Adult Diagnosis - Embarressed

Hi. I'am a 29 year old male, I think im on the AS somewere but undiagnossed. I got diagnossed with dyslexia at age 24. I feel down about it tbh, I just cant doo other humans or small talk or backstabbing in the workplace. I get incredibly frustrated at work and Im always fearfull I let what I think of people out as in the past I called someone a corrupt c**t and got sacked. I think Im really tolerant but when someone winds me up I just cant bite my tongue. I feel  quite misanthropic in outlook basically.

In my opinion im of average intelligence. I've been completely addicted to listening to music since I was about 12. I literally own thousands of records and when I was younger I seriously couldnt concentrate on anything other than whatever song I was addicted too. At one point I was a apprentice engineer but just couldnt concentrate on anything other than music, I got through my apprenticeship but couldnt stand the working envirmonment. However I cant play an instrument as I cant really keep it co-ordinated.

I feel as though im always the last one to understand a joke. My repsonses to stimuli are really poor (slow). I feel that I cant express myself at all. I cant write emotion messages on cards, participate in drama. I cant have a phonecall in the respect that I cant gauge when to come in.

I have a 2.1 BSc (hons) degree in music tech (engineering side) which in my final year I drove 85miles each way everyday to attend. Which I think represents me, complete commitment if Im into something, but doing it alone. The 85 mile drive was ace as I didnt have to small talk. I can completly amuse myself and hate new social situations

The only person I can look in the eyes of is my partner of 12 years. I hate it when people at work try to get eyecontact.

So after that massively long blurb........................................Does any one behave similar? I feel embarressed about going to see the GP, I dont like the whole why do you want I diagnosis thing. It  would make me feel like an attention seeker. Has anyone been through this kind of thing?

 

  • David,

    As I think I explained before, these are the rules that everyone agrees to follow when they join the community.

    We ask users not to give their full names in order to make it harder them to be identified by people sending junk mail or causing other kinds of nuisance. Of course people who already know you may identify you by your postings on here; that's not a problem.

    We feel it's important that people follow the rules consistently, so that we can treat people fairly.

    I hope this clears things up.

    Best wishes,

    Alex R - mod

  • Do you not want people to know who we are?

    I expect sometimes people can gues who we are by what is expressed.

    I have been away so I forgot that rule.

    David

  • Please remember not to post your full name on the forum.

    Thanks,

    philippab - mod

  • Is perception to do with Autism.?

    Years ago a researcher said that she would not continue research on me as my perception problems have nothing to do with Autism.

    She saw my verbal reasoning was good but my perception bad.

    I should not for Cambridge agreed to do the mind reading emotion tests.

    I cannot even recognise people so I cannot possibly tell emotions.

    Not recognsing people is Prosognosia not Autism or Asperger Syndrome.

    I would like to add that the professional want everyone with difficulties to have a label.

    David

    Edited by philippab - mod to remove personal details.

     

     

  • Went for an ADOS assesment and ended up having a cognitive test as the nurse had to go to an "emergency". Apparently I done alright at it, mainly average range with above average scores on mathmatic and shape elements. I thought I'd have been below average at processing in all fairness because of dylexia problems. 

    Ah well the ball is well and truelly rolling.

  • Firstly what vested interest:?

    The Professionals love labelling everyone with problems.

    I wanted to fit into a category.

    People with difficulties like to have a label.

    Professor Pat Howlin told me I now do as I have Asperger Syndrome.

    How would the patient later discover that he had a false diagnoses?

    It is not an exact science if someone is Autistic especially in border line cases.

    Well you know how to pretend to be Autisitc just keep interupting not understanding what you are told and taking things too literally.

    Most Autistic people do those things naturally.

    David

     GOOD BYE I AM GOING AWAY SO CANNOT SEND ANY MORE MESSAGES UNTIL FRIDAY 2ND NOVEMBER 2012

     

  • David,

    1. In your view what would be motivation or cause for a doctor to want to please the patient by giving a false diagnosis?
    2. What would motivate or cause the patient to want a false diagnosis? Why would they want or to be seen autistic if indeed they are not?
    3. How do you think can a patient have confidence in a particular diagnosis? From what you are saying you seem to have doubts regarding the integrity and abilities of some doctors.
    4. You say 'people might sub consciously act Autistic at a diagnostic interview'. How would they do this? Do you think the act might extend beyond the interview and into other areas of their life?
  • The specialist conducting the assessment gets paid for the session either by the NHS, private insurance or private funding regardless of what diagnosis the patient receives, if any at all.  Giving a false diagnosis is hardly in the best interest of the specialist as it will only serve to undermine his or her reputation, so I see no motivation to do so.

  • Doctors are only human and if one argues with a Doctor telling them that you have Autism they could be convinced in border line cases.

    Sometimes people might sub consciously act Autistic at a diagnostic interview.

    If I wanted to convince a Doctor I was Autistic I could not help behaving iin a certain way.  If I wanted to convince a Doctor that I was not Autistic I would behave in a different way.  At times in my life I was diagnosed I was not thinking about Autism.

    Do not diagnostic interviews take into account impression on the day?

