Published on 12, July, 2020
Just find the future looks so bleak at times I'm lucky as still live my parents I'm not high functioning and I'm just ASD. Struggle with understanding things like bills and budgeting I guess along with getting work. My disability isn't visible or one you can here so it's hard to exsplain it to regular people and get any understanding from them. Is there support you can get for when your parents eventually pass. There not going anywhere anytime soon luckily as there only in there 60's but I almost feel like I wouldn't know how to survive or cope without them. Suffer baddly from anxiety don't go out because of it that and I don't have ideal social skills so usually end up offending people not on purpose but because I can come across as as a bit blunt and opinated but the future genuinely terrifies me.
I think anxiety goes with the terrain. I worry about the future. Everyone worries about the future. But we worry about it more. We need our certainties more than most.
Taking risks has been a hard lesson for me to learn. Still trying to learn it to be honest. I don't like big unplanned change.
Best thing you can do now I think - horrible as it sounds - is start finding the support/ learning or practicing the skills now for life without them.
Actually, whilst no one likes to contemplate their own mortality, if your parents have a good understanding of you and ASD, they might already be thinking about how you'd cope without them and might want to help you make provision/preparation now.
Bless her my mum wants to help me now. She's 81 and dependant on me. There's that to think of too. Have you siblings to step in when they are older and more frail - for you and them?