Published on 12, July, 2020
Hello, I'm a mum with a 11 year old daughter probable Aspergers but not yet diagnosed. We have no doubt she is an the spectrum and have known most of her life but getting GP's etc to listen and take notice has been a long and ongoing battle. Finally now getting somewhere, SENCO help at school, awaiting a paediatric appointment and reading and researching everything I can to help her. I want to join support groups to meet people who will understand exactly what we are going through, to learn more and also feel less alone and isolated as a mum.
Hi Star77, thank you for your reply and support. I have to admit I'm finding things very hard at the moment and I'm glad I've found some supportive websites and forums. It does seem a long process. I went to the GP but it was all dismissed as bad behaviour and she needed discipline!! I did manage to get a paediatric referral though as I insisted I wanted some neurological checks done. My daughter manages to hide everything at school and does well academically and then has meltdowns when she gets home because of all the daily struggles particularly socially. She has no friends, feels lonely and very sad. She has some sensory processing issues, anxiety and many traits of female aspergers. I'm in no doubt it is Aspergers and have known since she was very young. She has seen GP's and even CAMH's but got nowhere. We moved to Somerset and to a fantastic primary school and she is now having sessions with an educational psychologist. At last I have been listened to and feel we are finally getting some help. My dad passed away recently and as a family we have all come to the recent realisation that the many problems that he had all his life was also probable Autism. So everything has hit me all at once. I have some good days but also bad days where it feels so difficult to cope with it all. It's very tiring and emotionally draining. No one really understands unless they are actually going through it with their own child. Secondary school is a worry and I know the years ahead are going to be tough. Just got to keep moving forward and getting all the help we can. Thinking of you and thanks again.