    In my case if I tell them about my childhood that would help them decide I was Autistic.

     

    When in 1990 my parents were told in family therapy that I have Asperger Syndrome my parents and I have not heard of it.

     

    In 2009 I asked about my diagnoses.

    My GP told me that the only thing on my medical records is one comment about mild Autism in 1976 from a consultant Psychiatrist and the recommendation when I was nine in 1966 for an Autistic School he does not have.

    My GP explained although it is not much evedence on my medical records  and nothing about Asperger Syndrome I have an Autistic manner.

    More important I have been in recent E Mail contact with Professor Patricia Howlin an Autism expert who has met me on a one to one basis a long time ago

    She E Mailed me telling me that I certainly have Asperger Syndrome regardless of what happened when I was younger.  I expect if you met me you would not doubt that I have Asperger Syndrome.  She should really have put on my medical records that Pat Howlin confirms and she does not mind me saying that she diagnosed it.

     

    Who has to pay money when someone is diagnosed?

    David

  • David said:

    I am aftraid that some Doctors might agree to diagnose someone who asks for a diagnose partly to please that person or be persuaded by the patient that they have Asperger Syndrome or Autism when they really have something else or nothing.

    David

     

    • What evidence do you have for this?
    • Would the doctor be doing it for financial gain?
    • Are you suggesting wide spread corruption or just localised. Have you any stats?
    • How can you be sure of your own diagnosis?
    • Do you think NHS doctors give a diagnosis of autism just to please people? .......considering that services are being cut and there is very limited funding already.

  • I am aftraid that some Doctors might agree to diagnose someone who asks for a diagnose partly to please that person or be persuaded by the patient that they have Asperger Syndrome or Autism when they really have something else or nothing.

    David

     

  • David, just because someone thinks they have Aspergers and then gets diagnosed after having asked for an assessment does not mean their diagnosis is any less valid than someone who got diagnosed without being aware they might have autism. Asperger/autism presents in many differernt ways and many people can camouflage the Aspergers to a high degree through social mimicry, but they feel unhappy, perhaps even depressed, and almost certainly experience low self esteem. So they approach a doctor and then face a long wait before they can be sure. I think that self-diagnosis can never be one hundred percent trusted, but most diagnoses carried out by competent professionals are reliable and true: the person does have a form of autism and just knowing this can help them, even if they do not require huge amounts of support. We are all different and no two people with autism are the same. Some will have more obvious symptoms, but this does not mean they are any more autistic or severe than someone whose AS has gone unrecognized.

  • LoCommotion said:

    Many people with Asperger have depression as they do not have good relationships with other people.

    Yes, this is the reason for my depression, as well as problems at work leading to my losing my job.

    [/quote]

    Same here. Then I got kicked out of the places I lived twice for things that were entirely not my fault. And on top of that I also have Crohn's disease.

    Welcome to the club, LoCommotion! Can't say it's not a pretty shitty one!

    :P

  • David said:

    Many people with Asperger have depression as they do not have good relationships with other people.

    Yes, this is the reason for my depression, as well as problems at work leading to my losing my job.

  • Yes well depression is more easialy to deal with then Asperger.

    Asperger cannot usually be cured but depression can be dealt with.

    Many people with Asperger have depression as they do not have good relationships with other people.

    David

    (post edited to remove full name - philippab-mod)

  • David said:

    A good idea if they agree to it. E Mail.

    An assistant might reply.

    Can you not ring up an assistant?

    Assistant means receptionist or secretary.

    David

    I had the assessment and was diagnosed with Asperger's and depression.  It didn't take him very long to figure out the Asperger's and he concentrated more on the depression aspect.

  • Yes I have been told that I speak in a monotone.

    The touble is that if you want to be diagnosed with Autism then there is an incentive not to speak clearly.

    When the Consultant Psychiatrist in 1976 wrote down mild Autism I was not thinking about being diagnosed with Autisim.

    I do not know if it still happens  that people get diagnosed with Autism without asking for a diagnoses as I was.  It proves even more to be diagnosed when you have no idea that you are on the Autistic spectrum.

    That probably happened as it is obvious in my case to any one who is clued up on Autism that I am on the Autistic spectrum.

    I know some people need to ask for a diagnoses as they would not be diagnosed.

    Professor Pat Howlin assures me that  I am certainly got Asperger Syndrome.

    She is an Autism expert and I was her patient a long time ago.

    David

  • I've got an appointment on Dec 3rd for a cognitive assesment, I also received an initial report explaing that they were going to be doing an autism assesment (and what it included) due to the problems I stated during the interview. I was however quite surprised that an observation they made was that I had clear speech but monotonious. I  probably am monotonious but I never noticed.

  • A good idea if they agree to it. E Mail.

    An assistant might reply.

    Can you not ring up an assistant?

    Assistant means receptionist or secretary.

    David

  • LoCommotion, I think it would be helpful for you to email whoever is going to do the assesment and ask them any questions you have. I myself feel more comfortable if I know  what is going to happen or what is expected from me at an appointment. Hope it all goes well. I myself can get really anxious and have to keep telling myself not to be rushed and also to seek clarification and ask questions.