Frazzled Mum - 4.5 year old girl autism?

I feel totally frazzled by my daughters behaviour, which seems to be getting worse.  I've thought there was something a little different about her from the age of 2, but couldn't quite put my finger on it. Anyone out there with experience in Autism in girls, please could you have a read of my notes below and see if you can relate to any of this behaviour? Not sure where to go with this - hope she grows out of the behaviours, seek help etc. 

Here are her little quirks:

Struggles when things don't go as she expects. Very rigid in her expectations - easily throws a tantrum when things don't go as she has planned. This will happen throughout the day.
Follows rules/processes religiously and will point out if anyone is not following properly.
Can't settle well when staying over in a hotel or any location other than home - not good with change. Struggles to settle in a new environment
Very wriggly - struggles to sit still.  Loves a cuddle but will wriggle constantly.
Very, very literal - hard to joke with her as she takes everything so literally. Have noticed she is becoming more and more literal. 
Hugely logical for her age
Has the best memory ever
Gets very easily frustrated - finds it hard to regulate her emotions.
Has no speech issues - speaks very well.
Very clumsy
Went through a biting stage until age 3. Still likes to put things in her mouth. Finds comfort in chewing things/sucking her comforter.
I'd describe her as very sensory sensitive.
Quite destructive - has ruined many toys by drawing on them, biting/chewing them etc. even though she knows not to. She just can't seem to help herself.
Has been potty trained for ages but regressed and has been weeing in her knickers for about a year now (not a full wee but enough to be wet) doesn't bother her at all. Does it every day but nothing we try works. She doesn't know why she does it.
Will make friends with anyone she meets. Even complete strangers. 
Sensitive to sounds - often questions what various sounds are. Covers her ears when she hears sounds she doesn't like - e.g. radiator clicking, hand dryers, owl sound etc. Hates people shouting, her sister singing, amongst many other things.
Asks questions but when they are answered she often doesn't listen and then asks the question again and again. She then gets very frustrated thinking we haven't answered the question.
Has tantrums very easily, gets upset and frustrated.
Always interrupts conversations and gets very angry when she has to wait for her turn to speak.
Shouts a lot. Yet hates others shouting. 
Sucks her comforter to settle herself
Impossible to reason with her because she is so rigid in her thoughts.
Very sensitive to smells - often talks about smells and tells people they smell or highlights bad smells. 
Huge reluctance to try new things - even when it is things she will very clearly like.
Doing well at school. No concerns there, but they have been working on her understanding of emotions for a while now as she struggles with regulating her emotions.
Seems to potentially mask at school, then explode when she gets home. 
Her memory is incredible, never known anything like it! This causes issues in itself as she doesn't forget anything. She will get fixated on baking a cake for example, and will not forget it and will go on about it constantly and no amount of explaining why we can't do it that second helps deflect the situation. She will then get really angry and not listen or understand what we have said. 
She has also always had this fascination with being a chef. Probably from just under 2. She absolutely loves baking and is really good at it!
Some examples of her way of thinking:
We went to TKMaxx for her to choose her Grandma a Christmas present. She picked up this odd angel ornament and decided that was perfect as her Grandma's name is Angel. She showed my husband and he questioned her choice, he said "But Elsie, it doesn't even have any wings" Her response: "But Daddy, Grandma is an Angel and she doesn't have wings, so it is perfect"
Went into the poundstore as she wanted some bath crayons.
"Mummy, where will they be?"
"I don't know Elsie, we just have to keep are eyes open and look out for them" "But Mummy, I don't know how to do that, I can't stop blinking"
Food wise - she is ok at eating but she changes her mind about what she likes constantly and if I chop her toast in the wrong shape, or give her the wrong coloured plate - all hell breaks loose. I think at nursery they used to ask that she at least tried the food, so now when I say she hasn't eaten enough dinner yet she fixates on the words "But I tried" thinking that means she has had enough. The other day - I said, you must eat 5 more pieces of chicken - she got one piece and broke it into 5! So cheeky, but her logic is incredible.  She saw a You Tube video that said pizza was unhealthy, so now she won't touch it.  I also say to her "Make sure you eat your chicken as it makes you grow" She has decided she doesn't want to grow, so now won't eat chicken. 
Parents
  • I don't think those are limited to just girls tbh. Generally though you could be describing me in my childhood there. The good news is that some of those behaviours is actually a result of anxiety second hand from the ASC itself, and that means they can be improved with healthy and compassionate coping techniques. If I engage my own memory for a moment I can run down the most likely mechanism behind a few key points:

    Struggles when things don't go as she expects. Very rigid in her expectations - easily throws a tantrum when things don't go as she has planned.

    We teach children from day one that they should have a routine then when they take that literally we scold them for being "inflexible". Which flows into the point about hypocrites next.

    Follows rules/processes religiously and will point out if anyone is not following properly.

    She has a good sense of fairness, and expects everyone to be held to the same standard as she is, and especially not be a hypocrite if the person breaking rules has been one to bring them up before. "Do as I say not as I do" is anathema, and causes anxiety.

    Very sensitive to smells - often talks about smells and tells people they smell or highlights bad smells. 

    Again we cannot teach children to adhere to a behavior in this case honesty and then scold them when they are honest. White lies are a social skill that is often learned later in autists if it is at all.

    Doing well at school. No concerns there, but they have been working on her understanding of emotions for a while now as she struggles with regulating her emotions.
    Seems to potentially mask at school, then explode when she gets home. 

    This usually results from background stress at constantly trying to live up to the fluctuating expectations of everyone else and then some how "failing" too regardless.

    She will get fixated on baking a cake for example, and will not forget it and will go on about it constantly and no amount of explaining why we can't do it that second helps deflect the situation. She will then get really angry and not listen or understand what we have said. 

