Do you think it is wrong for someone to say they are autistic when they aren't diagnosed?

Do you think it is wrong for someone to say they are autistic when they aren't diagnosed?

I don't want to cause any arguments on here just wanted people's honest opinions because I am not diagnosed myself and not sure i want to go down the assessment route and feel at present that I would only be doing so for other people's benefit to prove I am and not my own.

  • I think it's really complicated, and my take would be that if it is impacting on your day to day life and/or mental health then it's worth doing. If it isn't, then it's probably worth weighing up how a diagnosis would impact you and those around you in terms of whether it's worth it. 

    I think self identification is multi-faceted too; I can only really speak for myself and say that acceptance of a condition has been incredibly difficult, long-winded and, well, complicated. I've only really been able to accept what I am since discovering that, while I still await formal assessment, the psychiatrist who made the judgement can and does formally assess (they just weren't able to in the capacity in which I saw them, hence they referred me for formal assessment).  But yeah, until finding that out I had the 'they say I'm...' or 'Im probably autistic' where there was a level of doubt that maintained enough needle to continue to negatively impact on my mental health. 

    I suppose writing that for me perhaps the answer to your question is acceptance - do you fully accept who or what you are, is there an unanswered question that would, in some small way, help you moving forward? 

    For me I needed that - and reading a couple of responses here really confirms that, since Ive also had long spells of feeling like a fraud, or knowing there's an issue but not having a clue what it is... It ebbs and flows but it has been pretty taxing at times, and impacts on my day to day life significantly. 

    Being told to think of myself as autistic while I wait for the assessment was helpful. Being told by the person who reffered me for assessment that they were qualified to make that diagnosis and that I would get it was profoundly more so. I guess that's a black and white thinking thing, but until the latter I've struggled with myself massively. And that took a very long time. 

    (Edit: What's potentially interesting is that if/when my latest referral falls through due to the system being under so much pressure, I'm not sure I will go the formal route... I now accept that I'm autistic, which for me was almost as big a battle as getting to the bottom of what was going on. 

    Oh, and in my work I actively encourage diagnosis as believe knowledge and understanding can be really helpful if those seeds of doubt and negativity start to weedle away: knowledge is power, especially so about the self)

  •   - I endorse Bunny's signposting above. It is a deeply personal decision. Self-identification is a legitimate choice and so is seeking diagnosis. Indeed, later-identified people often start with some a-ha moments, researching the topic and an emerging sense there is reasonable probability that they are autistic. Good luck with your own journey.

  • Perhaps consider those out there who are awaiting diagnosis in what is an absolute mess of a system - I'm not sure deeming folk as pretenders/liars/attention seekers in some half way house is helpful, especially when many will feel that way themselves. 

  • I don't think it is wrong if someone truly believes they are autistic. Anyone diagnosed as an adult was self diagnosed first and we don't become autistic when we are diagnosed.

    What is not ok is when people use it as an off hand comment and don't actually mean they are autistic at all. They are just referring to one behaviour trait. People say it with things like OCD too when they just mean they are a bit particular or like things tidy. This is damaging to those with actual difficulties.

  • Hi, 

    I don't think it's wrong at all.

    I spent 3-4 years before my diagnosis with an ever-growing conviction that I was autistic. The most important factor was that autism was the first thing I had found that explained all of my back story of 70+ years.
    Also, I started to say to my partner things like "do you think what I did/said just then was autistic?" 

    By the time of my autism assessment we were both reasonably sure I was autistic.    

  • ps everyone who believes they may have asd or have been told so (by a specialist professional covering that area) should also seek formal diagnosis imo.

  • This article discusses self-identification vs formal assessment, and includes perspectives from some autistic people:

    NAS - Deciding whether to seek an autism assessment

  • yes I do. There are type two types I supposed self diagnosed and pretenders. I am not sure why anyone would pretend to be autistic. I know there are people who are self diagnosed here, really that is a half way house. Some people do this to fill a blank space or feel part of a community like people who attend niche groups.  There is a woman who showed up at our residents management meeting last month, she doesn’t even live on the site, she is disruptive and talks over people with nonsense.  No one knows how to ask her to keep quite or leave. Rubberneckers may also be a significant source of misinformation out there. For me it undervalues the diagnosis, while I respect your sense of identity I have no time for liars or attention seekers.