Published on 12, July, 2020
Just asking because I mostly search in vain for anything useful in this publication. Perhaps I'm not a typical atypical!
I'm just leafing through the winter edition and noticing that most of the articles relate to education, teenagers and,yes, one person nearing 30, but nothing generally for struggling adults and neurodivergent families where all of the members are already adults and coping with the effects of very late identification (my own eventual diagnosis was at age 55).Are there any publications aimed at older people and families? I'm so tired of drawing blanks, especially on subjects like severe breakdown, long term unemployment, chronic burnout/shutdown, "catatonia" (if this is indeed something separate from burnout), severe, long term withdrawal from society, poor personal hygiene (again in adults, especially where the easy options of understanding and accommodating sensory needs - which seems to help in children - hasn't proved so helpful for a very withdrawn young adult). Something on navigating the benefits system on behalf of an adult who refuses to engage with the process would also be helpful. Are we somehow off the map here? I feel rather lost and today this magazine has unfortunately reinforced that feeling. :( Am I on my own with this feeling?
Hm I haven't actually received one of those in ages, can't remember when the last one came. I don't remember reading anything good or helpful in them though. Like you I feel left out and lost.
Yes, I think they only come out quarterly so, when they do appear, I want to settle down for some good articles, detailed information and signposting to services.
It's not that I begrudge some focus on children and young adults, especially where there are also learning disabilities. It's just that, particularly this quarter, it seems to be to the exclusion of all else and my family (and others like us) could really do with some decent support and information.
Mind you, I also get tired of seeking help locally when most of the support and guidance is geared towards the under 25s. Again, I'm not begrudging these services but just aghast to find that, having been though so much trauma and difficulty, whilst all the time seeking help (with autism never being suggested even once), it's already too late for most of the support offered.
So really, as a family, we're not functionning very well, we're traumatised and we're left on our own to make sense of it all. :(