This condition is cruel

Sorry for first post here being a downbeat and inward-focussed one. This community seems wonderful, having hovered around for a few weeks.

Just need somewhere to offload sense of despair and cruelty of (my particular variety of) neurodivergence. Age 38, recently screened for Autism and beginning the three year wait for assessment.

Meanwhile, having held so much together for years (family, job, voluntary/leisure), everything is falling apart. Past five years have involved admitting vulnerability, making lifestyle changes, and being well supported by those around me. But it's just getting worse.

I thought that by striving and facing every difficulty and discomfort, and trying to hold my own in a world I don't understand, I would become more resilient but it's the complete opposite. I'm fully depleted and have no fight or assertiveness left. It's hurting those around me so much as I withdraw and avoid things and don't communicate properly.

I've sought support through various channels but they're all designed to equip you to face your difficulties, but I'm done facing my difficulties. I've proved I can do it, but any joy/satisfaction from functioning and overcoming difficulty is dwarfed by the miserable sense of inferiority and the giant uphill struggle involved.

People around me ask, earnestly, "how can we help"? I cannot give an answer to this question, as I'm so full of contradictions, shifting perspectives, and internal conflict that, while I'll sometimes contrive to give an answer to remove the awkwardness, the honest one is "I just don't know". 

This condition is cruel.

Parents
  • I get people who ask me:

    Are you working? How do you support yourself? Do I get bored at home? Was i furloughed? I go home crying and anxiety gets high. Show them a leaflet about a group belong to and some understand. Ask me which ones i like to attend. 

    Had family who weren't very supportive like going behind my back and trying to plan my future.

    A local charity went behind my back and told board of directors they're concerned about my welfare etc. Also told me to stop emailing someone (i was thanking her for explaining what happened one day); made things up saying they will sign post me to another organisation. Plus making me go to my GP to get counselling. Then everything changed all a sudden due to covid being declared in UK.

    Do what's best for you. Yin yang

Reply
  • I get people who ask me:

    Are you working? How do you support yourself? Do I get bored at home? Was i furloughed? I go home crying and anxiety gets high. Show them a leaflet about a group belong to and some understand. Ask me which ones i like to attend. 

    Had family who weren't very supportive like going behind my back and trying to plan my future.

    A local charity went behind my back and told board of directors they're concerned about my welfare etc. Also told me to stop emailing someone (i was thanking her for explaining what happened one day); made things up saying they will sign post me to another organisation. Plus making me go to my GP to get counselling. Then everything changed all a sudden due to covid being declared in UK.

    Do what's best for you. Yin yang

Children
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