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New here - very certain I am autistic

Kodey
over 4 years ago

Hi, I'm Kodey. I am a 23yr old from South England.

I have signed up here as I am fairly certain I am autistic and I am looking for some support with it. I have done a lot of reading on autism and other things that may present similarly so I am fairly certain that I am autistic. At the moment though, I don't see enough advantages to a diagnosis to weigh out the disadvantages I see with it. 

I have been struggling a lot recently with work due to stress and anxiety. No-one there knows the issues I am facing and so I mask all day. 

Parents
  • over 4 years ago

    Hi Kodey 

    I feel like I’m in a similar situation. Although I’ve made it to 40 now without diagnosis I’ve always been certain that I have ASD. My mum also agrees and says it wasn’t a common thing to do back then unless you presented extremely high functioning issues.  

    I’m lucky that I work in a small group of people that have gotten to know me and my ways and except me.  Though this took until I was 35. I like you always struggled with stress and anxiety at work. I don’t know your work situation but I know I feel much better being myself at work now I’m more open to my team. 

    I have always been afraid to go to GP, I don’t think I really know why. 

    Fraiselongue, what is the adult assessment process like? I know with my son they observed in school and home, spoke to teachers and family. But what if your an adult?

Reply
  • over 4 years ago

    Hi Kodey 

    I feel like I’m in a similar situation. Although I’ve made it to 40 now without diagnosis I’ve always been certain that I have ASD. My mum also agrees and says it wasn’t a common thing to do back then unless you presented extremely high functioning issues.  

    I’m lucky that I work in a small group of people that have gotten to know me and my ways and except me.  Though this took until I was 35. I like you always struggled with stress and anxiety at work. I don’t know your work situation but I know I feel much better being myself at work now I’m more open to my team. 

    I have always been afraid to go to GP, I don’t think I really know why. 

    Fraiselongue, what is the adult assessment process like? I know with my son they observed in school and home, spoke to teachers and family. But what if your an adult?

Children
  • over 4 years ago in reply to Princess

    I had the ADOS and the DISCO. My mum attended but her memory is awful! Also filled in a sensory questionnaire.

  • over 4 years ago in reply to Princess

    they used ADOS 4 on me and others I know ---If u want a true diagnosis, do not look it up. Its human observation as you do tasks nothing to worry about.

  • over 4 years ago in reply to Princess

    Hi Princess, thanks for the reply. I've not tried talking to my parents about it. They have a small understanding of autism from being scout leaders to autistic children but all there experiences have been with very severe autism in boys, as opposed to high functioning autism. I think they will deny that I have ASD because of that.

    I work in tech. It has been pretty busy recently but I am part of a fairly small team who I am starting to get to know better now that I have been there for almost a year. I still struggle a lot talking to a few of them though. I am fairly certain one of the others on the team is autistic too but he doesn't really mask it much like I do.