Autism and periods

Hi! 

I hope it is ok to make this a discussion point. I am pretty new to this forum but I thought this was a pretty important topic! 

I wondered if anyone else with Autism especially struggles with pre period and during their period and what you do to survive it?  

I personally find that during my pre period and period (especially the pre-period is hell) - my sensory overload occurs much more frequently, especially to light (I always struggle with sound but light particularly becomes problematic on period), it triggers me a lot more easily during this time. I also find that being in pain, means I have absolutely no means of focusing on anything other than the fact I am in pain. I also have a lot less capability to handle emotions and I just need to cry over and over during the whole thing. Although these are things I struggle with all the time, I just find that it is even more difficult depending on where I am in my cycle. I feel almost like a werewolf actually, its as if my pre period is me in werewolf mode and I lose a lot of control of my emotions, does anyone relate to that? 

I was curious to hear other people's experiences. I also wanted to know if anyone found anything that helps in relation to Autism and periods? I have tried to be more physically active with exercise which has helped, but I just wondered what others with a similar thing have done to help survive? It seems impossible to manage it, especially as it comes monthly!

Thanks, Al Slight smile

Parents
  • Hi, like Catwoman I'm also post menopausal but I struggled for years with pain too. I was different in my hormonal balance though, as for me it seemed it was oestrogen that was the problem (it also raised my blood pressure) So the answer for me was the depo provera progesterone only injection - which stopped my periods and all the pain and PMS.

    It's often a bit of trial and error to find out what works for you. 

Reply
  • Hi, like Catwoman I'm also post menopausal but I struggled for years with pain too. I was different in my hormonal balance though, as for me it seemed it was oestrogen that was the problem (it also raised my blood pressure) So the answer for me was the depo provera progesterone only injection - which stopped my periods and all the pain and PMS.

    It's often a bit of trial and error to find out what works for you. 

Children
  • Hi Pixiefox, thank you for your reply :) I agree, it is a bit of a trial and error process till you find whats right for yourself, which is difficult whilst finding it but a big relief once you find the thing that works for you. Interesting to hear about depo provera progesterone, I am glad this worked for you. I have been considering whether stopping the period would be the best solution, as I had been on the pill previously and went off because I felt emotionally I was more down, but it was when I was much younger. Thanks again for your words and I hopefully can find a solution soon!