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Back pain

Handi-andis
over 6 years ago

Hi

i have some form of instability in my back that the doctors can't get to the bottom of, but the net result is back pain that painkillers don't deal with and it disturbs my sleep every single night. Having just read a couple of other posts and wondering for a while now about the possibility of some form of co-morbidity between autism and back issues, I thought I would just do a quick straw poll to find out how wide spread the issue is.

Thanks 

Andrew

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  • over 6 years ago

    Hi, It could be Earlos Danlos Syndrome, as I have back pain too. It's a over flexible soft tissues muscle condition which effects the whole body. People don't often see what's the problem, link here https://www.ehlers-danlos.org/

    Often local physios don't know about this condition, so often the exercises don't help, unless its private physio.

    Most Gp's have not even heard of it before.

  • over 6 years ago in reply to Zatanna

    Now it's interesting you should mention EDS, as I do know about it having dated someone with it. Interesting enough she had a brother on the spectrum. I do have some characteristics, such as being able to touch the tip of my nose with my tongue, but despite being hypermobile I don't have enough extra mobility to make EDS likely but I have always wondered about it.

  • over 6 years ago in reply to Handi-andis

    I'm not too flexible, but you don't need to be too hypermobile to have EDS. I certainly can't touch my tongue on my nose! there is a link with gastro issues too such as IBS. 

  • over 6 years ago in reply to Handi-andis

    I was just trying to contribute possible connection and cause.. and potential solution to those able into the stream of ideas. Plus when painkillers are either ineffective or untolerated have to look for other alternatives. But yes I do know what you mean about pain levels increasing when trying to target muscles. Plus over the years my pain, area of pain etc changes depending on what and where the pressure on the nerve is and this shifts about. If I do too much walking it irritates it I suppose that's why I have started the thread about exercise. Like you I have various pillows to support in bed but move about a lot as the discomfort changes. Also need one for my knee. Also the type of pain changes. Recently it has been the burning kind. Yes I'm glad you posted this topic because I never would have considered a connection with others on the forum in this way! 

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  • over 6 years ago in reply to Handi-andis

    I was just trying to contribute possible connection and cause.. and potential solution to those able into the stream of ideas. Plus when painkillers are either ineffective or untolerated have to look for other alternatives. But yes I do know what you mean about pain levels increasing when trying to target muscles. Plus over the years my pain, area of pain etc changes depending on what and where the pressure on the nerve is and this shifts about. If I do too much walking it irritates it I suppose that's why I have started the thread about exercise. Like you I have various pillows to support in bed but move about a lot as the discomfort changes. Also need one for my knee. Also the type of pain changes. Recently it has been the burning kind. Yes I'm glad you posted this topic because I never would have considered a connection with others on the forum in this way! 

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