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Confused with diagnosis process

KayT
Help with diagnosis process
Hi, my son is 6 and has been having problems since nursery (probably even before that but it never seemed strange to me). We've gone through a long process so far with family support workers, behavioural support, senco, observations etc. I recently completed a few assessments with the behavioural support worker who then took them back to their camhs nurse who scored them. We were told today that based on the scores my DS is now being referred to camhs for a tier 3 assessment. The 'results' that I have written down on the copy of the referral says this:

Conners Rating Scales:
ADHD Index - Teacher - 96% probability score
ADHD Index - Parent - 99% probability score
GADS Questionnaire - Score of 108
SCQ - 19

If anybody can give me some insight into what all this means as it's like a foreign language to me that would be great! 

Thanks

  • We have just started cahms they put me on a course for parents with children that have asd/traits that lasted 6 weeks and has now finished,there will be a last one in september to catch up on how we all have been doing,we basically talked about strategies ect,so i am going to try visual time table at home and giving him his own space ect,when he is worked up.

  • First of all peadatrician was going to diagnose him with high fcuntioning and sensory depending on what school said,however the sencos husband has cancer and shes not been in school much so pead diddnt get feedback.

    I went into school to see the head basically saying i wasnt happy,she said he is on the spectrum and i will sort something out with the pead,and obviously theres nothing till sept when they are back in school.

    I have a feeling if she doesnt get any info from school he wil end up getting autistic traits which i will not be happy with because i know its more.

  • Sorry to hear that you feel like you haven't been given much help. Has your son been assessed for anything? If you have already seen camhs what did they say?

    I know that I have been very lucky with the help I have received so far from the school. Although I must say that it hasn't been easy, I have had to fight every step to keep things moving. We are nearly 4 years in to the process and have only just been referred to camhs. 

  • I think youve done well to be getting the support you have without that sounding mean,ive begged and begged and begged for help with my sons behaviour and have been shrugged off at every oppertunity.

    We have been to cahms and got put  on a course for parents of children with asd.traits which i have done its a 6 weeks course but what now?

    I feel like ive been thrown on the scrapheap!

  • Hi Lou

    Thanka for the reply. I agree that they should have explained it a bit better but I think they probably didn't want to worry me. All she said was that it is a strong indicator that there is 'something' that needs exploring further but she said it could also mean nothing. Obviously when I see 'ADHD' and '99% probability' in the same sentence it is a strong indicator to me that my son has ADHD! 

    I was also told that the referral to camhs might not even be accepted. Has anyone had experience of this? I have 'known' for a long time that my son has problems and I just want to make sure that he is getting all the support he possibly can.

    thanks :-)

  • SmileHi KayT,

    Sorry, I am not here to really answer your question because I don't want to take a guess and get it wrong.  Just to say though, I don't think parents should be given 'scores' without an adequate explanation because it leaves them speculating - just as you are now.  I have been in that position myself.  I personally think you have every right to contact the person who has sent you this and ask for them to discuss exactly what those scales refer to an how they consider them significant.  I think it should come from the  mouth of the person who wrote it, if that makes sense.

    Best of luck