what kind of autism research would you do?

I'd be interested in the genetics of autism and following it through family trees. 

Especially when autistic people are less likely to be in relationships so less likely to pass their genes on.

Is it just the high-functioning auties passing on the baton?

The last big announcement of genetic research found there are many different unrelated genes and their interactions and genes that cause mutations that can or cannot result in some genes to cause or not to cause autism and basically they found dozens  more questions and haven't answered any of the one's they asked.. basically it's so complex even scientists aren't sure what to make of their findings . I obviously don't understand a thing

There is a lot of genetical research going on and autistic activists and autistic scientists argue that it is disproportionate and potentially unethical. What would be the practical application of genetic research? What would be the effect on human diversity and general pull of talents and abilities if autism was genetically cleaned out?

Overall I tend to agree that the emphasis on genes can take us into a very unethical direction.  I can feel i might upset people on this subject and so often pull back for precisely that reason. 

But that said, if there had been a genetic test I would have been able to identify my autism much earlier and this would have helped me to access support and also gain more awareness and understanding while i was in the workplace and at an earlier stage  in my parenting.  I might also not now be in the position of seeing my sons flounder in life because they weren't diagnosed either and so likewise didn't receive any support relating to issues arising from autism. 

As it stands decades have gone by and so any benefits associated with early identification have been lost.  Can we make up for lost ground?  I don't know.   

My impression is that they often have a one-size-fits-all approach, so that they struggle when presented with someone who clearly doesn't match their usual "customer profile".

I have the feeling that the support worker goes scurrying off to their supervisor after each meeting with me and they both scratch their heads and then carry on regardless, delivering their usual "product".  It's like a safe path from which they're very relucatnt to deviate unfortunately.    

It's a great way to sit & do nothing while being on the case waiting for someone else - any difficult questions can be blamed on the delay by the other team.

I also get the feeling that he's out of his depth - they seem to like low-functioning 'customers' because they are easy to push around and get medicated into oblivion.   People like me are too much hassle - they'd have to work for their money.

My needs are complex - I appear to be functioning very well because people only talk about my medical problems - and I can clearly expain all the issues because I've had the exact same conversation a thousand times - and that's all they are interested in.

If you talk to me about other subjects, my difficulties are really obvious - but they never do that - even if I tell them  - they go straight back to the medical stuff.

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Ah, as you will have gleaned from my other posts i'm finding it something of a mixed blessing.  I'd rather have a support worker than not but I'm so far not convinced they're geared up to offer very much.  

You have to wait until you've been seen by the memory team before you get more sessions with the support worker?  I keep running into stuff like this and it does feel very much like being fobbed off.  Why can't they work concurrently?     

You're lucky to have a support worker - I ended up reaching crisis point and eventually I was assessed and was assigned a support worker - who basically hasn't bothered.  

My brain injury means he's decided to fob me off onto the memory team that deals with dementia patients - so I probably won't see him a gain for a couple of years when the other team finally get their act together.

It realy does look as though they don't know what to do so they just hide from their responsibilities.

You're lucky to have a support worker - I ended up reaching crisis point and eventually I was assessed and was assigned a support worker - who basically hasn't bothered.  

My brain injury means he's decided to fob me off onto the memory team that deals with dementia patients - so I probably won't see him a gain for a couple of years when the other team finally get their act together.

It realy does look as though they don't know what to do so they just hide from their responsibilities.

My impression is that they often have a one-size-fits-all approach, so that they struggle when presented with someone who clearly doesn't match their usual "customer profile".

I have the feeling that the support worker goes scurrying off to their supervisor after each meeting with me and they both scratch their heads and then carry on regardless, delivering their usual "product".  It's like a safe path from which they're very relucatnt to deviate unfortunately.    

It's a great way to sit & do nothing while being on the case waiting for someone else - any difficult questions can be blamed on the delay by the other team.

I also get the feeling that he's out of his depth - they seem to like low-functioning 'customers' because they are easy to push around and get medicated into oblivion.   People like me are too much hassle - they'd have to work for their money.

My needs are complex - I appear to be functioning very well because people only talk about my medical problems - and I can clearly expain all the issues because I've had the exact same conversation a thousand times - and that's all they are interested in.

If you talk to me about other subjects, my difficulties are really obvious - but they never do that - even if I tell them  - they go straight back to the medical stuff.

.

Ah, as you will have gleaned from my other posts i'm finding it something of a mixed blessing.  I'd rather have a support worker than not but I'm so far not convinced they're geared up to offer very much.  

You have to wait until you've been seen by the memory team before you get more sessions with the support worker?  I keep running into stuff like this and it does feel very much like being fobbed off.  Why can't they work concurrently?