Gastro Intestinal...just a general discussion as it seems to be not looked into regarding autism

Hi I'm sure I'm not alone in that gastro intestinal issues have plagued my son since birth and he only got diagnosed with autism at 18 and he 24 now,  gastro intestinal issues seem to be a bit of a mystery concerning the connection with autism. We were always recieve sub par service from NHS and doctors  (sorry but it's true) it's like oh you got a tummy bug go away...that's it that's all you get no tests nothing. I've posted this to see what others experience is regarding GI issues are. I'm at the point now and he has asked me to do this so we will do it together..to radically change his diet..we already are healthy ie we don't do the take  out we dont do alchohol as he had a problem with that a while back and so cant have alcohol in the house and cook fresh meals 3 times at least in a week meals with veg in it  and dint eat meat etc but it's not enough he still has nausea and on occasion will vomit straight up wht he just ate. It would be interesting to hear other people's experience , has anyone had any improvement changing diet??

Parents
  • My digestive system runs at about 3 times the speed of a normal person's. I've had issues since birth and it's been stuck on super fast since puberty. This leads to urgency and multiple toilet trips every day. I have no other symptoms. My dad (undiagnosed but without a shadow of a doubt autistic) and sister (not sure) are the same. GP did one blood test and then told me it was IBS and to take immodium every day for the rest of my life, which I did for a while but it started to lose its effect and has awful side effects.

    Changing my diet has helped. The biggest improvement has come from reducing fiber intake. I'm always looking for ways to boost the calorie density of my food so I don't have to eat as much of it. I also feel a lot better since starting testosterone.

Reply
  • My digestive system runs at about 3 times the speed of a normal person's. I've had issues since birth and it's been stuck on super fast since puberty. This leads to urgency and multiple toilet trips every day. I have no other symptoms. My dad (undiagnosed but without a shadow of a doubt autistic) and sister (not sure) are the same. GP did one blood test and then told me it was IBS and to take immodium every day for the rest of my life, which I did for a while but it started to lose its effect and has awful side effects.

    Changing my diet has helped. The biggest improvement has come from reducing fiber intake. I'm always looking for ways to boost the calorie density of my food so I don't have to eat as much of it. I also feel a lot better since starting testosterone.

Children