This condition is cruel

Sorry for first post here being a downbeat and inward-focussed one. This community seems wonderful, having hovered around for a few weeks.

Just need somewhere to offload sense of despair and cruelty of (my particular variety of) neurodivergence. Age 38, recently screened for Autism and beginning the three year wait for assessment.

Meanwhile, having held so much together for years (family, job, voluntary/leisure), everything is falling apart. Past five years have involved admitting vulnerability, making lifestyle changes, and being well supported by those around me. But it's just getting worse.

I thought that by striving and facing every difficulty and discomfort, and trying to hold my own in a world I don't understand, I would become more resilient but it's the complete opposite. I'm fully depleted and have no fight or assertiveness left. It's hurting those around me so much as I withdraw and avoid things and don't communicate properly.

I've sought support through various channels but they're all designed to equip you to face your difficulties, but I'm done facing my difficulties. I've proved I can do it, but any joy/satisfaction from functioning and overcoming difficulty is dwarfed by the miserable sense of inferiority and the giant uphill struggle involved.

People around me ask, earnestly, "how can we help"? I cannot give an answer to this question, as I'm so full of contradictions, shifting perspectives, and internal conflict that, while I'll sometimes contrive to give an answer to remove the awkwardness, the honest one is "I just don't know". 

This condition is cruel.

Parents
  • I'm sorry that you're struggling so much right now. Everyone here can relate, but sometimes the burnout can be more severe than at other times in our lives, and that seems to be where you are right now. Please don't think of withdrawal as failure. You need it like many NT people need the oxygen of stimulus, unending socialising, contact. Yes, making forrays into the world on your own terms is healthy, but the ratios can be a total inverse for what's 'normal' and you're still living the right life for you and your mental/emotional  wellbeing. 

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