That's why there is a need for what in the civil service we used to call evaluation. We used to talk about it a lot but rarely did it. It's where you go back and look at old policy and see if it actually achieved it aims. As far as I know no one is going doing research into ABA and other behavioural therapy approaches to autism to see if they are damaging. Or at least if that work is being done its very low profile at the moment.

Peter
Actually just realised the time, so pls forgive me if this is the last reply I make for a good long while. (As soon as the Other Half gets home we will turn off our devices, shut the door to the world and get comfy for Xmas Eve + Day and  boxing day.)
Hope you have a good Xmas.

Peter said:

Only the theories that stand up to repeated attempts to prove them wrong are considered valid. I do think psychology as a study could use more of that approach.

In that regard we certainly agree. I suspect the reluctance however is (abeit rightly so) an ethical one, as to test those therories in psychoanalysis would require literal human guinea pigs and that risks a lot of potential harm. Therefore I think the progress is slower as they are forced to await data as it occurs naturally and they must wait until they gain a big enough data pool before they can claim any firm conclusions.

I mean the entire scientific method is based on proving other people wrong. It's like survival of the fittest applied to theories. Only the theories that stand up to repeated attempts to prove them wrong are considered valid. I do think psychology as a study could use more of that approach.

You think it's because most physicists are likely to be autists themselves so give 0 effs about the feels of their peers in the quest  for being correct? (Not a bad thing for a scientist.)  haha XD

(TBH I am of the opinion we need a lot more autist psychologists and psychiatrists.)

I doubt you'd find it. Autism research is a small pool and the people doing it aren't keep to antagonise each other by doing work that invalidates other peoples therapies. You have to look at physicists for that sort of commitment to hypothesis testing. :)

Peter,

It seems I used the wrong terminology in my previous post because it's not positive reinforcement in your tiktok example that I use with my daughter.  I praise her for who she is, not what society expects her to be.  It's a good video but disturbing if that's been done to people in that regard.  I had to suppress who I was to look after my Dad because he was really ill so I can understand how suppressing yourself feels.... I'm not sure if the tiktok video explains the whole picture though?

Sorry but that has hallmarks of a fallacious equivalence for tiktok clout and I don't consider it unreasonable to expect evidence of claims (that could be easily misunderstood and therefore dangerous) like these should really be presented by an actual psychiatrist/psychologist who can explain a studied and documented mechanism of causal effects.
I respect that you think that way, and you are entitled to your beliefs, but it isn't enough for me to change my own point of view without substantial hard evidence.

I think this is one particularly good argument as to why positive reinforcement can be harmful. www.tiktok.com/.../7163363848337034539

I agree with you.

I am intrigued to work out whether it's a case of misunderstanding and communication differences because of reading messages the wrong way or whether it's people looking to bully/undermine others.....

I really appreciate your kind words. :-)

We need to change it ourselves, back to how it was.

Also, it would be a shame if you left because of 1 or 2 others.

I have done that before, and regretted it.

Your input is invaluable.

Debbie,

I hope it will change too as I appreciate all the support everyone has been giving me.  This forum has been a lifeline for me at times and I don't want to leave because of a misunderstanding..... :-/

🐝 Bees 🐝 (they/them) Autism resources in bio #stoptheshock #NothingAboutUsWithoutUs said:

(As an aside fallout seems to be happening a lot in general among other forum members too in the last few days, which is a shame because you'd think we would all be inclined naturally to ally with eachother for some greater community benefit. This forum has been breaking my heart recently.)

I agree.

This forum is still vastly better though than the photography ones I was on where aggression seemed to be the norm.

Don't be put off. 

I value your input.

I find it hard too and have to tie my fingers together to stop myself replying sometimes (difficult to do).

Everything changes and it will get back to its old self.

Sam likes to draw,

I try to be the best person/Mamma I can be wth who I am and my upbringing.  I will make mistakes and I will fail but my determination to be better and try to move forward with love is what makes a difference I think.  I do think society has vastly improved in acceptance for all compared to when I was a child but there'll always be room for improvement just as there will always be folks who are ruled with hatred.

I wish I could heal it all but all I can do is accept reality and try to be as kind and caring as I can be.  

I'm so glad you have a good relationship with your daughter. : )
I live in hope of proper autism acceptance in society one day, even if that does seem quite a ways off, and then stimming will be treated as the non-issue it should but until then I appreciate life is imperfect and sometimes you just have to make it work for you as best you can. And we just have to do what's best for us personally. Life is hard enough after all.

