Published on 12, July, 2020
Hi,
this is my first post on here. I Had the ADOS and psychiatric assessment this morning and was told that I have ASD/Aspergers, which I have suspected for a while.
part of me is frustrated that I wasn’t diagnosed as a child (I’m 37 now) and that I missed all the early intervention stuff.
part of me is relieved as it explains so much of how my life has been and the difficulties I have had. I guess now I know for definite what the issue is I can try to manage symptoms. I’ve been working through a social skills book the last few months which has helped so much. I really wish that I’d had that book 30 years ago, a step by step guide to social interaction, it would’ve saved me a lot of rejection.
mainly I’m feeling numb and not sure how I should feel.
Anyone else freshly diagnosed or awaiting diagnosis out there?
Hi Kitsun
It is interesting reading how others recently diagnosed are feeling , I was diagnosed a week ago today.
Once it was suggested that I may be autistic it took a while for me to accept it was maybe true but I didn’t want to convince myself one way or another before I knew for sure, maybe that was wrong as I don’t think I have taken the diagnosis very well.
When i went last week to get the outcome I was really nervous and didn’t take anything in and didn’t really feel anything. I’m now a week in and feel a bit nothingish ( I no that’s not a word but I can’t find one that describes what I feel) I have not spoken to anybody and have isolated myself, hopefully this will change.
I hope ur diagnosis has helped and helps moving forward
Hi xiv, you say that you haven't taken your diagnosis very well. How has it affected you? What is it making you think/feel?
I'm sorry to hear that you haven't been able to speak to anyone and have isolated yourself. It is however really positive that you are talking to people on here. I hope you continue to do that. We can all support each other :-)
i am really not sure how it has effected me it’s a bit odd really before I got the diagnosis I thinking I would either be happy as everything finally made sense or I would be angry I was diagnosed as a child and have struggled for so long, but I don’t feel either I wish I could describe how I felt it it is like I don’t feel anything.
I have had the support from 1 family member throughout the process but we have had a slight falling out, I do think it’s my fault as I have a habit of pushing people away. I can only assume it is just they way I am dealing with it. Obviously I’m a tad upset we have fallen out but am confident that it will all be sorted at a later date. I have a Xmas party to attend on Sunday which I really want to avoid but think getting out may help whether I drag myself there or not I don’t no.
you are right this site has been so helpful for me, even if it is just reading about other people’s experiences. Everybody seems so supportive of one another which is great.
How are you feeling about your diagnosis now a few days have passed? Have you any follow up appointments?
xx
Hi, I know what you mean about feeling nothing, my usual emotional state is 'comfortably numb', which I still felt after my diagnosis but today I'm feeling kind of liberated. Just like now that I finally know what the 'problem' is, I can actually do something about it, to manage symptoms. So many things are starting to make sense as well, like why it irritates me so much when my husband has the TV on load while also talking on his mobile on speaker! I hope I get more clarity as time goes on. Are you feeling anything yet?
I'm really sorry to hear that you've had a falling out with the family member who was supporting you. Do you know what the falling out was about? Christmas party is a difficult one, I can understand that it may be anxiety provoking and exhausting but it might also prove to be a distraction. Did you go in the end?
No I haven't had any follow up appointments. How about you?