What is your biggest challenge with being an autistic adult?

I am an occupational therapist who works with autistic teens and young adults. I am curious- what is the biggest challenge autistic teens and young adults face as they transition to adulthood? Is it the fear of being lonely? Employment? Succeeding in college? Being accepted by others and making friends?

Parents
  • I think pretty much I was a level 2 child, My ADOS I still scored 2's in some when  I was assessed and 1's. I have a bit of a mixed cormbodity and autism is not my only diagnosis. I have been quite unwell since early teens. It's roots even go back to 8 relating to feeding for me a bit and food was bland was a young child normally. I moved to a new school at 8 and didn't like it. Also, who gives children  pepper, really I would think it wasn’t common, I was likely sensory seeking food  then which changed to more restrictive and my sensory affects my taste and more. My school friends are mostly married. Those who have not married some will have been with their partners. All my siblings have their own partners and children I am an auntie to 8. I have my parents. Even at university I didn't make a friend, I needed to travel home be with family and my own life. I had all those issues since childhood. Now though I am concerned about the future a bit more and if I get to 60 I may have more medical conditions and be more frail. My parents are with us, my dad has been graced to get to 80 and my mum is in her mid 70s. Covid affected a lot of voluntary jobs still, that have not come back the same way. I turned 50 and I was mortified. I had hoped to work at Citizens Advice in the community once a week, but it all went online and  to my knowledge it never returned. They advertised hospital chaplaincy voluntary again disappointment.

    My family is a family with a bit of feeding issues, some niece and nephews when they very small existed on bread, butter and cheese. Another one just had milk. I love them dearly. There are probably some non diagnosed in my family but never got to the stage of treatment for an extended period. My second youngest brother spoke out to a consultant when I was in hospital, that he think that he is on the spectrum. He is a specialist in Economics. One of my family has said in a family get together after knowing me  that he knew it for years about my autism, he thinks he has it, but has gone onto to be a dad and has a young child and works in a field which he likes. I helped to raise him as well babysitting. He is 27 now.

    However, one of my nephews is quite shy and he struggles for now with speaking to females, he is just, 20 still..Our family adore him  whatever and want him to be happy in life.. I can vouch for him as baby as when he was little, I knew he was a very sensitive soul. I was a bit taken to visit recently and find out he was doing delivery driving for food. Then he said  is having a gap year after BTEC, it seems food delivery is growing.  He is very bright, but may be has some traits. He ate the bread, butter and cheese in childhood for a very long time.  I am proud of them all, but told about a gap yet. He was affected by COVID and so was nephew who doing his GCSE now.

    We are still seeing some fall out and it seems like there are still some hardships out there. My parents strike me as having some traits, but a diagnosis post 76 is less likely on adult NHS wards in work as many may retire in their 60's these days.

Reply
  • I think pretty much I was a level 2 child, My ADOS I still scored 2's in some when  I was assessed and 1's. I have a bit of a mixed cormbodity and autism is not my only diagnosis. I have been quite unwell since early teens. It's roots even go back to 8 relating to feeding for me a bit and food was bland was a young child normally. I moved to a new school at 8 and didn't like it. Also, who gives children  pepper, really I would think it wasn’t common, I was likely sensory seeking food  then which changed to more restrictive and my sensory affects my taste and more. My school friends are mostly married. Those who have not married some will have been with their partners. All my siblings have their own partners and children I am an auntie to 8. I have my parents. Even at university I didn't make a friend, I needed to travel home be with family and my own life. I had all those issues since childhood. Now though I am concerned about the future a bit more and if I get to 60 I may have more medical conditions and be more frail. My parents are with us, my dad has been graced to get to 80 and my mum is in her mid 70s. Covid affected a lot of voluntary jobs still, that have not come back the same way. I turned 50 and I was mortified. I had hoped to work at Citizens Advice in the community once a week, but it all went online and  to my knowledge it never returned. They advertised hospital chaplaincy voluntary again disappointment.

    My family is a family with a bit of feeding issues, some niece and nephews when they very small existed on bread, butter and cheese. Another one just had milk. I love them dearly. There are probably some non diagnosed in my family but never got to the stage of treatment for an extended period. My second youngest brother spoke out to a consultant when I was in hospital, that he think that he is on the spectrum. He is a specialist in Economics. One of my family has said in a family get together after knowing me  that he knew it for years about my autism, he thinks he has it, but has gone onto to be a dad and has a young child and works in a field which he likes. I helped to raise him as well babysitting. He is 27 now.

    However, one of my nephews is quite shy and he struggles for now with speaking to females, he is just, 20 still..Our family adore him  whatever and want him to be happy in life.. I can vouch for him as baby as when he was little, I knew he was a very sensitive soul. I was a bit taken to visit recently and find out he was doing delivery driving for food. Then he said  is having a gap year after BTEC, it seems food delivery is growing.  He is very bright, but may be has some traits. He ate the bread, butter and cheese in childhood for a very long time.  I am proud of them all, but told about a gap yet. He was affected by COVID and so was nephew who doing his GCSE now.

    We are still seeing some fall out and it seems like there are still some hardships out there. My parents strike me as having some traits, but a diagnosis post 76 is less likely on adult NHS wards in work as many may retire in their 60's these days.

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