Sam likes to draw,

I'm so sorry you've experienced abuse (me too).  Thank you for your support and understanding.  My daughter and I have a great relationship.  We are so lucky to have each other.  I spoke to her about what she thinks about me as a parent and the comment I received on here.  She said I'm an awesome Mummy (she's nearly 12) and that she prefers that I told her about different ways to stim because the bullying is less as a result which's great.  She's not afraid to stand up for herself which I am so proud of. :-)

Thank you all for posting and using the online community. Could we please remember rule 5: 'Be nice to one another and enjoy chatting with others. We encourage conversation and respectful debate; please be aware that individuals may give opinions which are not shared by other members. Insulting posts or comments making personal jibes will not be tolerated.'

https://community.autism.org.uk/p/rules. 

Liz Mod

Triker,

Thank you so much for your support. 

I have been on a huge researching/learning journey from when my daughter was diagnosed through to realising my ex husband and myself are most definitely Autistic but not diagnosed.  I've found this forum cathartic but sometimes upsetting because of how text can be misconstrued.  I'm glad you understand what my post means and that you can see the kind of parent/person I am from my length of time posting on here.  I hope that everyone here gains insight, understanding and support from here which I have been lucky to find. 

I don't disagree that it should be possible to stop at least most bullies. However, who can stop them? A child who is confused and upset and possibly quite young? (I do not know the age of the child in question.) A parent? I don't know much about how schools work these days, it's a long time since I was in one and only when I was a child myself, but I don't think a parent has any rights to act, all they can do is ask the school authorities to do something, or advise their child on how to deal with the problem, and that might well depend on the child. Do the school authorities deal well with the bullying problem? Some do better than others.

To criticise an individual parent, and quite harshly too because your tone was not gentle, is not really fair. OK so some parents do have no understanding of autism and can try to make their kid behave not autistic, but the person to whom you said this is not in that category, as is clear not just from other posts on this site, but from the post you replied to. 

When I was a kid who was bullied, I did not know how to stop the bullies. I tried ignoring them, I tried fighting them. Every kid knows there is no point reporting them. I could not communicate with them, I am autistic! Although I did not know it then, but the thought of trying to reason with them did not seem plausible. I have to say that it might have worked, at least with some of them, if there had been some way for that to happen. But I was not capable of creating such a way and it was not made by anyone else either.

Maybe a parent could research ways to prevent bullying and ask the school to implement them. But in the meantime, how do they deal with their upset autistic bullied kid? I do not think it wrong to advise the kid that if they find a less visible way to stim then they might be bullied less, but only in front of the bullies. This is not rewarding the bullies. Yes it is not an ideal solution, but really, what is a powerless parent to do? Nor is it removing autonomy from the autistic child, in fact it is giving her an option she may not have thought of, that her innocent stim might be what is attracting the bullying, such that if she hid it then she might not be bullied. I agree that is horrible, but it is not removing her autonomy, it is giving her more options, not fewer. She still has the option to do the stim even knowing she might get bullied for it.

Since you seem to know how bullies should be dealt with, better to just advise the parent what can be done and how to get it implemented in the school, instead of criticising the parent, who is ND like the rest of us and thus has their own struggles.

Daniel said:

Most of the time it takes getting to and solving the root issue of what's happening beneath the surface in the bully's mind.

Which is probably beyond the skillset of a bullied autistic kid. If you managed to do this when you were a kid then that is great, but it is probably beyond most kids. You could try teaching bullied kids how to deal with bullies, or write a book about it or have a youtube channel! I'm sure it would be useful info for many kids, ND or otherwise.

Daniel.

Those don't really prove that positive reinforcement is abusive though, in the 2nd video the word abuse- isn't even mentioned and the singular time it is mentioned in the 1st video is "And one last thing that I just really wanted to point out here is the other thing with autistic students or any vulnerable person is that the abuse rates are much higher in vulnerable people."
Which is not the same as saying "positive reinforcement is abusive", it is a statement separate (mentioning only a correlating fact, not explicitly linking it as a causal one) to the statement about positive reinforcement or rather "strength-based learning" spoken directly before.

So this is quite a jump and very emotive language you are throwng around and as an abuse survivor myself I find it upsetting to think you would do so so lightly. Honestly this so upsetting for me to witness this thread unravel, I can only imagine how you've made the accused feel.

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