Published on 12, July, 2020
Hello,
My 6 year old daughter is having daily meltdowns from not feeling clean after going to the toilet and will wipe excessively. She will no longer leave the house for fear of needing the toilet elsewhere. She won't wear any clothes, not pants either. We have tried all practical support e.g.wet wipes, shower/bath after, works for a while then stopped and made it worse. The meltdowns are aggressive and losing control, screaming, shouting, kicking and hitting me, banging doors throwing objects and hitting herself,just in complete despair and asking me to kill her as she can't take it any more. Getting support from CAMHS for anxiety but still awaiting reply for referrals from neuro diversity and sensory. She also has food aversion which hospitalised her 2 months ago.
Anyone had similar experience? Does this sound like sensory disorder? Anyone know how to calm/reduce this intense sensation she has on her skin?
Yellow tree 118 said: It does sound like bowel issues though.
I agree. A 'food aversion' sounds alarms of potentially painful digestive disorders.
There is a lot of research happening now on gut health, linking to immune health and the gut-brain axis. Findings show Long Covid changes the gut microbiota to affect the brain in ways similar to Autistic and ADHD'rs. Refined sugar can also cause blockage and gut health issues. But hormone balance plays a role as do amino acids. I take nootropics daily for gut-health and have been taking supplements since young, including a hormone balancing herbal supplement, which many ADHD friends take.
I spent nearly 2 decades barely eating. Food created painful gas/bloating/breathing problems. Eventually I stuck to: fruit, meat only cooked in just butter or with salt, Live yogurt, carrots, daisy family lettuce, potatoes and nuts/seeds, especially almonds. Occasionally oats. These were deemed 'safe'.
At 27 It was suggested gluten was a problem. By 37 I realised through several near-death experiences I couldn't properly digest what used to be animal fodder: No Brassicas (Cruciferous Veg including spinach) nor could I digest most legumes (No beans, alfalfa including the peanut, No cereal grains except maize and oats and rice). If I had an accidental amount, I would juice a whole lemon with water: Ginger helped as well, but a few frightening times...
I have to stay vigilant daily. I take papaya enzymes, cider vinegar infused bitters, chlorella/sea moss, and supplements. But not fully emptying ones movements due to these gut problems is part of the frustration - this is off and on most of my life. Antibiotics will set me back a year's worth of diligence. Luckily, I became more regular with meat based supplements and mushroom blend extracts daily. I do have milk now, but only full fat or live bacteria cheeses and yogurt. But never with meat.
I have to say, I would rather die any other way than from accidentally eating something toxic to my system. Thankfully, the coffee bean is a cherry, not a "bean", the vanilla bean is also a seed, as is chocolate.
NAS94917 said:She will no longer leave the house for fear of needing the toilet elsewhere
To add, another friend of mine who's autistic went through this as a child. She'd have too many movements in a day. One never knows how their digestion will operate. It's a constant surprise. Sometimes a banana is all one can trust to get through the first half of the day.