Rule 13: the last nail in NAS's coffin?

Today completes an important step for the National Autistic Society. Today with Rule 13 they complete the abdication of responsibility for supporting autistic adults reaching out for help.

You may remember in 2021 that the National Autistic Society closed its general helpline. There was a thread about it on this forum. As was pointed out at the time from that point onwards this forum became the only port of call at the National Autistic Society for help for people who did not qualify for one of the remaining helplines.

And the remaining helplines pertain to children in school, children leaving school and parents of autistic children. The National Autistic Society has become a defacto children’s charity leaving autistic adults out in the cold.

Now not content with refusing to help autistic adults they now seek to reduce autistic adults ability to help each other. I fully admit that a bunch of amateurs on an autistic support forum is a poor substitute for professional help. However the vast majority of those seeking such help now have nowhere to go professional or otherwise.

Some of you know that I also brought a lawsuit against an organisation for discrimination. I reached out to the citizens advice bureau and got no useful help. I reached out to the EASS and they said that they couldn’t help me because the other party would not engage with them. I wrote to established academics with a background in discrimination law and autism and they said they couldn’t help me.

Yes I rang that autism helpline back when it existed, back when I tried to get some justice and they said we can’t help you. But at least I spoke to someone who admitted that he was supposed to be able to help me. That helping me was what he was there for.

With regard to the law when you bring a case for discrimination most of the time legal aid is not available. This is in part because the majority of discrimination cases go through the small claims track which is intended to operate without lawyers.

Something similar applies to the health service. It’s very easy for autistic people to get sidelined in the health service particularly if they are bad at articulating their needs and concerns. Again I know this from personal experience.

At this point if autistic adults come to this forum or the loved ones of autistic adults come to this forum and say they are having difficulty with the law or discrimination or a medical issue rule 13 interpreted strictly means that we can provide no helpful advice other than pointing to sources of help that in fact do not exist.

For quite some time now I have run a website dedicated to helping autistic people defend their rights and oppose discrimination. I chose not to include a forum on that website because I was aware that policing it could involve a substantial amount of work. However this development has persuaded me to change my mind. So I’m announcing that areyoualien.uk now has a forum for autistic people. The focus of this forum like the website is advocating for autistic rights in government policy and the law and opposing discrimination. You are all very much welcome there.

  • I read about you, I read about me.

    I feel the same way.

    Perhaps we are not alone

    (Thank you)

  • Autistic people need clarification, we hate vagueness.

    I never realised just how true those words are until I read them just now and thought about how black and white my personality is. Anything 'grey' gets moved into either the black or white folder, or discarded as incompatible.

  • To be honest I don't envy the mods. I feel like they are probably stuck between higher ups who would rather NAS be about autistic kids and view this forum as being for parents. The kind of people who won't be thrilled about people like me pointing out that NAS isn't doing much for autistic adults on NASs own forum. And on the other hand they mods have to deal with us, a lot of unruly, mostly high functioning, autistic people who blame them for the edicts NAS hands down.

    Their position is a little bit like black adder trying to convince the generals that walking slowly towards the machine guns is not a good idea. https://youtu.be/y9o_nu6WWEg?t=89

    In short I think NAS top brass would be quite happy if autistic adults just stoped posting here.

  • I don't know why they didn't reply.
    In these days

    §

    Your post is true:-"Autistic people need clarification, we hate vagueness.

    It seems that not even our own society understands us"

    §

    Yes!

    Idem

  • Tell that to Chez Copeland.

  • The fact that no one from the NAS seems to have replied to this post in the last 7 days to clarify this rule speaks volumes. 

    Autistic people need clarifcation, we hate vagueness.

    It seems like even our own society doesn't understand us 

  • Your answer moved me.

    Thank you

  • Hi : spam function is frustrating.True.Icides that I don't speak English true.It affects that I get the format wrong and it only happens here true.Because they are also incompatible.§I wrote to whoever directed it and kindness in the replies led me to to stay. §But in fact it is something that will repeat itself. The first to blame myself is me, after all I'm not good at writing in English, I'm dysgraphic so I review everything in my language too before posting I do it 10 times. I don't I'm joking with an error corrector.§Here I do it by also correcting the language, because I understand the writing, but I haven't updated in your language and my nation is now very up-to-date with high-level schools.§Keep in mind that the 'Italian was a language that was not used in Italy, first we used Latin, then French! §I'll give you an example: Camillo Benso Conte Di Cavour wrote us letters in French. My father and mother spoke several languages including French and German, Italy if you understand history was a group of potentates all of them German-speaking, with us there were the Austrians

    §

    In my opinion, the mods comply with the regulation, but beyond that they cannot do, because it is based on algorithms that are circular.

    They are based on elements that are circular (Dog chasing its tail).
    A leads to B , they are not algorithms that contemplate different functions and automatically spam.
    Initially I thought someone reported.

    But I don't think so: also because reporting kind posts, and then not being evaluated in the profile, automatically makes them trolls towards me.

    §

    On medical advice in forums is always a problem.

    A contact of mine who had dropped out of school went on to obtain a degree.

    He was sued because as a genius he arrived at unusual conclusions, but he had to make some arguments that the others then denounced.

    He now he says the same things and is a doctor!

    The Forum belonged to him!

    He says the exact same things as before.

