Published on 12, July, 2020
I have been waiting 14 months now for a referral for my now 3 year old boy. It is very clear to us that he is on the spectrum and needs help but we haven't gotten any and it is really getting to me. I just want to help my son but I feel like I am not able to anymore. I really am hoping that we get the call soon because I just think the longer we have to wait the more he and us as a family will suffer for it. Been feeling really down the past couple of weeks and have literally just had a full on meltdown on the way home. I just need help.
Hi NAS72769, I'm sorry to hear that you're going through such a challenging situation. You may like to have a look on the Autism Services Directory: http://www.autism.org.uk/directory under 'Groups', for any organisations in your local area that may be able to support you.
Or you may be interested in contacting a local National Autistic Society branch. Our branches offers support to local autistic people and their families. If you interesting in checking if there is a local branch near to you, please follow the link: https://www.autism.org.uk/what-we-do/local-branches.
Every branch and group is different some are parent support groups, some provide support and information to autistic adults, while others have office premises and run their own a drop-in service.
You may also like to contact our Parent to Parent service, which offers emotional support. This service is confidential and run by trained parent volunteers who are all parents themselves of a child or adult with autism. They will be re-opening from 17th May.
You contact the team on 0808 800 4106. Please leave a message and the team will call you back as soon as possible at a time that suits you, including evenings and weekends. Alternatively you can use contact the team via web form: https://www.autism.org.uk/what-we-do/help-and-support/parent-to-parent
I hope this helps.
Best wishes,
Anna Mod