Late diagnosis adults with Autism

I'm 33 and going through the Diagnosis process currently. It's very hard going. Going through every inch of my personality and life. I'm struggling with trying to separate what is me and what is autism. Some things I do, like or find uncomfortable will just be my personality everyone is different. Which bits are and are not  Autism. My family and friends argue with me on certain points that everyone does a little of everything.  I work with Autistic children so I'm fully aware of what Autism looks like as a spectrum. However i feel adults are a different thing all together. Ive had my whole life to learn. hide and adapt to the world around me. I'm now set in my ways and routines and have found safe ways of doing things for myself. I don't know what I'm hiding or masking anymore. To conclude who I am? 

Help ? I don't know any adults with autism to reach out to 

Parents
  • I had a huge identity crisis when I was diagnosed. What parts of me were actually me? What was autism? Did I only get accepted onto my maths course because I'm autistic? Who would I be if I wasn't autistic?

    A lot of the features I thought of as me were just autism, and that's still something I struggle with. Where do I start? Do I start at any point or do I just blend into the vague background of just "Not Normal"?

  • I don't think there is a statistic of how many UK autistics but I am sure it is many thousands. Labeling such a group as "not normal" isn't helpful. My GP once said to me "What is normal?" My attitude  is que sera sera.  If others wish to pidgeon hole me based on rumour --- that's their problem. I yam what I yam --- hopefully not looking like one! Wink

    So boopBrownie try to save yourself from much self analysing, and try to accept your ASD as part of who you are.  My own diagnosis at the ripe age of 76 was a welcome revelation that allowed me to at least try to stop beating myself up---I still do it though as old habits do die hard. Sorry to repeat old worn out sayings but "if the shoe fits, wear it" 

  • There probably is a statistic of how many autistic people there are in the Uk or one could be put together but as a very rough estimate if we assume 1% of the population are autistic and the population of the UK is 60m say that gives 600,000 autistic people in the UK

  • That's roughly in line with what it says here on the NAS website:

    "Government prevalence surveys last estimated that around one in 100 people are autistic. However, because these are estimates this is not definite. Other surveys and international estimates have come up with different prevalence estimates. Most of them suggest autism prevalence is higher. The National Autistic Society thinks the UK governments should do more research into autism prevalence to find an updated figure. Until that research is done, we believe that more than one in 100 people are autistic, which means more than 700,000 people in the UK."

    A recent research study has indicated that the true number may be in the region of 1.2 million in England alone.

    https://www.ucl.ac.uk/news/2023/jun/number-autistic-people-england-may-be-twice-high-previously-thought

Reply
  • That's roughly in line with what it says here on the NAS website:

    "Government prevalence surveys last estimated that around one in 100 people are autistic. However, because these are estimates this is not definite. Other surveys and international estimates have come up with different prevalence estimates. Most of them suggest autism prevalence is higher. The National Autistic Society thinks the UK governments should do more research into autism prevalence to find an updated figure. Until that research is done, we believe that more than one in 100 people are autistic, which means more than 700,000 people in the UK."

    A recent research study has indicated that the true number may be in the region of 1.2 million in England alone.

    https://www.ucl.ac.uk/news/2023/jun/number-autistic-people-england-may-be-twice-high-previously-thought

Children
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