Do you think it is wrong for someone to say they are autistic when they aren't diagnosed?

Do you think it is wrong for someone to say they are autistic when they aren't diagnosed?

I don't want to cause any arguments on here just wanted people's honest opinions because I am not diagnosed myself and not sure i want to go down the assessment route and feel at present that I would only be doing so for other people's benefit to prove I am and not my own.

Parents
  • yes I do. There are type two types I supposed self diagnosed and pretenders. I am not sure why anyone would pretend to be autistic. I know there are people who are self diagnosed here, really that is a half way house. Some people do this to fill a blank space or feel part of a community like people who attend niche groups.  There is a woman who showed up at our residents management meeting last month, she doesn’t even live on the site, she is disruptive and talks over people with nonsense.  No one knows how to ask her to keep quite or leave. Rubberneckers may also be a significant source of misinformation out there. For me it undervalues the diagnosis, while I respect your sense of identity I have no time for liars or attention seekers. 

  • Perhaps consider those out there who are awaiting diagnosis in what is an absolute mess of a system - I'm not sure deeming folk as pretenders/liars/attention seekers in some half way house is helpful, especially when many will feel that way themselves. 

  • Its a personal choice to have an assessment or not, very few people talk about not being diagnosed after having an assessment. This is because they move on. They process that as part of their identity. Probably not helpful who want that tag. But it seems strange to be attending groups with communities of people diagnosed with a condition you have not been assessed for. I waited over 4 years with multiple ups and downs, change of service - so I am well aware of what it feels like. Until you have the diagnosis you can't move on, but you’ve lived your life up until that point, you are still you. Its the not wanting clinical assessment, but determining yourself is not a professional diagnosis.

Reply
  • Its a personal choice to have an assessment or not, very few people talk about not being diagnosed after having an assessment. This is because they move on. They process that as part of their identity. Probably not helpful who want that tag. But it seems strange to be attending groups with communities of people diagnosed with a condition you have not been assessed for. I waited over 4 years with multiple ups and downs, change of service - so I am well aware of what it feels like. Until you have the diagnosis you can't move on, but you’ve lived your life up until that point, you are still you. Its the not wanting clinical assessment, but determining yourself is not a professional diagnosis.

Children