Published on 12, July, 2020
I'm into my older years now so suffer from tiredness anyway but I find myself exhausted more often and I'm sure it is the autism. I'm interested to hear how you cope with this? I found it stops me doing the things I want to do and I end up sleeping more. It's frustrating because I really want to do things but I can't because of the exhaustion.
This is a very good question, that I wish I had the answer to. I struggle with exhaustion and insomnia... and my main issue is when I try to take a break/ have a few days off from work I end up falling into a state of lethargy and depression rather than regaining energy. If I do not have to pull myself together for work or for some other project I just seem to completely collapse... yet I also can't always keep working. It's a real problem :( Not sure if anyone else is experiencing this too? I think a huge issue is that I can no longer do my hobby (hiking or exercise due to injury) so I just do not do anything meaningful in my recovery time but when I try to do work-related stuff I am too exhausted for that.... I think sleep and sleep quality is key as well- Do you sleep well?
I can relate to this. When I am working I get into the routine for 4 days and look forward to my non working days. Then the less structured time breaks the routine and I don't benefit as much as I hope from the non working days. I also find before each change insomnia is worse. I too find it hard to relax with my hobbies as I used to due my eyesight change.
Quality of sleep definitely affects my ability to function.
This happens to me too. And then I get annoyed with myself for wasting the days off. I’m also self employed so it’s affecting my work quite a lot at the moment. I just feel like I need a huge break from everything, but I can’t, if I don’t work I don’t earn. And tbh I’m barely earning and only just scraping by because I’m struggling to drum up business, and if I happen to have someone contact me out if the blue I then struggle to actually do the work. I need to try and get some kind of motivation back but this is the longest it’s gone on. It usually used to disappear if I was in a deep dark depression, but this isn’t like that at all, I know I’m not depressed I’m just completely and utterly exhausted with life and have no energy, but it’s been going on for far too long now, literally a couple of years. Being a hidden disability I don’t think we will ever get the help we need for this kind of situation because frustratingly there’s no way to prove how it’s affecting us, there’s no test or visible disability that people can see affects us, it’s just what we say. And I guess due to people lying and trying it on to get benefits etc, people are now suspicious because anyone could say that they were exhausted and had no energy to work.