Published on 12, July, 2020
Hi all. Does anyone else suffer with this. I'll explain as well as I can.
So a few weeks back I slipped and hit my head on the ground. My head was cut open and hurt so bad it felt like my face had been ripped off. I did have other injuries but all I could feel mainly was my head. I was taken to hospital but they sat me in a and e. I was so uncomfortable all I wanted to do was sleep. The pain got so bad I laid on the floor just to relieve the pressure on my back. I got told off by the staff but I explained it hurt too much to sit. They still got annoyed at me. I couldnt work out why as I was in so much pain why did they act this way!
I was left on a bed in a room, I was just laying there in agony for ages. A doctor glued my head up then said right you can go now. I struggled to put my coat on and he put a leaflet in my shoe. I then had someone saying come on out now we need the bed. I was foggy, confused, in alot of pain.
I made it to the car park, stopping alot of the way and i couldnt walk straight. A week later the wounds infected so I see the gp. I think I'm just there for antibiotics but shes concerned as it turns out I have concussion and she wants me to get checked out st hospital. I dont see the point as I'll just be in pain there then sent home. So I go home. My memory is improving slowly and I'm not almost passing out now.
I know others who go to hospital with tiny things and get proper treatment. They didnt even xray my wrist which was painful, swollen and had a hard lump sticking out. (Still the same).
In the past I broke my finger, as soon as I'd done it i told my mum. She got me to help carry the shopping. Only after a week of me saying it hurts did I find out it was broken.
I've injured my leg badly it eventually needed an operation but the dr said how on earth did you walk on that.
My husband thinks I need to act more, cry, apparently I dont show pain in my face! I find this an odd thing to do. If I say I'm in pain I'm in pain I cant act.
Anyone else have relaying your pain to the dr issues?
Hi there, are you a doctor? I am a self diagnosed woman (ASD, verbal). I have always stuggled with pain. the scale 0-10 just don't apply to me and medication doesn't work the same way as in an neurotypical person.
Could you please tell your collegues that autistic people can't express pain, but that doesn't mean we don't feel it.
Just because i don't cry in front of others, and just because i have this stupid aspie smile doesn't mean i'm ok.
Please if you can, give us voice,
Do you know the drug used when anaesthetised that stops one from dreaming?
So you use to anaesthetise patients? and what type of Doctor was you/?
Yes got loads of degrees and enjoyed the technical computer stuff. Probably not so good at the social though. Never bother with paracetamol or codeine
You was a doctor and anaesthetis?
As a doctor and anaesthetist I never used scales for pain assessments, but instead would rely on physiological features and disability. Does the pain keep you awake for ?how many hours etc., how has the hear rate increased during the operation etc
personally I largely viewed pain as an experience to learn to tolerate and would not use pain killers, but we are all different in how we view pain subjectively. As auties we can overthink this
Yes! They asked 1 to 10 how was my headache by the time I'd reached the hospital. I hate this scale
No they glued my head together and said okay heres a leaflet off you go. Considering I'd hurt my back and hip the dr put the leaflet in my shoe on the floor then left! The nurse came in with new sheets and said we need the bed. He had a patient with him. I'd asked the paramedics if they could just treat it at home but they said no it's too deep
I didnt lay on the floor complaining lol. I laid on the floor as sitting caused huge pressure in my hip and back. The nurses came over I said I'm okay just need to relieve the pressure from my hip and back this I'd the only way. Sitting or standing was pure agony. They moaned at me for laying but I wssent in anyones way just in excruciating pain
You need to wear the autism passport....make them aware!
Talking to doctors is very hard. "On a scale of 1 to 10 how much does it hurt?" Well, I don't know. If 10 is the upper limit then I'm nowhere near being skinned alive while being stabbed repeatedly and impaled on a red hot stake while ants eat my eyes and my feet dissolve in acid. I'm probably only a five or six, despite the issue being my knee dislocating (which is apparently more painful than childbirth).
Of course, the doctor thinks that means I'm suffering the way he does when he has a splinter in his thumb, so he's annoyed at me for wasting his time. I mean, I'm not even writhing around in agony because I know I don't need to and it won't help, I'm suppressing it. Doesn't everyone?
Where you stitched or butterfly tape?
So to ask,but that left a massive image in my head..
Hope the leg is obviously better!...
It didnt bleed much?....maybe youre the terminator my friend.
I was standing on the ladder when the rung broke - my mass meant I went straight down through the rung below too - so my leg went through the ladder and my body fell away from the ladder - the sharp bracket that had held the broken rung dug into my ankle on its way past and kept cutting up my leg until I came to a halt. Cutting skin like that makes the same sound as ripping canvas.
It didn't bleed very much but looked really nasty and deep. I held it all together with lots of plasters.
We had been in a restaurant a few days before and they had red napkins - we told our daughter that they were to prevent lion attacks.
We told her my injuries were because I didn't have a red napkin.
Did you have no xrays or MRI?
With a ripped open ankle to backside gash/cut....your reaction wouldnt matter at all at that point as is not based on symptoms when its so obvious..ie 3ft of gash? ankle to bum is a crazy amount of injury..how did the ladder do that?
Hi mouse2,
I'm sorry to read that you've been having such a challenging time and I hope that you are okay.We are sending you an email.
Kind regards,
Dani Mod
*hugs Mouse* I'm so very sorry you have been through this Mouse! That must have been a horrible ordeal for you to go through.
Sending you positive recovery hugs!!
Head injuries- pain is not a major concern, but rather neurological symptoms like drowsiness, nausea, double vision in coordination etc.
The fact you lay on the floor complaining, may have meant they viewed this as having a large psychosomatic presentation.
As Auties we can be indifferent to pain, noticing it as a symptom without itv causing distress, so difficult for a doctor to assess
See they can see you had ripped open all of your leg. With me I'd hit my head hard but had just a 4 inch gash on my head that was quite deep. My mother in law astonishes me. She can fake illness to get attention. Shes one of those who likes to claim on accidents'. She gets taken seriously. Yet I'm in actual pain and dont get taken seriously lol the worlds crazy
Thank you dark shines. I'm getting there