Do you think it is wrong for someone to say they are autistic when they aren't diagnosed?

Do you think it is wrong for someone to say they are autistic when they aren't diagnosed?

I don't want to cause any arguments on here just wanted people's honest opinions because I am not diagnosed myself and not sure i want to go down the assessment route and feel at present that I would only be doing so for other people's benefit to prove I am and not my own.

Parents
  • In around 2012 I was thinking why I have the difficulties that I had. I looked at my behaviour and ended searching highly sensitive person and found a test. From there it seemed the search on this lead to autism. I have been treated for an eating disorder earlier and some autistic symptoms noted. I went into hospital in 2015 and the consultant as they were a teaching hospital and did autism to they tested me with ADOS and spoke to my dad. They then started treating as having autistic traits but said I still to get diagnosed. This could have been done in 2016 but I never went to testing stage. They spoke to my mum and asked her if I had been ill in childhood and she said no and it went no further. They still treated as having autistic traits and I did another test by a consultant in 2017 and scored highly.

    In hospital in 2021 under observation a nurse wrote in my discharge summary I should be tested. I didn't want to leave it like that so when discharged spoke to my GP and set up the referral. I got my notes and found I was actually admitted to hospital at 2 months and was a frequent visitor to an infant. This was what was missing for me before. I submitted the evidence with others and went for the test and was diagnosed by the NHS  coming up to four years ago. 

    I would have left just being treated as traits and seeing myself as this if not for what the nurse wrote on my discharge summary. I think it is fine if others want to live by having traits. How has it helped. I was in hospital in 2023 and it helped get my own room because of the diagnosis. It helped me to but it got quite difficult when I started to think over stuff that never applied. I was ok and then my report in more detail later and surprised I had more level 2 than I thought as I never read the report properly at first. I started thinking does that mean I will struggle to live alone. This is not so and I am comfortable with the diagnosis now.

Reply
  • In around 2012 I was thinking why I have the difficulties that I had. I looked at my behaviour and ended searching highly sensitive person and found a test. From there it seemed the search on this lead to autism. I have been treated for an eating disorder earlier and some autistic symptoms noted. I went into hospital in 2015 and the consultant as they were a teaching hospital and did autism to they tested me with ADOS and spoke to my dad. They then started treating as having autistic traits but said I still to get diagnosed. This could have been done in 2016 but I never went to testing stage. They spoke to my mum and asked her if I had been ill in childhood and she said no and it went no further. They still treated as having autistic traits and I did another test by a consultant in 2017 and scored highly.

    In hospital in 2021 under observation a nurse wrote in my discharge summary I should be tested. I didn't want to leave it like that so when discharged spoke to my GP and set up the referral. I got my notes and found I was actually admitted to hospital at 2 months and was a frequent visitor to an infant. This was what was missing for me before. I submitted the evidence with others and went for the test and was diagnosed by the NHS  coming up to four years ago. 

    I would have left just being treated as traits and seeing myself as this if not for what the nurse wrote on my discharge summary. I think it is fine if others want to live by having traits. How has it helped. I was in hospital in 2023 and it helped get my own room because of the diagnosis. It helped me to but it got quite difficult when I started to think over stuff that never applied. I was ok and then my report in more detail later and surprised I had more level 2 than I thought as I never read the report properly at first. I started thinking does that mean I will struggle to live alone. This is not so and I am comfortable with the diagnosis now.

Children
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