Published on 12, July, 2020
Hi I am 51 and have C-PTSD and OCD. I have struggled since forever with all sorts of things, but until recently, 8 months ago when I became so burnt out I could not function and was nearly hospitalised, that Autism was first mentioned. I have many of the symptoms, but I can communicate well, I have learnt what people like to hear and even if I don't mean it, I say it because I know that is what you are supposed to say or act. I find it really tiring and often have to have quiet alone days where I rest and do nothing, but had never put them both together before.
Anyway my therapist has sent a referral to my GP and this is where it falls down. Had to wait 5 weeks for a phone appointment which lasted 3 minutes and the GP couldn't see my referral (my therapist hand delivered it) he also couldn't give me any info on how long the waiting list is, or on right to choose. He said someone would call me in a few days with the info. No call so I rang back to be told they had my referral but no further info and someone would contact me with info by end of week. Still no call
Is this normal for Autism referrals also does anyone know what wait list times are like in the North West? I know they vary all over the UK. But I feel like I have waited so long to get a proper diagnosis, always being fobbed off with it's just generalised anxiety, until this time when I completely burnt out. Would really appreciate some advice
3 years! Gosh I might as well just give up now then. So rubbish, people who obviously are being referred because they are struggling have to wait 3 years. Thanks for reply though
Just to let you know I was also suggested Sarah and i have contacted her and really happy with her response and I am going to take forward now for my 21 year old daughter. The fees are incredibly reasonable given other places in Birmingham are offering £2k for video call appointments only,
Hi is £400 - £600 the amount the amount they charge. I know about this organisation.
Thanks Charlie, I contacted Sarah and she emailed back with full details of her service. She said their referral is recognised by the NHS and it seems to be affordable. She can offer me an appointment late May. But you are right, best to look into it thoroughly and I will run it past my NHS therapist/phycologist first
I was quoted £1250 to go private. If you do go down that route research fully where you go as some surgeries won’t take a diagnosis from a private assessment depending on where it is or what type of assessment it is. Get advice from your doctor/consultant rather than just looking for a private place online honey x
Thank you I will have a look