Published on 12, July, 2020
Hi all I’m new here and don’t know what to do next. Last year I decided to ask for professional help with my daughters behaviour as I was worried and struggling with her meltdowns. She has major meltdowns over clothes, this has become more of a problem as she started school last September and has to wear a strict uniform. My gp refered us to cahms and the outcome from them has been to refer her to community paediatric as they suspect neurological or autism. So the gp referred her but it has been refused on the grounds of her being ok at school and learning inline with her Peers. My issue now is she seems to be able to contain herself at school but when she gets home she explodes and her meltdowns can last hours, I don’t know what to do anymore as she is getting worse and more angry. It’s so hard to watch and nothing I do or say helps her.
any advice would be much appreciated thank you in Advance
Hi NAS37342,
Welcome to the community! I'm a moderator on the Community, and noticed that no one as yet had replied to your post. I thought the following information may be helpful to you.
Firstly, you may like to read our general information about autism:
http://www.autism.org.uk/about-autism/autism-and-asperger-syndrome-an-introduction/what-is-autism.aspx
If you were interested in finding out if your daughter is on the autism spectrum, they would need to have a formal diagnostic assessment. You may find it useful to have a look at the following link for further information about diagnosis and the benefits of getting one:http://www.autism.org.uk/about/diagnosis/children.aspx
If you are looking for a diagnosis for your daughter, it is very important that you see someone with experience of autism spectrum disorders. Details of diagnostic services can be found on our Autism Services Directory:
http://www.autismdirectory.org.uk/services/autism-services-directory.aspx
You may also want to look at our section that provides advice for parents, relatives and carers of people with autism.
http://www.autism.org.uk/living-with-autism/parents-relatives-and-carers.aspx
It might also be useful to pass on information about autism to health professionals when seeking a diagnosis. The following page includes information for a range of health professionals:
http://www.autism.org.uk/Working-with/Health.aspx
You may like to have a read of the National Autism Plan for Children to see what you are likely to expect and what you can ask during the assessment . Please scroll down to the bottom of the page and go to page 3 on summary report, page 11 for full report for the Essential Components for a complete multi agency assessment:
http://www.autism.org.uk/about/diagnosis/children/national-plan-children.aspx
If you would like to speak to someone about your concerns, you may like to contact our Autism Helpline team, who can provide you with information and advice . You can contact the team via telephone on 0808 800 4104 (Monday to Thursday 10am to 4pm, Friday 9am to 3pm). Please note that the Helpline is experiencing a high volume of calls and it may take a couple of attempts before you get through to speak to an advisor. Alternatively, should you prefer to send a message, you can do so via their webform:
https://www.autism.org.uk/services/helplines/main/questions.aspx
Finally, you may like to contact our Parent to Parent service, which offers emotional support to parents and carers of children or adults with autism. This service is confidential and run by trained parent volunteers who are all parents themselves of a child or adult with autism .
You can contact the team on 0808 800 4106. Please leave a message and the team will call you back as soon as possible at a time that suits you, including evenings and weekends. Alternatively you can contact the team via web form: http://www.autism.org.uk/services/community/family-support/parent-to-parent/enquiry.aspx
Best wishes,
Nellie-Mod