Adult female waiting for Autism assessment

Hi everyone, 

I am waiting for an assessment. The waiting list is about 6-8 months. This is a long time to be in 'limbo'. I am finding that my mind is very preoccupied with thoughts such as: "Am I/am I not autistic? What if I am? What if I'm not"? These thoughts can get very entangled and become all-consuming. Does anyone have any advice about how they coped with perhaps similar thoughts while they were waiting to be assessed? Thank you for reading. 

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  • Hi Dawn and Alec, Thank you for replying to my post. I really appreciate it. 

    It is in some ways comforting to connect with others out there who are perhaps in a similar situation (albeit very different for a whole multitude of reasons)! 

    I have started to write down things that I think might make me believe that I perhaps have Autism or I perhaps don't, as well as writing down any questions I have. This has helped me not get so overloaded with the thoughts, and I also figured it might help me organise my thoughts prior to the assessment so that I can go in and say what I would like to say. I obviously don't know if this is the "right" thing to be doing, but it has eased the mind whirring a little for me. I also found voicing it out-loud to a person I trust helpful. I made sure that I chose someone who I knew would not share their opinion or judgement on what they think. In this instance, I didn't want to know the perspectives of others because I want to be assessed based on my own views and thoughts of myself and how I behave, rather than being influenced by the words of others. Again, this is just what I am doing personally. Others may well find talking to others and getting their thoughts on the matter helpful. I am just talking about my experience at the moment.

    I also got into a cycle of watching lots of YouTube videos about people talking from experience (mainly female adults with Autism who have been diagnosed in adulthood). For me, I realised that I perhaps was doing this too much. I think a little bit for me was helpful because I was able to reflect on myself and learn and educate myself, but I think I got a bit 'hooked' on them, and I don't think it was helping with the overthinking.  

    Alec, I am sorry to hear that the waiting list for assessment is as long as it is in your area! That is so, so tough. Even though there is a wait, if it is something that you feel strongly that you would like to look into, it may be worth considering the referral anyway? I wish I could wave a magic wand for you and make the wait shorter, but sadly I can't. 

    From experience, I have found reducing my hours at work helpful. I was suffering severely from anxiety and depression, and in hindsight I think I was probably burned out for a long time, but just got so used to it that I just thought it was normal. It took loved ones around me to support me to ask for help at work. It takes a lot of courage to speak up at work to say that you are struggling with health, and I wish many employers were better equipped at supporting those with health needs, but it doesn't hurt raising your difficulties with your employer. It wasn't easy for me to reduce my hours - it involved a lot of self-advocating, and I got sad a frustrated at times. But it has reduced the mental and emotional load that I was experiencing, and has also given more time to rest and spend time looking into my health (which takes time and energy). I found that being specific to my employer about what the difficulties for me at work were/the impact working full time was having on my life helpful (e.g. for me - crashing on the sofa from exhaustion in the evening and not going to bed properly; crying every morning on the way to work; not being able to focus at work; not getting tasks done because I had rock-bottom self-esteem to complete them....). Because sometimes saying that you are e.g. having problems sleeping/worrying/anxious does not quite do it justice and people don't really understand how debilitating whatever it is you're going through is. 

    I hope some of this is perhaps helpful. I have by no means at all got it all figured out! I am very much in the midst of a turbulent part of the journey that is life, but I thought I would share some of the things that I have done or found helpful/unhelpful recently.

    Take good care. x

  • Yeah! I'm recognising some of that.  I'm been perpetually exhausted by work for years and wondered how come other people get through effortlessly what takes so much out of me.

    And I've been watching the youtube videos and reading the psychological papers too - hyper focus gone into over drive?  Probably, lol.

    The wait is horrible but we'll get our answers in the end.

  • Sorry to hear what you're going through, Dawn. It sounds tough.

    I think it is a good idea to remind ourselves that it may not be that others are getting through work effortlessly. Often, others have their own difficulties they are going through, but often these are not apparent or spoken about at work. 

    Take care x 

Reply
  • Sorry to hear what you're going through, Dawn. It sounds tough.

    I think it is a good idea to remind ourselves that it may not be that others are getting through work effortlessly. Often, others have their own difficulties they are going through, but often these are not apparent or spoken about at work. 

    Take care x 

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