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Mum with an Aspergers girl.

Honeybeez
over 7 years ago

Hello, I'm a mum with a 11 year old daughter probable Aspergers but not yet diagnosed. We have no doubt she is an the spectrum and have known most of her life but getting GP's etc to listen and take notice has been a long and ongoing battle. Finally now getting somewhere, SENCO help at school, awaiting a paediatric appointment and reading and researching everything I can to help her. I want to join support groups to meet people who will understand exactly what we are going through, to learn more and also feel less alone and isolated as a mum. 

Parents
  • over 7 years ago

    Hi honeybee, I can certainly relate to your story. My daughter is 10 and is 'aspergers ' but we too are on the waiting list for diagnosIs. Again, Ive always known my daughter wa different but I was in denial and it was only when I realised how she was actually suffering at school and being labelled as naughty that I had to do something about it. I didn't go to the go at first, my route was the school nurse along with the school who then advised me to go to he go. Weve  Had so many issues on our journey I wouldn't know where to start but you are certainly not alone although it sure does feel like it most of the time! when each day is exhausting and frustrating I have to stop and think how difficult things must be for her too. Getting a diagnosis is going to take a good while I imagine but in the meantime gatheri knowledge and strategies to cope is what I can do. I'm not sure what Armco is but I'm sure it was be the equivalent to alnco additional learning needs which is what we have now. The school also do social stories which is great. One thing that  was annoying was that we waited 10 months for a paediatric appointment and  then it was another three months and a second appointment before we were referred to the asd diagnosis panel so that's another list to wait on. Have you completed questionnaires? We had two lots to do. We have also had an observation in class from a specialist autism teacher. I feel good that some things are happening at least you can get support without a diagnosis but I do worry about moving to high school when school is such a big anxiety anywa. I hope to hear more of your story and hope things keep moving along for you. It can be isolating I completely get that x

Reply
  • over 7 years ago

    Hi honeybee, I can certainly relate to your story. My daughter is 10 and is 'aspergers ' but we too are on the waiting list for diagnosIs. Again, Ive always known my daughter wa different but I was in denial and it was only when I realised how she was actually suffering at school and being labelled as naughty that I had to do something about it. I didn't go to the go at first, my route was the school nurse along with the school who then advised me to go to he go. Weve  Had so many issues on our journey I wouldn't know where to start but you are certainly not alone although it sure does feel like it most of the time! when each day is exhausting and frustrating I have to stop and think how difficult things must be for her too. Getting a diagnosis is going to take a good while I imagine but in the meantime gatheri knowledge and strategies to cope is what I can do. I'm not sure what Armco is but I'm sure it was be the equivalent to alnco additional learning needs which is what we have now. The school also do social stories which is great. One thing that  was annoying was that we waited 10 months for a paediatric appointment and  then it was another three months and a second appointment before we were referred to the asd diagnosis panel so that's another list to wait on. Have you completed questionnaires? We had two lots to do. We have also had an observation in class from a specialist autism teacher. I feel good that some things are happening at least you can get support without a diagnosis but I do worry about moving to high school when school is such a big anxiety anywa. I hope to hear more of your story and hope things keep moving along for you. It can be isolating I completely get that x

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