Toilet issues help!

Hi my ten year old son is in the process of an Aspergers diagnosis. He won't use the toilets at school despite the SENCO giving him a pass to a private toilet, a photo on reception so he isn't questioned and today even escorting him there! Any one else had same issues and any advice gratefully received

  • Hi armalite

    I had very similar issues with my son when he was younger and we too went to see a specialist.  When he had a bottle it was no problem but he also would not take any other medicine.  He used to bleed when he went for a poo.  My son would simply not go unless he was somewhere he was comfortable.  Thankfully he has not messed himself but when he was much younger we used to put a pull up on him when he needed to go, so it was messy but not as bad as it could be.  I don't know if your son is too old for this now but maybe worth a try? My son now goes fine at home but checks that all doors are closed first and that we all stay away from the bathroom door.  I don't think he will ever poo at school but at least he has some coping mechanisms.  Toileting seems to be a regular problem with ASD.  Now the majority of our toiletting issues are outside the home, days out can be difficult and school the same.

    Good luck and let me know how it goes.

    :-)

  • I am a mum of a 7 yr old boy who i absolutely adore with all my heart,  he was diagnosed with asd when he was 3 years old and has made so much progress over the past few years he attends mainstream school and has a classroom assistant but atm he seems to be coping well and there is no worries.  Except one thing toileting has always been an issue,  from he was a young age trying to get him toilet trained for the poo situation has been a total nightmare, when he was in nappys there was no issue but when he became too big thats when the problems started he used to get himself so constipated he would have ran up and down in tears which led me to be completely distraught,  he would never take any medicine of any kind as he didnt like the texture of it,  movical also didnt work as he refused to drink it.  We finally got referred to a clinical psychologist when he was 5 1/2 and we seemed to make good progress at this time he refused to sit on the toilet we bought everything known to man to try and make his stay there more pleasant nothing worked but after a year of seeing the psychologist we finally made progress but now we seem back to square one we were discharged from the psychologist and are awaiting another appointment as for the past year the problems have increased and went up a notch leading me to complete and utter distraction, tonight for instance we were sitting watching a film together he was only out of bath and smelt fresh as a daisy 10 mins later walked inti kitchen and came back and instantly could smell poo this isnt like a solid bowel movement its leakages everytime u take his clothes off we have sat in the bathroom with him more or less begging him to go but it just leads to him being upset us being upset and it gets us nowhere and 5 mins later he will do the same thing. He has done it at one of his clubs thankfully he hasnt done it as school (fingers crossed it never does happen) just wondering if any other parent has gone through this and if so id there any other strageties i can use at the minute i will try anything.

    thanks

  • Hi both the private toilet is a staff toilet and at home he will go as long as all the doors in the house are closed.  He has several quirky habits but this is the one that affects us the most really.  Public toilets are also a problem and he will hold on for the most incredible amount of time,.

  • the disabled toilet at his school is private,unlike the communal ones in school.my boy is 13 now and in big school and using general toilets at school.he uses home toilet at home no problem,only he tends to leave it to last minute as he rather play on pooter rather  than waste time going toilet. You need to work out what works for you and what does not.Do some detective work to find out what your son not use school toilets.It might be something simple like the smells or noise or even flickering lights.Your school should have facilities for disabled people,maybe your son would prefer to use that.

  • Is the private toilet the same as the disabled toilets? Does your son have any issues at home with using the toilet?

  • mine would not use school toilets until he was in primary 6.its a difficult one,because mine refused on second day of primary 1.but all of a sudden he started to use the toilet at school because he realised he was better comfortable when he did .can your son say why? could be the smells,anxietys about other people around him.would he use the schools disabled toilet where he could be private?