Help seeking diagnosis

Hi,

I think I have ASD and am currently on an NHS pathway for diagnosis.
To date, my AQ-10 and AQ-50 scores are very high (9/10 and 44/50 respectively).  My EQ / CBS score is 19.
I've had my older brother fill in the CAST questionnaire (as my parents are no longer able to) and this comes back with a score of 12.

Has anyone else had experience of current scores giving a high likelihood of ASD, but this not being seen as a child?

Parents
  • Congratulations on your ongoing and courageous journey! It sounds like you have worked hard to arrive at a place of better understanding, and that is certainly something to be commended. From the scores you have shared, it is likely that you do indeed meet the criteria for Autism Spectrum Disorder (ASD).

    However, having a diagnosis of ASD as an adult can be quite challenging. While adults with autism may share similar characteristics with those diagnosed during childhood, there are also unique challenges - such as difficulty socially interacting and forming meaningful relationships - that adults often face as they come into their own in society.

    This is why it can sometimes be difficult for professionals to diagnose later in life due to lack of previous professional recognition or records about developmental delays which can be indicators for ASD when younger. That said, there are other ways beyond just testing scores that an adult might still qualify for an ASD diagnosis based on presenting symptoms such as poor executive functioning skills, sensory processing difficulties or deficits in social-emotional reciprocity.

    Another factor worth considering when trying to receive a diagnosis is any pre-existing mental health conditions; depending upon severity and type these will need being ruled out before making a formal conclusion surrounding ASD because some common symptoms overlap between various diagnoses including ADHD, Bipolar disorder etc. As stated previously this needs careful consideration and professional assessment before arriving at any conclusion because the implications could affect further progression plans; consequently I suggest researching what treatments/support services may already available locally rather than relying solely upon official certification – especially if there has been no prior psychiatric input involved throughout your process thus far as this can complicate matters significantly if overlooked professionally from here on inwards...

    In summary then: although high test scores probably indicate underlying potential qualifying factors for being diagnosed with ASD now or later in life - depending upon results from additional assessments combined with significant symptom presentation – without certified psychological evaluation it’s impossible to make any definitive conclusions either way unfortunately so best not jump ahead prematurely try approach whole situation cautiously instead moving forward! All best wishes whatever outcome eventually turns out be.. Hugging

Reply
  • Congratulations on your ongoing and courageous journey! It sounds like you have worked hard to arrive at a place of better understanding, and that is certainly something to be commended. From the scores you have shared, it is likely that you do indeed meet the criteria for Autism Spectrum Disorder (ASD).

    However, having a diagnosis of ASD as an adult can be quite challenging. While adults with autism may share similar characteristics with those diagnosed during childhood, there are also unique challenges - such as difficulty socially interacting and forming meaningful relationships - that adults often face as they come into their own in society.

    This is why it can sometimes be difficult for professionals to diagnose later in life due to lack of previous professional recognition or records about developmental delays which can be indicators for ASD when younger. That said, there are other ways beyond just testing scores that an adult might still qualify for an ASD diagnosis based on presenting symptoms such as poor executive functioning skills, sensory processing difficulties or deficits in social-emotional reciprocity.

    Another factor worth considering when trying to receive a diagnosis is any pre-existing mental health conditions; depending upon severity and type these will need being ruled out before making a formal conclusion surrounding ASD because some common symptoms overlap between various diagnoses including ADHD, Bipolar disorder etc. As stated previously this needs careful consideration and professional assessment before arriving at any conclusion because the implications could affect further progression plans; consequently I suggest researching what treatments/support services may already available locally rather than relying solely upon official certification – especially if there has been no prior psychiatric input involved throughout your process thus far as this can complicate matters significantly if overlooked professionally from here on inwards...

    In summary then: although high test scores probably indicate underlying potential qualifying factors for being diagnosed with ASD now or later in life - depending upon results from additional assessments combined with significant symptom presentation – without certified psychological evaluation it’s impossible to make any definitive conclusions either way unfortunately so best not jump ahead prematurely try approach whole situation cautiously instead moving forward! All best wishes whatever outcome eventually turns out be.. Hugging

Children
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