Hellooooo

Hi there I'm Paige. I was diagnosed really young. I struggled through the whole of school life and now I'm finding life as an adult even harder. My Autism has always been my biggest and hardest struggle but now I've got a lot of mental health problems creeping in, depression, anxiety, schizophrenia, bipolar and PTSD. Now it feels like the professionals don't actually want to help and that they are just having fun giving me new conditions every time I see them. They keep giving me loads of vile medications which don't seem to actually do anything but make me worse because of the side effects. I'm thinking about contacting someone else about my problems but I literally no idea who I can call for help. I call the GP and she can't be bothered now just says to call the mental health team or hospital. My family are great, they give me a lot of help and support which is great but they can't help me with my problems. I talk to Samaritans a lot which is helpful, just being listened to and being able to unload everything on my mind is a big help. But I do feel really alone with all this, no one else seems to struggle this way and it feels like the professionals don't really care. I call my team and the nurses tell me to take a calming pill and literally hang up. Last call to them was less than 30 seconds.

It's like slamming my head into a brick wall.

Sorry to go on there, just frustrated with everything.

When I'm not struggling with the above I like to do pencil drawing and sketching, it's a special interest and talent of mine. I really enjoy it. Especially drawing outside in the fields. I like Lego as well, used to play with it, still do to be honest Slight smile And I also like music.

Paige x

  • Hello Former Member a very warm welcome to the community!

    I hope you have a lovely time here.

    All the very best,

    AngelMod.

  • hello Paige

    I do my own version of ''Medicated to stay regulated'', one that does not involve NHS, no point to add to anxiety asking them for understanding and help

  • I don't know your whole situation, but perhaps there will be a time where you have enough supportive evidence to try a new plan. My advice would be to look into what anti-depressants regulate and if there's other ways of doing this. Evaluating nutrition and it's impact as well. Create a dietary and lifestyle plan (lifestyle would include working out - maybe walking or running a few days per week), and include something holistic which boosts Vitamin D which you'd like to try out for a few weeks-a month. Then ask for help or accountability or even an oversight attempting it. This could take a year or a few months to put together. Sometimes providing a well-thought-through plan to someone who is in a responsible position might help. They'll need to give you a plan to slowly ease off anti-depressants.

    On another note - I've always found a nut + peanut allergy curious! Considering the botanical identification for Drupes, Seeds vs Legumes vs Nuts are different than how they're classified for nutritionalists. I've developed a difficulty digesting legumes as an adult which includes peanuts. But have no problem with everything else we sell as a 'nut'. 

    Anyway, I have found the more clarity I can discover in biology or science, in psychology or philosophy, the better I prepared I am to deal with life and assert personal agency. It's good you have a safe space to be in. If this helps any, brilliant. If anything, the connexion here and on other sites hopefully will help you feel a little less alone :) 

  • Hi MelonCauliflower,

    I am very lucky to have such a supportive family by my side. Be lost without them. If the people supporting me understood asd I think it would be a lot better.

    Thanks lovely xx

  • Hi JuniperFromGallifrey, thanks for taking time out to reply to me.

    The only told food allergy I know of is that I'm allergic to nuts. I'm not sure about any others.

    That's really interesting with your son and you. I'm glad though that together you did make things better and easier for him, and yourself as well. I'm sure it's still very hard at times but at least you worked some things out and looked at it from a different angle in a way. That's really good. It sounds like stopping his original medication stuff helped him a lot. I'm tempted to stop my own medication but if I do the doctors and mental health team ask me to take them again and if I don't they land me with a section 2 under the mental health act. Absolutely crazy. Sounds like though that you and your son are doing really well. I get the severe anxiety every now and then like with relationships but that's still so positive for him. Well done you, your a great parent, he's lucky to have you! Your so understanding and supportive.

    That's brill how you've changed and adapted your home into such a safe and chill environment. I've done that with my bedroom to ease stress but the rest of the house is still mad and triggering for me. You have such a great way of looking at things. You are right as well, trauma is like that. Talking is meant to help but so far it isn't helping me, maybe I'm talking to the wrong people. That's one of the reasons why I came here to talk to others who will understand the struggles. 

    Your so right. Just feeling understood is such a wonderful thing. Xx

  • I'm sorry to hear. Do you have food allergies you know of? 

    Sometimes depression can be from a lack of vitamins, as we get older we might need help staying healthy. My son used to struggle with this & we tried different medications to help get him through school. Finally after Uni he went off them and started a multi + ashwaganda. It was a bit life changing. Also, changing his life situation helped. He's been living with me since and only has had severe anxiety when impacted by relationship problems. I've struggled with it too, but it always seems to be a response from an exterior source due to being hyper-sensory emotionally and physically. In fact, I've had to learn to breathe through the impact as I had been asked if I was bi-polar. 

    I've turned my home space in to one that does not create harsh impact. This has taken years, but there is so much less anxiety in my life than when I had less agency, less control and didn't understand how to be mindful and purposeful with relationships and creating boundaries. It was a lot of work. Trauma is kind of like this. Talking through problems and gaining philosophical insight or even wisdom from mentors has really been freeing. There are certain things that are hard to forgive, but again, it's so much better having found individuals who were able to help. 

    That isolation is probably the worst. Alleviating that through connexion with other autistic individuals makes a great deal of difference. Sometimes a thing is far less traumatic or has little impact when we simply feel understood. x

  • Hi Paige,

    I'm sorry to hear that the system is letting you down but I'm glad that your family is able to offer some support.

    I hope that you find the right professionals. I don't have anyone I can suggest but I'm sure if you keep asking somebody will know someone. 

    I wish you the best with all of the parts of your life that are going OK and bring you joy and I'm sending you strength to deal with the bits that are difficult. 

    WatermelonWhite flower

  • I love Lego :-) music too.. and hello Paige 

  • Well you wouldn't be the first person to be mis-diagnosed but I'm not an expert so I can't really say anything very helpful other than welcome and I hope you can find people to share your experience with here. 

  • Hello. Yes had therapy but it didn't help it made me worse having to go there be in a strange place with a stranger who asked a lot of personal questions I didn't like that. Apparently I had symptoms which is why they diagnosed those. Sometimes my actions are different but I wouldn't say that bad. And as for not being in reality and having delusion I don't think so, I'm fine as I've told them hundreds of time... No one ever listens to me. I try to explain but they don't listen to me.

    Just want them out of my life now. 

    That's why I came here as I think my problems are autism related. Want to be with people who understands.

  • I'm so sorry to hear things are so difficult for you - has anyone offered you talking therapy? You don't say why they've given you these other diagnoses? Are you experiencing manic episodes where you behave recklessly? Are you struggling to distinguish reality and delusion or hallucinating? If you can find the money it's possible to get pretty good private therapy online?