Hope Therapy?

I'm being sent on 'Hope Therapy' at the hospice in a few weeks.    It's designed to motivate terminally ill people to look at the bright side of their situation and motivate them off of the sofa.

I'm not sure if I should go.        I have a huge extrovert personality, the engineer in me has already sorted my priorities and bucket list and it putting it all in action.   I've dealt with all the trash of my life and I've sorted all the paperwork of my existence.

The program is very mindfulness / hope diary based - I'm not sure that's at all compatible with me - I can't imagine Mr Data taking part..   It seems aimed at people who are crushed by their diagnosis and situation.    The research all seems from over 30 years ago - mainly in 3rd world countries - not sure how well that transfers to the UK.

Unfortunately, I'm the most positive, motivated, up-beat, energised, go-getting - depressed - person on the planet.

I'm actually concerned that I will damage or break the other people in the group when they are most vulnerable.

Has anyone else heard of this program and has it helped anyone you knew?

Parents
  • I don’t think you should go. I’m not sure I would cope with your diagnosis as well as you, and I still wouldn’t go myself. I just think it’ll be full of people sat round grizzling about who’s to blame and how unfair it all is etc, etc. The last thing you need.

    Stay positive and keep engineering the solutions.

  • Everyone copes with things differently.     My father in law just sat on the sofa for 2 years until the end.    Another friend went out every day with family and friends and off on holidays until he passed.

    I'm just finishing chemo 8 and I'll be starting chemo 9 next week.   Been out to pub lunches a few times and had friends over lots - got another friend coming on Friday for lunch.      While I'm decorating 2 bedrooms and finishing the house.

    Better to burn out than to fade away! (Highlander) Smiley

  • Plastic,

    From 2010 to 2012, I nursed my mother though every stage of her terminal cancer, from diagnosis until the end. I quit work and went to live with her because my father had died a few years prior to her diagnosis.

    I was by her side through all the various treatments, the highs and lows, the pain and the joy, the chemotherapy (what a wonderful place the Christie Centre is in Manchester, without doubt a shining beacon of hope, medicine and world-beating care). A stark contrast to the rest of the NHS's abysmal, incompetent and soul-destroying cancer service. If it were up to me I'd disband the whole tatty, corrupt organisation. I even had to wage war just to get her an oxygen tank at one point.

    We had such fun together for those two years, albeit interspersed with battles against the forces of evil that masquerade as adult social services (and in particular, the satanic cult of home care).

    But that was my promise to her. I would protect her.

    I even crossed swords with the local hospice, which was run at that time by an overpaid, toffee-nosed, seemingly untouchable charlatan who was protected by a handful of incompetent minions. I won that battle and succeeded in having mum transferred to a better hospice with better care.

    I'm also grateful to the McMillan Trust. They were amazing. If only they were given a fraction of the millions and millions of pounds that the NHS sucks out of the tax payer every year...

    But, I'd be afraid if I had to ever rely on the NHS again. It's a *** show; and provide the worst possible care anyone could ever receive for cancer. It might be okay if you have a sore throat, but for anything serious, like a stroke, or cancer, they are utterly clueless. If I had my way, NHS hospitals would all be closed down and turned over to private companies. 

Reply
  • Plastic,

    From 2010 to 2012, I nursed my mother though every stage of her terminal cancer, from diagnosis until the end. I quit work and went to live with her because my father had died a few years prior to her diagnosis.

    I was by her side through all the various treatments, the highs and lows, the pain and the joy, the chemotherapy (what a wonderful place the Christie Centre is in Manchester, without doubt a shining beacon of hope, medicine and world-beating care). A stark contrast to the rest of the NHS's abysmal, incompetent and soul-destroying cancer service. If it were up to me I'd disband the whole tatty, corrupt organisation. I even had to wage war just to get her an oxygen tank at one point.

    We had such fun together for those two years, albeit interspersed with battles against the forces of evil that masquerade as adult social services (and in particular, the satanic cult of home care).

    But that was my promise to her. I would protect her.

    I even crossed swords with the local hospice, which was run at that time by an overpaid, toffee-nosed, seemingly untouchable charlatan who was protected by a handful of incompetent minions. I won that battle and succeeded in having mum transferred to a better hospice with better care.

    I'm also grateful to the McMillan Trust. They were amazing. If only they were given a fraction of the millions and millions of pounds that the NHS sucks out of the tax payer every year...

    But, I'd be afraid if I had to ever rely on the NHS again. It's a *** show; and provide the worst possible care anyone could ever receive for cancer. It might be okay if you have a sore throat, but for anything serious, like a stroke, or cancer, they are utterly clueless. If I had my way, NHS hospitals would all be closed down and turned over to private companies. 

Children
  • It's also the fact that they need a degree to be a nurse - it's turned a caring profession into a pay-motivated conveyor.

  • Most Nursing Graduates are skidaddling to the US and Australia.

    What destroyed the NHS was the sedentary lifestyle of the average Briton, and the increased cost of living; which made Private Healthcare too expensive and allowed the State to take liberties with the NHS.

    The Health System here, in Northern Ireland, isn't great. However, it's still the best run Public Healthcare System by a country mile.

  • I stand by my statement about the NHS. I did not clap once during last year's weekly misplaced and pitiful public display of affection. The only people that do a good job in the NHS are most of the poorly paid auxiliary staff, and an ever-decreasing number of decent nurses.

    The rest of them, far from them being clapped on the streets, should be clapped in irons and flogged in the streets.

  • I'm really sorry to hear of your plight - but it's not uncommon - Beverly Allitt is one of many.     

    The whole covid game means that now patients are fair game - no visitors to protect them from the lazy, incompetent and bone-idle staff.       There are some good ones - but they are few and far between.      You really don't want to be in hospital at night or on weekends.

    I'm lucky-  being 'speshul', my wife is allowed in as my carer - and she's saved my life 3 times since October.      

    I *should* be scared of my chemo, not the staff.

    Additionally, the specialist cancer centre has messed up my chemo meds every time.