Published on 12, July, 2020
So for 4+ years I've been making the transition to accepting my dianosis. I've changed my lifestyle a lot so I'm no longer sick from stress, I work remotely which has been a massive reason for my rewed health which had seen me have crohns disease for over a decade.
But now I'm in a position where I am able to admit my limitations from ASC actually do stop me from doing the work I used to do. I can't travel in public transport, I have to drive, and I can't adhere to a full-time role, I work freelance so I can take days off as and when I need them. It works.
But my work has dried up and I now need to get back out there to ensure I don't starve or become homeless.
How do I continue on when my old life no longer fits my new self? I feel trapped in no man's land. Does anyone else share this issue? What did you do to resolve it?
There is an element of grieving for the what if's from the old life when you get a diagnosis. I am just over a year on from mine. I thought that would be an end to all my problems as I now had an answer. The reality for me was what the heck do I do. I read books on autism in late diagnosed adults to try and get an understanding of my 'thing'. I thought get a life coach which was basically a waste of my hard earned. It could have been that it was too early for me in my discovery period. I think I am still in that phase.
So over the last year I have tried to learn about myself and look at things through the lens of my autism. I was open with my line managers and foolishly believed that would lead to a happy work life with the adjustments I needed to be my best self at work. I'm now waiting on my union to tell me if I have a case for an ET. I cannot do the field in which I have worked for 30 years according to my managers!
I am now not at a crossroads now but more of standing on the edge of a cliff surrounded in mist where I cannot see my feet. At my back fire is slowly creeping towards me. What do I do? Do I take a step forward into the unknown or stand and try to put out the fire unsuccessfully. Both choices for an autistic are problematic.
What I have learned is that this world is not made for me and I need to find a way to navigate it causing the least damage to myself.