Our 3 year old boy is in the final process of officially being diagnosed, and we are probably like many other families , in that we are always online desperately looking for help/ advice that may help our boy, we have come across articles on cannabis oil ( albeit mainly on American sites ) has any one got any views on this? Is it legal here ,does it help, has anyone any experience of it ?
No, it isn't legal here and I would take a very dim view of any parent administering drugs to children. I'd have to question what you hope to achieve by using any type of chemical cosh on a child, legal or otherwise.
My best advice would be to be a proper parent - learn your child and help him. Blatting his brain is, in my view, abuse of the worst kind. Others will think differently.
Adult choices are a vastly different matter and are not relevant to your post.
What a nasty reply to some one that is totally new to ASD I am bewildered by your attitude, as stated it was something that came up online , and I was merely asking a question , I'm not sure I will in future
There are examples of its use in America, but the big problem is whether the efficacy is proven. Children seem to get better, and it might therefore have an effect on anxiety etc that might equally be achieved by other medications.
I suspect the problem in UK would be legal, both in terms of the drug and in terms of administering something unproven to children.
I don't think there is anything wrong with raising it here, despite there being strong views held both for and against recreational drugs, which might make the discussion prickly. We need to explore options in a balanced way, whether or not they are feasible under current UK legislation. We don't know enough about the causes of autism to be forthright one way or the other.
There are a lot more cures and facilitating solutions offered in the States, but they tend to be expensive, and create a class divide. There will be parents in America who cannot afford these costly elixirs, whether or not they work.
But I hope the discussion continues, in spite of this hiatus.
Thank you so much for your unbiased response. Its not nice to be made to feel you are a bad parent or in my case grandparent, or wanting to drug a child so he cannot function, this was not what I meant. It was an article on charlottes web I was reading. I'm sure a lot of people that are new to ASD are always looking desperately for help and advice, it is devastating to know the struggles he faces in life , and it is early days for us yet, but not knowing another child with similar needs you do feel alone. Once again thank you
I think that you are obviously doing this research for empathic reasons, however, you must be very careful in vetting information sources on the internet. After some minor research I have found some significant claims regarding the use of substances and treatment such as cannabis oil and similar claims from other, sometimes vastly different, treatments.
Regarding the use of cannabis specifically; there is indeed a lot of furore regarding the potential for the active components of this and similar drugs to aid in the treatment of a large variety of conditions (including conditions such as autism and Asperger autism all the way to certain types of cancer). Some of this research looks promising and appears to show some fairly surprising mechanisms of action.
However, where this research is occurring, this is not in the form of cannabis oil as supplied by the US vendours. Please be aware that the best treatment mechanism (application method, dosage and dosage form) are not currently known (for example, a high dosage may be detrimental and a low dosage may have no observable effect), as such uncontrolled use (which is what it would be where supplied by these websites) is not advisable.
I suspect that the potential for this drug, as advertised, to essentially ‘cure’ autism is the item which is of most interest. This cannot be verified and if further information is incredibly likely to resort to hearsay if further information on the cure was requested (i.e. testing was not confirmed by clinical trials and is likely to rely on unconfirmable success stories)
In addition to this, autism is a large variety of different symptoms given a single name (generally there are some ‘core’ symptoms which people with this condition are afflicted by, these may be mixed and matched depending on the individual, i.e.; not all autism is alike although there are likely to be similar aspects across multiple people).
Regarding general drug treatments for those with autism; depending on the severity of his autism, your grandson may be prescribed medication to help with his attention at school (e.g. Ritalin) or to prevent violent outbursts (e.g. risperidone). Where this is the case, the use of additional medications is not recommended without the consent of a physician/GP or both.
One thing which may help is a book called ‘reframe your thinking around autism’. It is a relatively simple and short book which discusses potential causes and motivations of your grandson’s actions/feelings, and how you may help him explore and be comfortable with them and his environment. It also contains some relatively safe online references for further reading, and should show you that a diagnosis of autism is not all ‘doom-and-gloom’.
I wish you all the best in your and your grandson’s future, but cannot emphasise enough the requirement for scepticism when vetting information from the internet.
Thank you for your response, it is really interesting what you have written and the way you have explained it . I do know that sadly there is no cure for autism. it really was just a question and Im not going to read any more on the subject. I down loaded a sample of the book you mentioned and it is, like you said easy reading. (I cannot read books that are to complicated) so I have purchased it and I will read it this evening. Its advice like this, from people like you that can make a differance to someone new to ASD,and I really do appreciate you taking the time to to this.
I think it is better to think of autism as a lifelong condition, in the same way as blindness or deafness (leaving aside new technologies restoring sight or hearing). However while the impact can vary a lot through life it is not terminal or progressive.
Pentadactyl has made this point at the end of the last but one paragraph. "A diagnosis of autism is not all doom and gloom". It might be better to read around the subject rather than chasing cures.
Yes communication difficulties and rigid thinking and sensory sensitivities can make life difficult. But it is as much a different way of thinking, and there are some benefits for those less badly affected by the downsides, or who can rise above them. The focus and depth and chromaticism of thinking is massively enhanced, and while people with autism can be socially isolated, they may not find that so great a loss as it would be for you, and can get immense pleasure from the solitary pursuit of knowledge.
Aged 3 is early days and you don't really know to what level he will be affected. So best not to try to predict too much.
Thanks for your reply , I do appreciate all your positive comments and advice and I take on board all that has been said. I am aware autism is a life long condition and I am not chasing a cure. My grandson is a delight to us and we love him dearly he Is our world , but we will have to be patient and see how he progresses , hopefully once he is officially diagnosed we will get more help and advice than we are getting now ,what we didn't realise was how slow the process is , but I now understand a diagnosis cannot be made without seeing all the numerous specialists. I will try and stay positive.
personally, I think the truth of the matter is that it's a gamble my humble advice would be not too spend alot of money on something that isn't properly regulated or proven yet but best of wishes whatever decision you make
Children are often given fairly strong meds from the GP as I was.As an adult I occasionally use legal CBD oil and there are times when it does help. All suppliers and oils are different ... some oils can be energising and others relaxing so requires experimentation. Holland and Barrett do a mild version ... but I would recommend the blue or purple editions from CBD brothers,CBD is not considered psychoactive or a drug so some of the other posters need to get off their high horse and drop their prejudice. CBD is quite subtle, but worthwhile in my opinion if needed ... its effects are not miraculous and of course users will still be autistic ... but just with another coping tool.It is bi-phasic so one must start with a low dose