Daughter's boyfriend told me he was on the spectrum

Hello everyone!

I've joined today because I want to understand and support my daughter and her boyfriend. 

My daughter is training to be a doctor and works in a nightclub at weekends. She met a young man (22) and last month they got a flat together.

He is absolutely lovely. He is polite, kind, a good conversationalist, kind to animals. So I was shocked to learn yesterday that he is on the spectrum.He receives PIP to support his daily living. 

I wouldn't have thought it in a thousand years!

The only things that indicate any unusual behaviours (certainly not social or communication) are that he he dislikes most foods and is reluctant to try anything else - even pizza. He also seems to tolerate pain as he will not take any kind of medication including headache tablets. 'I've never taken drugs' he said to me. I thought he meant cocaine!

Surely if he is received benefits (and he does work full time) there are other issues? My daughter says she doesn't understand autism and I have done some 'training days' as I am a teacher - but I don't know how I can support them or what I should expect/do.

Feel completely lost and out of my depth here. Just looking for some advice or just to talk really.

Parents
  • The only things that indicate any unusual behaviours (certainly not social or communication) are that he he dislikes most foods and is reluctant to try anything else - even pizza

    Why do you think autistic people must behave in an unusual way? 

    I work as a teacher in HE, I am autistic and receive the highest rate of PIP. In my first year of teaching (which was FE initially), I was awarded advanced practitioner status and spent part of my weekly training my colleagues on how to improve their practice. I also became a director of my professional within my first year of working in HE. This was due to being autistic, as:

    • I had the ability to hyperfocus. This meant I knew how to teach as a subject inside out and excelled at it
    • We tend not have any interest in small talk, as such I was able to excel in my profession as I wasn't spending large chunks of my day engaging in tittle-tattle about my colleagues or wasting time talking about the weather
    • Due to being autistic, I am also honest and direct, plus I have a strong sense of justice, so I wasn't afraid to say it as it was and push for institutional change

    Despite this, I do operate in a world that wasn't constructed with my needs in mind and due to society's unthoughtfulness, I do incur extra costs, which PIP pays for.  For example, I used to have to regularly attend directors meetings in London. The noise and lighting I experienced whilst there caused me sensory overload, which made me so tired I was unable to cook that evening and the next day. I was awarded PIP points for this as it affected my ability to make a meal and I relied on ready meals or takeaways during this time. That situation gets me 2 points. You only need 8 points to be awarded the benefit. 

    The main thing you could do to support him is just to treat him like any other human, which he is. Find out about his likes, as well as interests and respect him e.g don't try to encourage to try new foods if he doesn't want to. It's would also help to remember that for a lot of autistic people, especially those who would have been labelled Aspergers, their 'disability' is socially constructed simply because their neurotype is in the minority and they operate in a different way to the predominant neurotype. They can actually do everything but sometimes in a different way to their peers.

  • Thanks for your reply, which is very useful.

    What I meant by 'unusual behaviours' is that I cannot see what makes him different to anyone else, so why does he have the diagnosis. I like your comment about perceived disability being socially constructed. I get that. 

    Thank you also for the explanation about PIP. This clarifies some things.

    He really is lovely and adores my daughter, and she him, and it looks like he will be my son-in-law one day. I just want the best for them both.

    Anyway, thanks again.

Reply
  • Thanks for your reply, which is very useful.

    What I meant by 'unusual behaviours' is that I cannot see what makes him different to anyone else, so why does he have the diagnosis. I like your comment about perceived disability being socially constructed. I get that. 

    Thank you also for the explanation about PIP. This clarifies some things.

    He really is lovely and adores my daughter, and she him, and it looks like he will be my son-in-law one day. I just want the best for them both.

    Anyway, thanks again.

Children
  • Indeed, we vary very much indeed. He could probably pass for NT in a workplace.

  • Thank you, very helpful. I have no idea really about autism except what we have been told on induction days. I have noticed how open he is, things he's told me and my daughter about stuff people don't normally share. I, too, find it refreshing.

  • We aren't different to anyone else. As humans, we all have different likes and dislikes and our own quirks. It's just unfortunate that human nature means society likes to single out minorities and promote us as lessers e.g black history, religious wars etc. 

    In regards to your potential SIL, the main difference you've seen already is his need for honesty e.g telling you about PIP, when really its none of your business and most NT wouldn't have shared this. My MIL finds my honesty refreshing as she normally hangs around with NTs who have been socially programmed to hold things back and behave in a certain way. She likes the fact she can trust what I have to say and she finally has the opportunity to say exactly what she thinks, as I'll value this rather than being offended.

    I sought a diagnosis not because I have 'unusual behaviours' but because of how general society reacts to my neurotype, especially by trying to label as me unusual when I'm just being me (it's hurtful). For example, my lack of willingness to engage in small talk has often made me a social outcast as a teacher as my colleagues dodn't have the ability to think I might have been reacting in that way due to having a different neurotype, instead they perceived me as rude and uninterested, when often all I want is to fit in.

    It comes across as though your original view of autism was very old fashioned but its great to see you being so open. It sounds like you're going to learn a lot from your potential SIL and as your a teacher I'm excited about your potential to make a small change in the education system with your new-found knowledge.