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Do you think it is wrong for someone to say they are autistic when they aren't diagnosed?

Heather85

Do you think it is wrong for someone to say they are autistic when they aren't diagnosed?

I don't want to cause any arguments on here just wanted people's honest opinions because I am not diagnosed myself and not sure i want to go down the assessment route and feel at present that I would only be doing so for other people's benefit to prove I am and not my own.

Parents

  • This is still not peer reviewed www.medrxiv.org/.../2026.08.03.26359559v1.full but they say in "interpretation"

    > Interpretation Adults who suspect they are autistic or have ADHD show polygenic profiles closely resembling those of individuals diagnosed with the condition in late childhood, adolescence, or adulthood. Suspected and diagnosed groups are similar in most PGS but differ in co-occurring mental health conditions, suggesting that factors beyond underlying polygenic profiles shape who seeks and receives a diagnosis. These findings support prioritising diagnostic access and neurodevelopmentally-informed support for adults who suspect they may be neurodivergent.

    I think this means that they are usually right about their hunch. But I am adding another layer of interpretation, and could be wrong.

    I only disagree with people that know too little, or for which there were never problems related to Autism self-diagnosing. For the later case dismisses the disability or impairment part.

    (Those are valid for most disabling conditions, or even disease classification in my view, not just autism.)

  • in reply to emanningis

    Yes self diagnosis requires research and unless you fit so many of the struggles it seems odd to self diagnosis 

    I still wonder how much of my struggles are autism and how much is ADHD as I seem to fit the criteria for audhd despite. At first I refused to believe ADHD might be a possibility but the more I searched is x an autistic trait thr more. I got lead to audhd 

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  • in reply to emanningis

    Yes self diagnosis requires research and unless you fit so many of the struggles it seems odd to self diagnosis 

    I still wonder how much of my struggles are autism and how much is ADHD as I seem to fit the criteria for audhd despite. At first I refused to believe ADHD might be a possibility but the more I searched is x an autistic trait thr more. I got lead to audhd 

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