Newly Diagnosed and confused

Hi I am Mark,

I am 55 years old, I had an ASD assessment in March 2021. At the end of the assessment, I was diagnosed with autism (HFA).

I am currently finding it very difficult to understand my whole situation? I dont really know what is a "normal" feeling / reaction to everything about my diagnosis, especially from trying to get an insight from online sites and research on ASD, for example, im wondering is it true? I feel very confused and lonely?  what is it that I do differently than others? strengths! What strengths? what weakness do people see? over analysing things? very self critical, frustration! No confidence in myself! How do I change?
Are these feelings normal? I just need to understand a way forward for me. I still have not received the diagnosis report, which might give me an insight in a direction to go?
It is so difficult when you have been automatically just doing things your own way to cope for so long!
(without realising that, that is what I have been doing)
I am not an avid reader so the books that have been reccomende are not easy for me to absorb so I dont really read, if that makes sense?
Blogs or "My Stories" I read online dont seem to relate to "ME", or at least that is my perception.? Is this a normal reaction?
I have always felt the odd one out or not fitting in! Even now, I am saying to myself I dont even "fit in" in the ASD community!
Is this a normal reaction?
Apologies for ranting on, but at least I am seeking help or at least understanding for myself, something I would never have done prior to my diagnosis. I am happy I had the assessment and I am ok with the diagnosis, but it has opened so many questions and to be honest I do feel a bit frightened about it! Is this a normal feeling / reaction?
I know I am fine, I know there is help, I know worries pass etc. Its just how I feel at this moment in time. I know in an hour it will have passed. But I also know it will come back?
I just feel confused!
Thank you for listening...
Parents
  • Hi Mark

    I'm a mid-50s aspie too.     Like others have said, there's no 'right' way to feel.

    It's early days yet for you to unpack all of your life's experience and re-frame it with the new information.

    May I ask what triggered your search for a diagnosis?

    You'll be surprised with yourself when you figure our your strengths and weaknesses.

    I always suggest looking back to your childhood and think about the things you used to enjoy - and why.      Things like Lego or models etc.

    What did you enjoy?

  • Hi Plastic,

    I have always felt "different" but never understood it? I know I have always thought differently, but was always told "dont be silly" among other similar comments.. So, I think on reflection, that is why I have always kept my opinions and thoughts etc, buried to myself.. People just didnt understand what I was trying to say or express.

    I so wanted to be evryones friend,(still do) but over time, I got the feeling that people thought I was a bit weird (My perception only) Which in turn, just increased my self thinking. People tell me I am argumentative, but to me I am analysing every detail and try to give a balanced "devil's advocat" point of view? As recently as this Sunday, a friend I was visiting (I did tell them my diagnosis) stated to me that I, have always been an over thinker on things!

    Even later that day I was haveing a (in my opinion) discussion with another person in our company. It was obviously dragging on a bit and I could see the person was getting frustrated, my friend said to him " you wont win this" which I found internally upsetting! as I was not trying to "win" anything, just portray an alternative way to look at the scinario! to me seemed a natural way to balance, but we both still had our opinions.

    I also (always have) got frustrated, to internal meltdown, where I may fly off in a rage then go and ruminate about things for several days. But never express how the situations would make me feel, I alwys think, I have tried to tell people why I acted in the way I did / do, but they just dont get it! or i think they dont and have not listened to me. So when that scinario happens again, for example someting being moved from where I left it, even if I havent used it in a week, when I go to get it, its not there, I get so frustrated! I would then say I have asked for things to be left where they are, I know where it is and can just put my hand on it when I need it!

    I must admit it seems un fair to the other person (mainly my wife) but I can not control it... this frightens me.

    To be honest, I suppose, it spurred me on to research autism in some way, then I asked gp to refer me for an assessment. Hence, where I am today! I just now have rushes of questions and what if's all the time. I dont understand what it really is or "Who I am"?

    My wife has been so supportive and understanding, but unfortunately bares the brunt of my moods! I have spoken with some people to give her some support too.. but she seems more able to understand everything than I am.

    I also catastrophize a lot? Not sure how to deal with that?

    Sorry for the diversion! its just all popped in to my head.. These are just some of the things that made me seek a diagnosis. I seem to have sensory issues with some fabrics, I can hear conversations of people a little distance away from me above a conversation I am actually in? (but not always) smells can be stronger at times for me! But thanks to your video suggestions, I can understand a bit more, but I want to know "How TO" deal with this, or do I "Need to" deal with this? this is part of my confusion, also what people think of me, why / what do I do that is weird to them? Perhaps its just me opening up about this after all these years?

    With regard to things I liked as a child, maybe construction toys not particularly lego, but have played with lego. I used to draw but as in copy from a book, not as in free thinking (which I find difficuly as in drawing)

    always liked cooking (I am a chef) but liked cooking from a very young age.

    Liked fishing and still go fishing, fresh and sea!

  • Be silly! You can be silly here. I can be really silly--characters n voices like comedians. Silly voices help take out the seriousness of life-I think. My mom is where I learned my silliness from. 

  • Thanks, Ohhh I can be silly believe me!!!

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