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Support for adults

susie163

Looking for some advice - does anyone know how to apply for Adult Autism support from a local authority (UK) and what sort of support can a local authority provide?

Also, has anyone who's asked for and received support from a local authority found it helpful?

My local authority - Powys - unfortunately does not currently provide any adult specific autism support. 

  • Hi susie163,

    Thanks for sharing your experience. I would just like to remind users that posting about specific services/naming them does not conform with our community rules http://community.autism.org.uk/rules Hope this helps Smile

  • Thank you all for your replies.

    Apologies but I didn't word my post too well - I was referred by doctor for assessment of and support for diagnosed autism but unfortunately [removed by mod] LA still considers Autism to be a Mental Illness/disorder....

    [Removed by mod] County Council did run a 'pilot mapping and gapping' scheme under the guise of providing a "[Removed by mod] ASD Outreach/Support Worker" but in reality the 'role of the ASD Outreach/Support Worker' was to try to prove that Autism is a Mental Illness/Disorder as is what ultimately has happened to me and my family.

    I can relate to the unrequited hope classic codger! Many thanks for your link. It's great and reassuring to be able to communicate with people in similar situations.

    NAS '40 plus advice' have not been able to help other than to put me in touch with solicitors - who advised that I go through LA complaints process first. 

    Approx. one year into complaints process now and nearly two years since referral for assessment of already acknowledged and agreed needs.

    [Removed by mod] County Council continues to deny its actions/non actions - even the actions it's provided me written records of and astoundly even denied non actions previously confirmed in writing.

    This is my own opinion but so long as the 'D' remains in 'ASD' we are unlikely to recieve appropriate support.

    xxx

  • Contact the Welfare rights on the National Autistic society to claim anything in the UK it has to be done via the DWP (Department for work and Pensions). 

    Or type in your Region/Post code on the find services near you box on the national Autistic society website. That should give you services local to you who can help. 

  • Hi Susie 163, I'm wondering what sort of support you feel you need?

    I've found my best support here amongst our own kind - you might be surprised at the breadth of knowledge that people have, sometimes. We often moan about how sparse and sporadic services are for adults. Children (and their poor parents) often seem to be relatively unsupported too.

    Powys is a big county with low poulation, so I'd expect specific services for AS people to be, at best, patchy, even if they exist at all. This is a good question to ask, though, because it isn't easy to find people who even begin to understand the spectrum, let alone know what to do about it. I think that we all know this one, so as I say, being on here is perhaps, at least currently, your best option, and at least you know you're amongst friends!

    If you have something particular that you need help with, Adult Social Services should do that anyway, whether or not they 'get' the condition. I'm pretty sure that my local SS are helping me. You might even find that as you ask for help, you're also teaching them something about AS people. We live in (often unrequited) hope!

    You can't give any location details on here that might identify you unfortunately, but I wonder if you've looked at this?

    www.asd-forum.org.uk/.../index.php

    There might be someone there who has better local knowledge - just a thought.

  • Hi - it's very unfortunate that your LA doesn't have any autism service providers on their approved list.  As you know it is important that whoever supports your son/daughter should be well trained in autism by a reputable provider.  You could contact your Chair of Adult social care (or similar title).  This person will be a councillor.  Check out your council's web page.  It sounds like you'll have a battle on your hands as money is being cut every year from council budgets.  Some provision can be joint between health + social care, depending upon the person's health needs.  All that would have to be assessed by social care + health.  Have you a social worker?  You could contact your MP.  There may be further info via the home pg.  You could try the nas helpline?