    She has literal thinking, if you don't want to do it now, don't say nebulously "later". She wants that structure to feel secure, so set a date/ a timer/ whatever and then stick to it and do the promised activity. That will help.

    Went into the poundstore as she wanted some bath crayons.
    "Mummy, where will they be?"
    "I don't know Elsie, we just have to keep are eyes open and look out for them" "But Mummy, I don't know how to do that, I can't stop blinking"

    Again, literal thinking, try to avoid nebulous phrasing that can confuse her and, introduce similies and metaphor later on when other language skills develop. She is still just year R and a lot of kids aren't linguistically profient at that age either, autism or not.

    Food wise - she is ok at eating but she changes her mind about what she likes constantly and if I chop her toast in the wrong shape, or give her the wrong coloured plate - all hell breaks loose. I think at nursery they used to ask that she at least tried the food, so now when I say she hasn't eaten enough dinner yet she fixates on the words "But I tried" thinking that means she has had enough. The other day - I said, you must eat 5 more pieces of chicken - she got one piece and broke it into 5! So cheeky, but her logic is incredible.  She saw a You Tube video that said pizza was unhealthy, so now she won't touch it.  I also say to her "Make sure you eat your chicken as it makes you grow" She has decided she doesn't want to grow, so now won't eat chicken. 

    She's still developing preferences which is very natural for any child just she is doing it though an autistic rather than allist lens.
    She's also clever enough to figure out how to bend rules without breaking them, because she neither wants to do a thing nor get in trouble for it. That's top tier problem solving and tbh I think you should encourage it.
    Have you thought of explaining that things said on TV is just junk so she knows to be healthily skeptical about the things she's told? Ie, it's not that eating piza is unhealthy, it's that eating nothing but pizza is unhealthy, etc?

    But really, remember she's just 5, she's not gonna stay like this when she's 25.
    I used to be a lot more rigid until I slowly learned I could do whatever I want (within reason, I've not robbed a bank) and the sky wouldn't fall down for it, and that the social rules of non autists are just silly games to be played to keep the interactions smooth.

Reply
  • I don't think those are limited to just girls tbh. Generally though you could be describing me in my childhood there. The good news is that some of those behaviours is actually a result of anxiety second hand from the ASC itself, and that means they can be improved with healthy and compassionate coping techniques. If I engage my own memory for a moment I can run down the most likely mechanism behind a few key points:

    Struggles when things don't go as she expects. Very rigid in her expectations - easily throws a tantrum when things don't go as she has planned.

    We teach children from day one that they should have a routine then when they take that literally we scold them for being "inflexible". Which flows into the point about hypocrites next.

    Follows rules/processes religiously and will point out if anyone is not following properly.

    She has a good sense of fairness, and expects everyone to be held to the same standard as she is, and especially not be a hypocrite if the person breaking rules has been one to bring them up before. "Do as I say not as I do" is anathema, and causes anxiety.

    Very sensitive to smells - often talks about smells and tells people they smell or highlights bad smells. 

    Again we cannot teach children to adhere to a behavior in this case honesty and then scold them when they are honest. White lies are a social skill that is often learned later in autists if it is at all.

    Doing well at school. No concerns there, but they have been working on her understanding of emotions for a while now as she struggles with regulating her emotions.
    Seems to potentially mask at school, then explode when she gets home. 

    This usually results from background stress at constantly trying to live up to the fluctuating expectations of everyone else and then some how "failing" too regardless.

    She will get fixated on baking a cake for example, and will not forget it and will go on about it constantly and no amount of explaining why we can't do it that second helps deflect the situation. She will then get really angry and not listen or understand what we have said. 

    She has literal thinking, if you don't want to do it now, don't say nebulously "later". She wants that structure to feel secure, so set a date/ a timer/ whatever and then stick to it and do the promised activity. That will help.

    Went into the poundstore as she wanted some bath crayons.
    "Mummy, where will they be?"
    "I don't know Elsie, we just have to keep are eyes open and look out for them" "But Mummy, I don't know how to do that, I can't stop blinking"

    Again, literal thinking, try to avoid nebulous phrasing that can confuse her and, introduce similies and metaphor later on when other language skills develop. She is still just year R and a lot of kids aren't linguistically profient at that age either, autism or not.

    Food wise - she is ok at eating but she changes her mind about what she likes constantly and if I chop her toast in the wrong shape, or give her the wrong coloured plate - all hell breaks loose. I think at nursery they used to ask that she at least tried the food, so now when I say she hasn't eaten enough dinner yet she fixates on the words "But I tried" thinking that means she has had enough. The other day - I said, you must eat 5 more pieces of chicken - she got one piece and broke it into 5! So cheeky, but her logic is incredible.  She saw a You Tube video that said pizza was unhealthy, so now she won't touch it.  I also say to her "Make sure you eat your chicken as it makes you grow" She has decided she doesn't want to grow, so now won't eat chicken. 

    She's still developing preferences which is very natural for any child just she is doing it though an autistic rather than allist lens.
    She's also clever enough to figure out how to bend rules without breaking them, because she neither wants to do a thing nor get in trouble for it. That's top tier problem solving and tbh I think you should encourage it.
    Have you thought of explaining that things said on TV is just junk so she knows to be healthily skeptical about the things she's told? Ie, it's not that eating piza is unhealthy, it's that eating nothing but pizza is unhealthy, etc?

    But really, remember she's just 5, she's not gonna stay like this when she's 25.
    I used to be a lot more rigid until I slowly learned I could do whatever I want (within reason, I've not robbed a bank) and the sky wouldn't fall down for it, and that the social rules of non autists are just silly games to be played to keep the interactions smooth.

Children