Hello from a newbie

Hi, I am new to this forum. My 13 yr old son has just been diagnosed with autism and a degree of aspergers. I look forward to getting to know you and being a part of this forum. I have lots of questions but wanted to introduce myself before I ask anything. Thanks for reading. xx

  • Hiya I did read your message last night on my mobile but couldn't reply to it on there. Thanks for the info, I managed to have another chat with him last night and although he put off getting up till the last moment possible, he did get up and went without a fight. He found the entire experience a bore and an intrusion on his time. I however get a lot from the feedback she gave me. She spent 40 mins with him and then called me in to feedback. He has to go again next week which he isn't too happy about but I'm sure he will be fine, (she says with fingers crossed).

  • I think theyre all different, depending on what part of the country youre from, as in different health authorities? When we had ours they basically just did general conversation, his interests, general stuff, school etc.Nothing heavy and nothing to make him feel under pressure. They got him to draw a picture then talk about it too, sometimes they use toys, figures etc. Its more based on play and very casual so he shouldnt worry. You could start a post see if anyone else can shed more light? Sorry can only go from personal experience, but I had to do the same, a run up of warning, and all you can do is re-assure him. I told Will he was just going for a chat to some people that wanted to get to know him as he was so cool haha xx Good luck!!!

  • Hi, my main question for now is what to expect tomorrow in his first speach and language assesment.. I told him a few days ago it was happening and when, and everyday since I remind him what is coming up. Today he is wanting to know what to expect and as I can't tell him he is already saying he won't go. I just want to give him an idea of whats going to happen so he isn't so anxious about going.. I do have other questions but for now this is the one most needing an answer or input.

    xx

  • Hi. A lot of things ringing true there with me. Did you say in your original post you had questions? Im not an expert but we can bounce ideas? xx

  • Hi, not sure how much personal info we are allowed to share on the forum, but I have 4 boys, ages 13, 12, 7, and 6. They also find my son's behaviours hard to cope with and he does not cope at all with them, his oppinion is that he should have been the only one and goes as far as telling me I had no buissiness having more kids. he is very aggressive and life is so difficult at the moment and like yours he withdraws from us and is very difficult to communicate with. I am 38 and married for 16 yrs. xx looking forward to our chats xx

  • It takes so long to get a diagnosis-very frustrating for us as mums who KNOW. With Will, hed just really got used to primary school,and it made behaviour at home easier too. His classmates accepted him and thought of him as "quirky" which suited us fine. But then taken out of that comfort zone and thrown into a whole new world, which is traumatic enough for any 11/12 year old-we have had major setbacks. These kids dont know him, they think hes "weird" because he doesnt act like them or want to join in-as a mum you just want to say "get to know him and you'll make a wonderful friend"-so sad. Hes done so well considering the things he finds most difficult have been thrown at him in handfulls, but at home he's back to being in his bubble-not communicating much, difficult to reach, full of anxiety about different things, rituals. We've taken a giant step back in a lot of ways. Joined this as you do feel alone and none of my friends are in the same position-so really nice to meet you. My names Nicola, Im 40 Frown live in Kent. My other bundle of trouble is Jack (nearly 8) he has trouble understanding his big brother, I know he thinks he doesnt like him much because of how he acts. Will is diagnosed ASD. Tell me more about you and yours XXX

  • Hey good to meet you, I so agree about hitting secondery school my 13yr old just exploded and went into melt down. When he was 18 months old  I asked my health visitor if he was autistic, and at 7 they diagnosed pragmatic communications dissorder. I knew there was more to it than that though and when he hit secondery school I asked for him to be re-assesed and low and behold they have now doagnosed autism.  Looking forward to sharing our experiences together. xx

  • hey Smile Ive just joined. I have 2 boys, William is 12 and diasgnosed ASD 2 years ago but I knew from age 2. Be good to share some experiences/ideas? We were on a good run, but after starting secondary school we've gone backwards-change is never good Frown