Husband Recently Diagnosed

My husband has recently been diagnosed with ASD.

I'm looking for some help & guidance on how to look for triggers, how to respond to his behaviour.

I feel asthough I am always on egg shells as I'm unsure of the right thing to say or do, or how to say or do it.

My husband has masked pretty much for all of our relationship (12 years). It's become more apparent since having children and covid. This is what urged us to get a diagnosis.

From this my husband has become more open about his autism and un-masking. Which is great he feels he's in a safe space to do so, however I feel that I have not been giving any tools/advice/info on how to deal or help with certain situations.

For example he may say something offensive that would upset my daughter, who is 7. I try to explain that what he has said has upset her and for him to apologise to her for upsetting her. He gets defensive and will say it's not his fault she's upset.

If he is overwhelmed after work or in certain situations. I will ask that he takes himself away from the situation to try and sort himself out but again he won't do this and gets more worked up. 

I feel abit stuck on the best way to help or what to do. 

It's new for us both me especially and I'm trying to learn.

I'd really appreciate some help please. 

Parents
  • Hi,

    Thanks for your message; getting an additional perspective is always nice. I am happy to give my opinion, though I am unsure how much it will help.

    First off, it seems as though you and your husband have fallen into the diagnosis trap, which catches out the majority (it certainly did me - I wasn't diagnosed until I was 42) where you believe there is a certain finality post-diagnosis. When in reality, it's just the beginning, the learning curve is steep, and resources are minimal.

    Second, from your explanation, I suppose a particular element could be likened to sympathetic pregnancy (apologies if it isn't a great example). Your husband has received a diagnosis (it is pretty cool once you get to grips with it; trust me, it took a long time for me to be converted). You haven't received a diagnosis, which Im aware of. So why are you doing anything at all? Unless you have a time machine or are particularly adept at neurosurgery - your efforts are futile.

    Thirdly, Autism is a neurodevelopmental condition which your husband was born with. There isn't a neurodiverse person on the planet that could mask for twelve weeks, let alone twelve years; honestly, twelve hours would be touch-and-go. My initial thoughts are that it is the diagnosis which has turned your world upside down - not your husband's rapid change in behaviour. You suggested that things were more pronounced during COVID-19; I think most people felt that way.

    A process of elimination would suggest that if this has all started since the diagnosis, the diagnosis is the issue. Don't talk about it. The rest is learning and adaption, for him, not you, not your daughter. But I cannot stress the point enough that it is biologically impossible to become Autistic overnight; you are born with it, or you don't have it, and since I assume that neither you nor your daughter has received a diagnosis, it is not your fight to have. 

    I hope that helps.....

    Additional: you said, "he won't take himself out of the situation." I would suggest that reinforces my point that it is a battle he must wage personally. - You're his wife, not his carer. Again, I assume that you weren't his carer prediagnosis. 

Reply
  • Hi,

    Thanks for your message; getting an additional perspective is always nice. I am happy to give my opinion, though I am unsure how much it will help.

    First off, it seems as though you and your husband have fallen into the diagnosis trap, which catches out the majority (it certainly did me - I wasn't diagnosed until I was 42) where you believe there is a certain finality post-diagnosis. When in reality, it's just the beginning, the learning curve is steep, and resources are minimal.

    Second, from your explanation, I suppose a particular element could be likened to sympathetic pregnancy (apologies if it isn't a great example). Your husband has received a diagnosis (it is pretty cool once you get to grips with it; trust me, it took a long time for me to be converted). You haven't received a diagnosis, which Im aware of. So why are you doing anything at all? Unless you have a time machine or are particularly adept at neurosurgery - your efforts are futile.

    Thirdly, Autism is a neurodevelopmental condition which your husband was born with. There isn't a neurodiverse person on the planet that could mask for twelve weeks, let alone twelve years; honestly, twelve hours would be touch-and-go. My initial thoughts are that it is the diagnosis which has turned your world upside down - not your husband's rapid change in behaviour. You suggested that things were more pronounced during COVID-19; I think most people felt that way.

    A process of elimination would suggest that if this has all started since the diagnosis, the diagnosis is the issue. Don't talk about it. The rest is learning and adaption, for him, not you, not your daughter. But I cannot stress the point enough that it is biologically impossible to become Autistic overnight; you are born with it, or you don't have it, and since I assume that neither you nor your daughter has received a diagnosis, it is not your fight to have. 

    I hope that helps.....

    Additional: you said, "he won't take himself out of the situation." I would suggest that reinforces my point that it is a battle he must wage personally. - You're his wife, not his carer. Again, I assume that you weren't his carer prediagnosis. 

Children
  • Thank you for your advice. 

    As you have pointed out my husband hasn't masked for the whole 12 years. I was aware there was something different (not sure if that's the correct wording - sorry if its not) with him but it has become more obvious since having children and covid. 

    I believe you're right with the diagnosis part. I was hoping it would give closure or would be given some support/guidance. Again as you have said this is minimal especially him being diagnosed as an adult.

    We are learning together and I am trying my best to understand and help him without it over impacting my children also. Our youngest is 4 she does not understand. 

    I take onboard what you are saying that I am his wife not his carer. This is a big learning curve for me and I am finding it difficult to find the right balance of when to step in and support or not. Hence why I have asked for some guidance on here.