Hello - Looking For Help Please

Diagnosed ASD in 2019.

Had zero help or support.

No local support groups available.

Struggling desperately with outside/external noise.

Stuck in house.

Having to use earplugs + noise-cancelling headphones at same time, pretty much all the time.

Does anyone else have any advice, please?

Thanks.

Parents
  • WARNING - THIS POST MAY CONTAIN TRIGGER POINTS

    Received letter today from DWP to say application for PIP has been turned down.

    This is despite my lifelong history of Insulin overdose attempts, each one worse than the previous one, whenever I get overwhelmed by noise or life in general.

    Not gonna bother appealing.

    I had been encouraged to apply for PIP by various mental health 'experts' for last few years, but the application for my ESA (been in Support Group for nearly 14 years) was stressful enough (involving 3 appeals in front of a judge + doctor = like a criminal being on trial, over 3 consecutive years). So I didn't bother, until now. 

    Unsure if/when my Mam will be coming back out of hospice/will have to obviously buy more food if/when my Dad gets a care package sorted so he can come out of local 'care home' (been in since 9th January = was only supposed to be in for 4 weeks), so thought the extra money would help if I need to find somewhere else to live.

    Having to run around after the Government departments, literally begging for help, is just too degrading and disheartening, and just makes my mental health even worse, when all the current Government want is for every single person in the country to be working, including disabled and people who've retired early, so they don't have to offer any benefits to people who are less well off than these University-educated MPs (mostly from South-East England) are.

    I was sent an appointment for a face-to-face appointment, 1 hour away via 2 buses, but this was cancelled by them as person I was supposed to be seeing was unavailable (not given any reason why). So I had to have a telephone appointment instead. If I HAD had the face-to-face appointment, it might have been better for me, as they would then see how anxious and stressed I was having to go out in public to somewhere I hadn't been before, by myself.

    So my message to anyone else applying for any benefits is to make sure you get proper advice/help before doing so (I had to get someone from Citizen's Advice to help me fill out application form), and if possible get written evidence/statements from your GP or care worker, about how your condition affects your every day life. Make sure you have as much evidence as you can get (and take a copy of it, plus your application from, before you send it back).

    I would suggest to anyone else feeling desperate, to contact the Samaritans, but the last time I tried to e-mail them, I heard nothing back, so ... maybe find someone else to share problems with, if possible.

    And one final message - anyone who voted for this current Government should be ashamed of themselves.

  • Seeing the gulf between what is promised and what is delivered by government always triggers me briefly.

    Every day proves to me how little we need these parasites, and what a massive waste of time and effort it is working to pay taxes to them.

    Which isn't why I stopped, and dropped off the grid, but sure is why I'm not going to rejoin "the workforce" again!

Reply
  • Seeing the gulf between what is promised and what is delivered by government always triggers me briefly.

    Every day proves to me how little we need these parasites, and what a massive waste of time and effort it is working to pay taxes to them.

    Which isn't why I stopped, and dropped off the grid, but sure is why I'm not going to rejoin "the workforce" again!

Children
No Data