Hi all. Does anyone else suffer with this. I'll explain as well as I can.
So a few weeks back I slipped and hit my head on the ground. My head was cut open and hurt so bad it felt like my face had been ripped off. I did have other injuries but all I could feel mainly was my head. I was taken to hospital but they sat me in a and e. I was so uncomfortable all I wanted to do was sleep. The pain got so bad I laid on the floor just to relieve the pressure on my back. I got told off by the staff but I explained it hurt too much to sit. They still got annoyed at me. I couldnt work out why as I was in so much pain why did they act this way!
I was left on a bed in a room, I was just laying there in agony for ages. A doctor glued my head up then said right you can go now. I struggled to put my coat on and he put a leaflet in my shoe. I then had someone saying come on out now we need the bed. I was foggy, confused, in alot of pain.
I made it to the car park, stopping alot of the way and i couldnt walk straight. A week later the wounds infected so I see the gp. I think I'm just there for antibiotics but shes concerned as it turns out I have concussion and she wants me to get checked out st hospital. I dont see the point as I'll just be in pain there then sent home. So I go home. My memory is improving slowly and I'm not almost passing out now.
I know others who go to hospital with tiny things and get proper treatment. They didnt even xray my wrist which was painful, swollen and had a hard lump sticking out. (Still the same).
In the past I broke my finger, as soon as I'd done it i told my mum. She got me to help carry the shopping. Only after a week of me saying it hurts did I find out it was broken.
I've injured my leg badly it eventually needed an operation but the dr said how on earth did you walk on that.
My husband thinks I need to act more, cry, apparently I dont show pain in my face! I find this an odd thing to do. If I say I'm in pain I'm in pain I cant act.
Anyone else have relaying your pain to the dr issues?
It is a good idea to get an ‘I am autistic’ card, for visits to the hospital. Atypical somatosensory processes are known to exist in the autistic community.
It would also be a good idea to talk to your GP about this, and maybe have something about it added to your medical records.
I suspect there are different pathways to getting an “Autistic” card. In my area I had to give proof of diagnosis to the County autism group.
I get this!!!! Very similar experiences of breaking my arm and various other things when I was little and people didn't get it even when I told them I was in pain.
This is also probably because I don't communicate it through my facial expression, which social humans are so reliant on for interpreting and validating verbal communication. Because development of facial expression is reliant on social reciprocation patterns and also influenced a lot by oral praxis (coordination of facial muscles) my development of communicative facial expression has been impacted and is atypical.
I also rarely cry (unless I am having a meltdown, which is not really triggered by physical pain). I heard that crying has very little to do with a physiological response and is an almost entirely social communication. That explains... I think why I rarely cry as I rarely seek comfort from others preferring instead to be alone and doing a regulating activity to help me calm.
Recently I have been experiencing pain in my hip and this time when I went to see a doctor I explained how I process and communicate pain differently and referred to a couple of previous experiences where I had shown no outward presentation of pain only to discover later I had a broken bone. I got sent straight for an xray and my treatment was exceptionally good. Not sure if I just got lucky with the doctor I saw but he really seemed to understand what I was saying. It took a lot of courage to do this as I don't talk that openly about my autism to many people especially not face to face. On this occasion it paid off though.
How are you doing now? I hope you are healing and beginning to feel better.
That's really interesting and so relieved I'm not alone! I've bad experiences of telling people i should be able to trust that I have asd. My wrist still hurts alot. More if I use it. I still have concussion I didnt realise it would take so long to go!
I too dont cry. When I fell i yelled as i couldnt get up alone initially and needed help as I was losing blood from my head.I didnt cry even though it felt like my face was falling off.
I get this - I mask so well for 'normal' situations that I don't have a mode for 'distress' or pain. It's always the same semi-blank face so they assume I'm ok. Apparently, I was supposed to be screaming in pain in A&E when I broke my hand, had 2 broken ribs and my leg was ripped open from my bum to my ankle. (top rung on a ladder broke and I fell 10 feet).
When I'm really in distress, I become mute with a blank face. They assume I'm ok.
I'm sorry to hear about this awful accident, mouse. I hope you get better soon.
Thank you dark shines. I'm getting there
See they can see you had ripped open all of your leg. With me I'd hit my head hard but had just a 4 inch gash on my head that was quite deep. My mother in law astonishes me. She can fake illness to get attention. Shes one of those who likes to claim on accidents'. She gets taken seriously. Yet I'm in actual pain and dont get taken seriously lol the worlds crazy
Head injuries- pain is not a major concern, but rather neurological symptoms like drowsiness, nausea, double vision in coordination etc.
The fact you lay on the floor complaining, may have meant they viewed this as having a large psychosomatic presentation.
As Auties we can be indifferent to pain, noticing it as a symptom without itv causing distress, so difficult for a doctor to assess
*hugs Mouse* I'm so very sorry you have been through this Mouse! That must have been a horrible ordeal for you to go through.
Sending you positive recovery hugs!!
I'm sorry to read that you've been having such a challenging time and I hope that you are okay.We are sending you an email.