Skip to main content
Close Button
Donate
  • Replies 53 replies
  • Subscribers 107 subscribers
  • Views 27766 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Back pain

Handi-andis
over 6 years ago

Hi

i have some form of instability in my back that the doctors can't get to the bottom of, but the net result is back pain that painkillers don't deal with and it disturbs my sleep every single night. Having just read a couple of other posts and wondering for a while now about the possibility of some form of co-morbidity between autism and back issues, I thought I would just do a quick straw poll to find out how wide spread the issue is.

Thanks 

Andrew

Parents
  • over 6 years ago

    Hi, It could be Earlos Danlos Syndrome, as I have back pain too. It's a over flexible soft tissues muscle condition which effects the whole body. People don't often see what's the problem, link here https://www.ehlers-danlos.org/

    Often local physios don't know about this condition, so often the exercises don't help, unless its private physio.

    Most Gp's have not even heard of it before.

  • over 6 years ago in reply to Zatanna

    Hello Zantana.. I have printed off the list of symptoms and sub symptoms and highlighted all the ones which I have. But Im just wondering how helpful it is to get a diagnosis for eds? or is it another  good to know as part of the jigsaw puzzle of or lives and conditions? . Plus I really can't get my head round this being a possibility because Im very inflexible and not at all bendy but lots of other things fit... curiously Misfit thanks 

Reply
  • over 6 years ago in reply to Zatanna

    Hello Zantana.. I have printed off the list of symptoms and sub symptoms and highlighted all the ones which I have. But Im just wondering how helpful it is to get a diagnosis for eds? or is it another  good to know as part of the jigsaw puzzle of or lives and conditions? . Plus I really can't get my head round this being a possibility because Im very inflexible and not at all bendy but lots of other things fit... curiously Misfit thanks 

Children
  • over 6 years ago in reply to Quaker

    Thanks Quaker. I think I was just looking for reassurance to go ahead and take the information to my Gp when I see her today.   I’m so wary of having yet another thing wrong with me but if it it this it does add so many pieces together. Thanks very much

  • over 6 years ago in reply to Misfit61

    Misfit, I have a diagnosis of joint hypermobility syndrome but the rheumatologist who diagnosed this said Ehlers Danlos Hypermobile type is the same thing (I think I already said this, sorry for repeating myself). I found it helpful to get this diagnosis because it clarified lots of things for me and also made me feel like I can tell people what is wrong with me instead of just saying it is pain or not being able to describe it well which I struggle to do anyway. Also there are other things associated with EDS/JHS and they are things like IBS and reynauds syndrome and POTS and also mast cell issues. I have a diagnosis of IBS and reynauds and I also think I have POTS and mast cell issues and want to have these diagnosed or otherwise dismissed because if I know what is wrong with me I can turn to alternative medicine to get some relief usually, like I have with pyroluria which is another thing I have and which has gone away with supplements.