the same. We are here for you. We can learn so much from sharing our experiences with other autistics, so may learn a lot just by being part of this autistic community.

    Congratulations on your recent discovery! You already seem like you have started to become hyper focused  on our autistic culture and collective experience. However if you want to find out more about your own autistic profile,  you may like the  website and YouTube channel Aucademy. Aucademy is an autistic led education platform, it is great. It will hopefully help you learn more about your autistic identity from other autistics:

    https://youtube.com/channel/UCLsMY1ZY9-8IReQfGX-CvBQ

    https://aucademy.co.uk/

    Particularly this page:

    https://aucademy.co.uk/starting-your-autistic-discovery-journey/

    listening to 40+ podcasts

    What podcasts have you been listening to? I would recommend 1800 Seconds on Autism, it is quite funny and informative.

     I hope this helps.