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Our son is 33 has ASD and non verbal

NAS68922
over 4 years ago

Hi 

just need advice our son Robert is 33 has ASD, Challenging Behaviour and is pre verbal. He has lived in a small residential for 16years he only left home because to be honest his size and his behaviour which became challenging when he suffered from PTS caused by his school. 
We have kept a good relationship with him and before Covid we saw him at least 3 times per week.

We have now not seen Robert for over 5 months,after several emails and involving our local MP Priory Group who run Levitt Mill where he lives are finally agreeing to let us meet him in the grounds.
Has anyone else had this experience, we are worried that the visit will not work but are desperate to see him. The staff who actually work with him are fantastic and have told us that he is getting upset we don’t know what to do, our FaceTime lasts a minute as you can imagine being pre verbal limits it’s use

We have requested a visiting plan, we has not appeared yet, so would be grateful for any adu

  • over 4 years ago in reply to calmerchameleon

    Thank you for your reply we certainly look at the group

  • over 4 years ago in reply to Rach

    Thank you for your reply

     Robert has been using Makaton since he was little,also PEC,s.The issue for the shortness of FaceTime is really Robert ASD. We are just grateful that he sits long enough to interact with us even for a few seconds  But thank you for your support 

  • over 4 years ago

    Hi, I'm sorry to hear you're having trouble visiting your son. Apologies if this isn't an option, but I was wondering if you may have tried some sign language or Makaton with him at all? Vision-based communication may help as a substitute for language and hearing and could possibly help the FaceTime calls to last longer. Wishing you all the best

  • over 4 years ago

    When I read your post, it had me thinking of an advocacy(?) group called John's Campaign.

    It's not to do with autism but the group has been covering similar(?) ground. That is campaigning to allow vulnerable people to be visited by their loved ones.

    Their blog may be useful to read over to see how people are overcoming battles to see their loved ones:
    johnscampaign.org.uk/


    John's Campaign is about people with dementia (I think?). I wish I could find/know of an autism related group but I share this in case there's some crossover which might help you with seeing your son.

    I hope someone will join the discussion and post some additional help/advice.

    Best wishes