    §

    Then, in any case, the line between medical advice and an attempt to help is very thin.


    We'll all fail again anyway.

    §

    And here I don't master the language at all, I know what to do with here and the regulations are crazy here!

    §

    On medical advice in forums is always a problem.

    A contact of mine who had dropped out of school went on to obtain a degree.

    He was sued because as a genius he arrived at unusual conclusions, but he had to make some arguments that the others then denounced.

    He now he says the same things and is a doctor!

    The Forum belonged to him!

    He says the exact same things as before.

    §

    Then, in any case, the line between medical advice and an attempt to help is very thin.


    We'll all fail again anyway.

    §

    And here I don't master the language at all, I know what to do with here and the regulations are crazy here!

    §

    The basis of Ethnicity you mean?

    Because the Italians are many ethnic groups, the Romans themselves have made them the most diverse ethnic groups in the world except the oriental ones.
    §
    Now you would find in Italy a huge percentage of the black skinned population.

    If a person violates racial norms, for example, he commits a criminal offense with us.

    In practice, there is no Italian as they imagine it outside of Italy.
    In my region we are assimilated into Celtic sports...

    I can't tell you if there are more people with African or Northern European ethnicity, for example, one in ten of us is blond.

    The cultural mix is so beautiful!

    :)

    On medical advice in forums is always a problem.

    A contact of mine who had dropped out of school went on to obtain a degree.

    He was sued because as a genius he arrived at unusual conclusions, but he had to make some arguments that the others then denounced.

    He now he says the same things and is a doctor!

    The Forum belonged to him!

    He says the exact same things as before.

    §

    Then, in any case, the line between medical advice and an attempt to help is very thin.


    We'll all fail again anyway.

    §

    And here I don't master the language at all, I know what to do with here and the regulations are crazy here!

    §

    The basis of Ethnicity you mean?

    Because the Italians are many ethnic groups, the Romans themselves have made them the most diverse ethnic groups in the world except the oriental ones.
    §
    Now you would find in Italy a huge percentage of the black skinned population.

    If a person violates racial norms, for example, he commits a criminal offense with us.

    In practice, there is no Italian as they imagine it outside of Italy.
    In my region we are assimilated into Celtic sports...

    I can't tell you if there are more people with African or Northern European ethnicity, for example, one in ten of us is blond.

    The cultural mix is so beautiful.
    § I wander less: if an autistic person is given too many stringent rules he doesn't know how to behave because in us the deficit is communicative.

    * Paradoxically, writing with rules in a communication that is difficult for us will lead to the impossibility of communication itself





  • Bugger actually making the stuff, that's dangerous!! 

  • Not that you’re advising about not-advising the breaching of the limits of legal-limitation, of course, only a legal advisor can do that!

  • I would like to advise you about the lawful limits in terms of making explosives at home ... I'd like to but apparently I'm not allowed so go ahead make as much Semtex as you'd like.

  • I've come to the inevitable conclusion that the stuff I've read in the bible about Jesus Christ perfectly encapsulates the human experience. 

    It does not guarantee an easy life to go around being as helpful and benevolent as you possibly can, indeed it really pisses the established power off, and can bring one too an unpleasant death.  

    It's still better than not making the effort.

  • If I needed to use my head to breach a brick wall, I'd use it to make and lay a breaching charge out of common household ingredients like my dad taught me as a child (but updated using knowledge that is freely available on the normal internet...)

  • Yes. As hard as it was I can tell you bringing and running a law suit is far easier than trying to get people enthused about defending their own rights.

  • I didn't forget it, I discounted it was harder work than destroying the wall, and I was after pointing out the easy option.

    Us Autists often "make our own wind" as a flying instructor once put it so succinctly. In my case I was trying so hard to control events, (Keep the bloody aeroplane flying down the invisible 3 degree slope that arrives at the numbers on the start of the runway in use) that the aeroplane was being affected more by my efforts to control it than by the actual mild crosswind that I was trying to compensate for. 

    I note in Peter some of the frustration at life that I feel and the Urge to do something about it (I must go and join his website!) but as I've noted many times in the past just having a good idea, and even ding most of the work STILL isn't enough to get people to join in..

  • some of the worse feelings I even had was the realisation that I had not been followed by those who proscribed me to the situation..

    Strong and loud resonance brother!

  • I'm glad you stayed.  I like your perspectives.  I am sorry that this forum software makes your life harder than it needs to be.  Thank you for persevering with us/for us.

  • Hmm.. ‘ghosts pass through walls’, I’ll have to consider the meaning of that.. but i love the asking ‘what is it made of?’ thing..

    I suppose that is another tool we still have, ‘the query’, perhaps if we take a more Socratic-approach when necessary, we could skirt the liability that way, make a ‘tunnel’ as-it-were.

  • Again I can’t argue with that, there is always a risk to being the first one though the breach, and I don’t have the intention of cheapening the weight of that risk in replying this way.

    I do agree with you, I’ve actually been exploited for my willingness to be a shock-trooper in the past, some of the worse feelings I even had was the realisation that I had not been followed by those who proscribed me to the situation..

    I definitely needed some validation after those occurrences..Confused

  • Sorry, I deleted my post by mistake!
    
    It's not wanted.
    
    I have very sharp pain in my back, and I type very fast, and I skipped the right post!
    
    I apologize to the moderation: it was not my intent